Loading…

COVID-19 Protocols

This page provides a list of COVID-19 related measurement protocols (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these protocols rather than developing new ones. The source of each protocol has been verified and contact information is provided in case additional information is needed. In the future, we plan to provide data dictionaries to enhance data interoperability and to support data harmonization. Please note, these protocols have not been selected via the standard PhenX consensus process and cannot be considered broadly validated; investigators are encouraged to perform validation studies.

Another important resource is the NIH Public Health Emergency and Disaster Research Response (DR2). The NIH DR2 provides a wide array of data collection tools and resources for use in public health emergencies and disasters, including the COVID-19 pandemic. To visit the NIH DR2, click here.

Available COVID-19 Protocols
All India Institute of Medical Sciences (AIIMS)
University of Southern California
Contact
Main Topic(s)
Longitudinal Aging Study in India – Diagnostic Assessment of Dementia (LASI-DAD)
Expand to view modules
COVID19-related knowledge and behaviors
Social Distancing; Hygiene; Knowledge
COVID19 and Heath care and food security
Health Care; Symptoms; Food Security
COVID19 and Economic Effects
Economic Impact
COVID19 and Discrimination and (mis) information
Sources of information about COVID-19; Social Impact
COVID19 and Mental Health, coping and wellbeing
Mental Health; Overall Impact
COVID-19 and Perinatal Experiences Study
Contact
Main Topic(s)
Coronavirus Perinatal Experiences Impact Survey (COPE-IS)
Expand to view modules
Prenatal Experiences of COVID-19
Current Pregnancy; Health Care
Perinatal Experiences of COVID-19
Past Pregnancy; Health Care
Exposures and Symptoms
Symptoms; Diagnosis; Mental Health
Financial Impacts
Employment; Economic Insecurity
Social Support Impacts
Social Impact
Social Distancing and Restricted Activities
Social Distancing; Home Life
Coping and Adjustment
Mental Health; Substance Use; Dietary Intake
Emotional Impact
Stress; Sleep Changes; Daily Impact
Health Background, Mental Health, and Substance Use
Health History; Substance Use
Demographics
Demographics
COVID-19 - Coronavirus Perinatal Experience - Impact Update
Expand to view modules
Exposures and Symptoms
Symptoms; Exposure
Adjustments
Daily Life; Stress; Overall Impact
Center for Economic and Social Research (CESR)
CESR Contact
Main Topic(s)
Coronavirus Tracking Survey of the Understanding America Survey (UAS)
Expand to view modules
COVID-19 Symptoms, Status, and Healthcare
Symptoms; Status; Health Care
COVID-19 Knowledge, Attitudes, and Avoidant Behaviors
Knowledge; Attitudes; Avoidant Behaviors
Mental Health and Substance Use
Mental Health; Substance Use
Labor Market Outcomes
Labor Market
Economic Insecurity
Economic Insecurity
K-12 Education Impact
K-12 Education Impact
Center for Pediatric Traumatic Stress (CPTS)
CPTS Contact 1 , CPTS Contact 2
Main Topic(s)
COVID-19 Exposure and Family Impact Survey (CEFIS)
Expand to view modules
Family Exposure items
Overall Impact
Family Impact items
Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) (Spanish)
Expand to view modules
Family Exposure items (Spanish)
Overall Impact
Family Impact items (Spanish)
Family Impact
Centers for Disease Control and Prevention (CDC)
CDC Contact
Main Topic(s)
Novel Coronavirus Person Under Investigation (PUI) and Case Report Form
Symptoms; Diagnosis; Travel History
Chronic Obstructive Pulmonary Disease Gene Study (COPDGene)
COPDGene Contact 1 , COPDGene Contact 2
Main Topic(s)
COPD Gene COVID-19 Survey
Symptoms; Diagnosis
Complementary and Integrative Research (CAIR)
CAIR Contact
Main Topic(s)
CAIR-PIQ Council on American-Islamic Relations (CAIR)
Pandemic Impact Questionnaire (PIQ)
Expand to view modules
COVID-19 Health Impacts
Symptoms; Status; Health Care
COVID-19 Negative Social and Behavioral Impacts
Labor Market; Economic Insecurity
COVID-19 Mental Health Impact
Mental Health
COVID-19 Impact on Sleep
Sleep Changes
COVID-19 Positive Impacts
Positive Impacts
Cornell University
Contact
Main Topic(s)
Telling our stories in the age of COVID-19 (TOSC)
Expand to view modules
COVID-19 Situational and Contextual Factors
Employment; Demographics
COVID-19 Regional Restriction Status
Government Response
COVID-19 Concerns About Health, Finances, and Overall Impact
Health Care; Economic Insecurity
COVID-19 Health Status
Status; Diagnosis
COVID-19 Impact
Overall Impact
The Coronavirus Anxiety Project
Contact
Main Topic(s)
Coronavirus Anxiety Scale (CAS)
Mental Health
Obsession with COVID-19 Scale (OCS)
Mental Health
Coronavirus Health Impact Survey (CRISIS)
CRISIS Contact
Main Topic(s)
CRISIS Surveys: Adult Self-Report Baseline Current Form
Expand to view modules
CRISIS Baseline Current Form- Background
Demographics; Health Care
Coronavirus/COVID-19 Health/Exposure Status
Symptoms; Diagnosis; Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Youth Self-Report Baseline Current Form
Expand to view modules
CRISIS Baseline Current Form- Background
Demographics; Health Care
Coronavirus/COVID-19 Health/Exposure Status
Symptoms; Diagnosis; Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Baseline Current Form
Expand to view modules
CRISIS Baseline Current Form- Background
Demographics; Health Care
Coronavirus/COVID-19 Health/Exposure Status
Symptoms; Diagnosis; Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Adult Self-Report Follow-up Current Form
Expand to view modules
Coronavirus/COVID-19 Health/Exposure Status
Symptoms; Diagnosis; Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Youth Self-Report Follow-up Current Form
Expand to view modules
Coronavirus/COVID-19 Health/Exposure Status
Symptoms; Diagnosis; Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Follow-up Current Form
Expand to view modules
Coronavirus/COVID-19 Health/Exposure Status
Symptoms; Diagnosis; Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis
Life Changes
Daily Behaviors During COVID-19
Sleep Changes; Physical Activity
Emotions/Worries During COVID-19
Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19
Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19
Substance Use
Coronavirus Impact Scale
Contact 1 , Contact 2
Main Topic(s)
Coronavirus Impact Scale
Overall Impact
Environmental influences on Child Health Outcomes (ECHO)
ECHO Contact
Main Topic(s)
COVID-19 Questionnaire - Adult Primary Version
Expand to view modules
COVID-19 Infection - Adult Primary Version
Symptoms; Diagnosis
Impacts of the COVID-19 Outbreak - Adult Primary Version
Social Impact; Employment; Mental Health
Impacts of the COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version
Current Pregnancy; Health Care
Impacts of the COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version
Past Pregnancy; Health Care
COVID-19 Questionnaire - Adult Alternate Version
Expand to view modules
COVID-19 Infection - Adult Alternate Version
Symptoms; Diagnosis
Impacts of the COVID-19 Outbreak - Adult Alternate Version
Social Impact; Employment; Mental Health
Impacts of the COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version
Current Pregnancy; Health Care
Impacts of the COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version
Past Pregnancy; Health Care
COVID-19 Questionnaire - Child Parent-Report Version
Expand to view modules
COVID-19 Infection - Child Parent-Report Version
Symptoms; Diagnosis
Impacts of the COVID-19 Outbreak on the Child Enrolled in ECHO
Social Impact; Past Pregnancy
COVID-19 Questionnaire - Child Self-Report Primary Version
Expand to view modules
COVID-19 Infection - Child Self-Report - Primary Version
Symptoms; Diagnosis
Impacts of the COVID-19 Outbreak - Child Self-Report - Primary Version
Social Impact; Past Pregnancy; Mental Health
COVID-19 Questionnaire - Child Self-Report Alternate Version
Expand to view modules
COVID-19 Infection - Child Self-Report - Alternate Version
Symptoms; Diagnosis
Impacts of the COVID-19 Outbreak - Child Self-Report - Alternate Version
Social Impact; Past Pregnancy
Global Consortium for Chemosensory Research (GCCR)
GCCR Contact
Main Topic(s)
Global Consortium for Chemosensory Research COVID-19 Survey
Expand to view modules
COVID-19 Diagnosis as it May Relate to Sense of Smell
Diagnosis; Sense of Smell
COVID-19 Diagnosis as it May Relate to Sense of Taste
Diagnosis; Sense of Taste
COVID-19 Recovery on the Experience of Smell and Taste
Recovery; Sense of Smell; Sense of Taste
HERO
Contact
Main Topic(s)
HERO Protective Equipment Survey
Personal Protective Equipment
HERO Daily Experience Index
Mental Health
Johns Hopkins University (JHU)
JHU Contact
Main Topic(s)
COVID-19 Community Response Survey
Expand to view modules
Knowledge and attitudes toward COVID19
Knowledge; Perceived Threat
COVID19 symptoms and testing experience
Symptoms; Diagnosis
COVID19 and Co-morbidities and care engagement
Health Care; Chronic Health Conditions
COVID19 and Mental health impacts
Mental Health
COVID19 impact and pandemic stress
Overall Impact
COVID19 and Social distancing
Social Distancing; Social Impact
COVID19 and Violence and trauma
Violence; Fear of Violence
COVID19 and Substance use
Substance Use
COVID19 and Sexual behavior
Sexual Behavior
Kennedy Krieger Institute
Contact
Main Topic(s)
KSADS-COMP PTSD Screen items
Screen for K-SADS-COMP
KSADS-COMP PTSD Screen items - Spanish
Screen for K-SADS-COMP
Massachusetts General Hospital
Contact
Main Topic(s)
COVID-19 Symptom Tracker Mobile App (CSTM)
Expand to view modules
COVID-19 Related Exposure And Use of PPE
Exposure
COVID-19 Symptoms
Symptoms; Diagnosis; Treatment
COVID-19 Use of Personal Protective Equipment (PPE)
Personal Protective Equipment
Montreal Behavioural Medicine Centre (MBMC)
MBMC Contact 1 , MBMC Contact 2
Main Topic(s)
COVID-19 International Survey (CIS)
Expand to view modules
Social Distancing and Hygiene - [COVID Specific]
Social Distancing; Hygiene
Concerns of Infection - [COVID Specific]
Perceived Threat
Sources of information about COVID-19
Sources of information about COVID-19
Multi-Ethnic Study of Atherosclerosis (MESA)
MESA Contact
Main Topic(s)
MESA COVID-19 Questionnaire
Expand to view modules
COVID-19 Diagnosis, Symptoms and Recovery
Diagnosis; Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines
Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene
Social Distancing; Hygiene
MESA COVID-19 Questionnaire (Annotated)
Full Annotated Questionnaire
MESA COVID-19 Questionnaire Manual of Operations
Manual of Operations
Multicenter Aids Cohort Study Women's Interagency Hiv Study (MACS-WIHS)
MACS-WIHS Contact
Main Topic(s)
MACS-WIHS Questionnaire
Expand to view modules
COVID-19 Symptoms, Testing, and Preventive Behaviors
Symptoms; Status; Health Care
COVID-19 Impact on Daily Life
Daily Life; Health Care
COVID-19 Psychosocial Impact
Mental Health
MACS-WIHS Questionnaire (Spanish)
Expand to view modules
COVID-19 Symptoms, Testing, and Preventive Behaviors (Spanish)
Symptoms; Status; Health Care
COVID-19 Impact on Daily Life (Spanish)
Daily Life; Health Care
COVID-19 Psychosocial Impact (Spanish)
Mental Health
National Institutes of Health (NIH)
NIH Contact
Main Topic(s)
All of Us Covid 19 Participant Experience Survey (COPE)
Expand to view modules
COVID-19 Social Distancing Experiences
Social Distancing; Hygiene
COVID-19 Related Symptoms
Symptoms
COVID-19 Related Testing
Diagnosis
COVID-19 Related Testing
Treatment
COVID-19 Related Impact
Overall Impact; Mental Health
Nottingham Trent University (NTU)
NTU Contact
Main Topic(s)
Fear of COVID-19 Scale
Mental Health
Office on Violence Against Women (OVW)
OVW Contact 1 , OVW Contact 2
Main Topic(s)
Cyber-Abuse Research Initiative (CARI) COVID19 Impact on Domestic Abuse
Expand to view modules
Domestic Violence Victimization and Perpetration During COVID-19
Home Life; Conflict; Cyber-harassment
Help-Seeking and Fear of Violence During COVID-19
Help-seeking; Fear of Violence
The Osteoporotic Fractures in Men (MROS) Study
Study of Muscle, Mobility, and Aging (SOMMA) (MROS/SOMMA)
MROS/SOMMA Contact
Main Topic(s)
MROS/SOMMA COVID-19 Social Impact Questionnaire
Expand to view modules
Symptoms and Diagnosis
Symptoms; Diagnosis
MROS/SOMMA Social Distancing and Hygiene
Social Distancing; Hygiene
Pandemic Stress Index (PSI)
PSI Contact
Main Topic(s)
COVID-19 Pandemic Stress Index (PSI)
Overall Impact
Pennington Biomedical Research Center (PBRC)
PBRC Contact
Main Topic(s)
Pennington Biomedical COVID-19 Survey
Expand to view modules
Regional Social Distancing COVID-19 Mandates
Social Distancing
Impacts of COVID-19 on Food Security
Food Security
Worry about COVID-19 Infection
Diagnosis; Mental Health
Impacts of COVID-19 on Employment
Economic Insecurity
Impacts of COVID-19 on Changes to Physical Activity and Sedentary Behaviors
Physical Activity
Impacts of COVID-19 on Dietary Changes
Dietary Intake
Impacts of COVID-19 on Sleep Changes
Sleep Changes
Impacts of COVID-19 on Well-Being
Mental Health
Social Psychological Measurements of COVID-19 …
Contact
Main Topic(s)
Social Psychological Survey of COVID-19: Coronavirus Perceived Threat, Government
Response, Impacts, and Experiences Questionnaires
Expand to view modules
Perceived Coronavirus Threat
Perceived Threat
Federal Governmental Response to Coronavirus
Government Response
State Governmental Response to Coronavirus
Government Response
City Governmental Response to Coronavirus
Government Response
Coronavirus Impacts
Resources; Mental Health
Coronavirus Experiences
Symptoms; Diagnosis; Social Distancing
Perceived Coronavirus Threat (Short Form)
Perceived Threat
Governmental Response to Coronavirus (Short Form)
Government Response
Coronavirus Impacts (Short Form)
Resources; Mental Health
Coronavirus Experiences (Short Form)
Symptoms; Diagnosis; Social Distancing
Stanford University
Contact
Main Topic(s)
Psychological Stress During COVID-19 Crisis
Expand to view modules
COVID-19 related Lifestyle Change
Daily Impact
US Census
Contact
Main Topic(s)
COVID-19 Household Pulse Questionnaire
Expand to view modules
COVID-19 and Employment Stability
Employment
COVID-19 and Food Security
Food Security
COVID-19 and Health
Mental Health; Health Care
COVID-19 and Housing Security
Housing Security
COVID-19 and Education Disruption
K-12 Education Impact
University of Connecticut School of Medicine
University of Massachusetts
Contact
Main Topic(s)
Epidemic - Pandemic Impacts Inventory (EPII)
Expand to view modules
Impact of COVID-19 on Work and Employment
Employment
Impact of COVID-19 on Education and Training
Education; Training
Impact of COVID-19 on Home Life
Home Life; Conflict
Impact of COVID-19 on Social Activities
Social Impact
Impact of COVID-19 on Economic
Economic Insecurity
Impact of COVID-19 on Emotional Health and Well-Being
Mental Health; Health Care
Impact of COVID-19 on Physical Health Problems
Health Care; Physical Activity
Impact of COVID-19 on Physical Distancing and Quarantine
Social Distancing; Hygiene
Impact of COVID-19 on Infection History
Symptoms; Diagnosis
Impact of COVID-19 on Positive Change
Positive Impacts
University of Miami (UMiami)
UMiami Contact
Main Topic(s)
COVID-19 Household Environment Scale (CHES)
Expand to view modules
COVID-19 Social Distancing and Symptoms
Demographics; Social Impact
COVID-19 on Family Conflict
Conflict; Daily Life
COVID-19 on Family Togetherness
Household Togetherness; Daily Life
Escala de Ambiente Familiar Durante la Pandemia COVID-19
Expand to view modules
COVID-19 Social Distancing and Symptoms (Spanish)
Demographics; Social Impact
COVID-19 on Family Conflict (Spanish)
Conflict; Daily Life
COVID-19 on Family Togetherness (Spanish)
Household Togetherness; Daily Life
University of Miami School of Nursing and Health Studies (UMiami)
UMiami Contact
Main Topic(s)
COVID-19 - Cannabis Health Questionnaire (CCHQ)
Expand to view modules
COVID-19 & Comorbidities
Chronic Health Conditions
COVID-19 & Cannabis Use
Substance Use
Economic Impact of COVID-19
Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing
Symptoms; Diagnosis
Worry about COVID-19 Infection
Perceived Threat
Coping Strategies COVID-19
Mental Health
COVID-19 - Cannabis Health Questionnaire (CCHQ) (Spanish)
Expand to view modules
COVID-19 & Comorbidities (Spanish)
Chronic Health Conditions
COVID-19 & Cannabis Use (Spanish)
Substance Use
Economic Impact of COVID-19 (Spanish)
Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing (Spanish)
Symptoms; Diagnosis
Worry about COVID-19 Infection (Spanish)
Perceived Threat
Coping Strategies COVID-19 (Spanish)
Mental Health
University of Miami: Department of Psychology (UMiami)
UMiami Contact
Main Topic(s)
Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS)
Expand to view modules
COVID-19 Specific Distress (Emotional and Physical Reactions)
Mental Health
COVID-19 Health Care Disruptions and Concerns (Concerns About Medical Care)
Health Care
COVID-19 Disruption to Daily Activities and Social Interactions
Daily Life
COVID-19 Financial Hardship
Economic Insecurity
COVID-19 Perceived Benefits
Positive Impacts
COVID-19 Functional Social Support
Social Impact
COVID-19 Perceived Stress Management (Ability to Manage Stress)
Stress
University of Pittsburgh Medical Center (UMPC)
UMPC Contact
Main Topic(s)
COVID-19 Adolescent Symptom & Psychological Experience
Questionnaire (CASPE)- Self-Report
Expand to view modules
General experience related to COVID and social distancing
Overall Impact
Emotional experience related to COVID and social distancing
Mental Health
Cognitive experience related to COVID and social distancing
Mental Health
Social experience related to COVID and social distancing
Social Impact
COVID-19 Adolescent Symptom & Psychological Experience
Questionnaire (CASPE)- Parent
Expand to view modules
General experience related to COVID and social distancing
Overall Impact
Emotional experience related to COVID and social distancing
Mental Health
Cognitive experience related to COVID and social distancing
Mental Health
Social experience related to COVID and social distancing
Social Impact
University of Texas Rio Grande Valley (UTRGV)
UTRGV Contact 1 , UTRGV Contact 2
Main Topic(s)
COVID19 Impact on Health and Wellbeing Survey (CIHWS)
Expand to view modules
COVID19 related Depression
Mental Health
COVID19 related Anxiety/Stress
Mental Health; Stress
COVID19 related Health literacy
Health Literacy
COVID19 related Trusted sources of information
Sources of information about COVID-19
COVID19 related Compliance
Social Distancing
COVID19 related Financial stress
Economic Insecurity
COVID19 related Physical activity
Physical Activity
COVID19 Impact on Health and Wellbeing Survey (CIHWS) (Spanish)
Expand to view modules
COVID19 related Depression (Spanish)
Mental Health
COVID19 related Anxiety/Stress (Spanish)
Mental Health; Stress
COVID19 related Health literacy (Spanish)
Health Literacy
COVID19 related Trusted sources of information (Spanish)
Sources of information about COVID-19
COVID19 related Compliance (Spanish)
Social Distancing
COVID19 related Financial stress (Spanish)
Economic Insecurity
COVID19 related Physical activity (Spanish)
Physical Activity
World Health Organization (WHO)
WHO Contact
Main Topic(s)
Novel Coronavirus (nCOV) Acute Respiratory Infection Clinical Characterisation Data Tool
Expand to view modules
Hospital Admission Case Record Form
Symptoms; Diagnosis; Travel History
Daily Case Record Form
Symptoms; Diagnosis
Treatment and Outcomes Case Record Form
Treatment; Outcomes
Global COVID-19 Clincal Platform Novel Coronavirus (COVID-19) - Rapid Version
Expand to view modules
Hospital Admission Case Record Form (Rapid Version)
Symptoms; Diagnosis; Travel History
Daily Case Record Form (Rapid Version)
Symptoms; Diagnosis
Treatment and Outcomes Case Record Form (Rapid Version)
Treatment; Outcomes

Last Updated May 14, 2020