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Protocol - Emotional Distress

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Description

This set of questions from the PROMIS© Version 1.0 item banks measure self-reported emotional anxiety, depression, and sleep disturbance. Each question is measured on a five-point scale asking the respondent to reflect on the past 7 days.

Specific Instructions

The PhenX Working Group recommends this PROMIS® protocol. For additional information regarding PROMIS® instruments (including scoring, validity, and interpretation) please visit: www.healthmeasures.net.

For specific information about this instrument, please visit:

Availability

Available

Protocol

Anxiety

Please respond to each item by marking one box.

In the past 7 days...

1. I felt fearful

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

2. I felt anxious

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

3. I felt worried

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

4. I found it hard to focus on anything other than my anxiety

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

5. I felt nervous

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

6. I felt uneasy

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

7. I felt tense

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

Depression

Please respond to each item by marking one box.

In the past 7 days....

8. I felt worthless

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

9. I felt that I had nothing to look forward to

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

10. I felt helpless

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

11. I felt sad

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

12. I felt like a failure

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

13. I felt depressed

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

14. I felt unhappy

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

15. I felt hopeless

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

Sleep Disturbance

Please respond to each item by marking one box.

In the past 7 days...

16. My sleep was restless

1[ ]Not at all

2[ ]A little bit

3[ ]Somewhat

4[ ]Quite a bit

5[ ]Very much

17. I was satisfied with my sleep

5[ ]Not at all

4[ ]A little bit

3[ ]Somewhat

2[ ]Quite a bit

1[ ]Very much

18. My sleep was refreshing

5[ ]Not at all

4[ ]A little bit

3[ ]Somewhat

2[ ]Quite a bit

1[ ]Very much

19. I had difficulty falling asleep

1[ ]Not at all

2[ ]A little bit

3[ ]Somewhat

4[ ]Quite a bit

5[ ]Very much

In the past 7 days…

20. I had trouble staying asleep

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

21. I had trouble sleeping

1[ ]Never

2[ ]Rarely

3[ ]Sometimes

4[ ]Often

5[ ]Always

22. I got enough sleep

5[ ]Never

4[ ]Rarely

3[ ]Sometimes

2[ ]Often

1[ ]Always

In the past 7 days…

23. My sleep quality was

5[ ]Very poor

4[ ]Poor

3[ ]Fair

2[ ]Good

1[ ]Very good

© 2008 PROMIS Health Organization and PROMIS Cooperative Group

Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Adults aged 18 years and older

Selection Rationale

The PROMIS© protocols have been tested and have been found to be reliable and comparable to established measures of these same content areas. Additionally, they are quick and easy to administer, providing for a variety of user options.

Language

English, Other languages available at source

Standards
StandardNameIDSource
Logical Observation Identifiers Names and Codes (LOINC) Emotional distress proto 62963-4 LOINC
Human Phenotype Ontology Triggered by stress HP:0025226 HPO
caDSR Form PhenX PX190601 - Emotional Distress 6194792 caDSR Form
Derived Variables

None

Process and Review

Not applicable.

Protocol Name from Source

Patient-Reported Outcomes Measurement Information System® Item Bank, v.1.0

Source

U.S. Department of Health and Human Services. National Institutes of Health (NIH). PROMIS© Item Bank v.1.0—Emotional Distress–Anxiety Short Form 1. PROMIS© Item Bank v. 1.0—Emotional Distress–Depression Short Form 1. PROMIS© Item Bank v. 1.0—Sleep Disturbance.

General References

None

Protocol ID

190601

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX190601_Hard_To_Focus
PX190601040000 In the past 7 days... I found it hard to more
focus on anything other than my anxiety show less
N/A
PX190601_I_Felt_Anxious
PX190601020000 In the past 7 days... I felt anxious N/A
PX190601_I_Felt_Depressed
PX190601130000 In the past 7 days... I felt depressed Variable Mapping
PX190601_I_Felt_Fearful
PX190601010000 In the past 7 days... I felt fearful Variable Mapping
PX190601_I_Felt_Helpless
PX190601100000 In the past 7 days... I felt helpless N/A
PX190601_I_Felt_Hopeless
PX190601150000 In the past 7 days... I felt hopeless N/A
PX190601_I_Felt_Like_A_Failure
PX190601120000 In the past 7 days... I felt like a failure Variable Mapping
PX190601_I_Felt_Nervous
PX190601050000 In the past 7 days... I felt nervous Variable Mapping
PX190601_I_Felt_Sad
PX190601110000 In the past 7 days... I felt sad Variable Mapping
PX190601_I_Felt_Tense
PX190601070000 In the past 7 days... I felt tense Variable Mapping
PX190601_I_Felt_Uneasy
PX190601060000 In the past 7 days... I felt uneasy Variable Mapping
PX190601_I_Felt_Unhappy
PX190601140000 In the past 7 days... I felt unhappy N/A
PX190601_I_Felt_Worried
PX190601030000 In the past 7 days... I felt worried N/A
PX190601_I_Felt_Worthless
PX190601080000 In the past 7 days... I felt worthless N/A
PX190601_I_Got_Enough_Sleep
PX190601220000 In the past 7 days... I got enough sleep N/A
PX190601_I_Had_Difficulty_Falling_Asleep
PX190601190000 In the past 7 days... I had difficulty more
falling asleep show less
N/A
PX190601_I_Had_Trouble_Sleeping
PX190601210000 In the past 7 days... I had trouble sleeping N/A
PX190601_I_Had_Trouble_Staying_Asleep
PX190601200000 In the past 7 days... I had trouble staying asleep N/A
PX190601_My_Sleep_Was_Refreshing
PX190601180000 In the past 7 days... My sleep was refreshing N/A
PX190601_My_Sleep_Was_Restless
PX190601160000 In the past 7 days... My sleep was restless Variable Mapping
PX190601_Nothing_To_Look_Forward_To
PX190601090000 In the past 7 days... I felt that I had more
nothing to look forward to show less
N/A
PX190601_Satisfied_With_My_Sleep
PX190601170000 In the past 7 days... I was satisfied with more
my sleep show less
N/A
PX190601_Sleep_Quality
PX190601230000 In the past 7 days... My sleep quality was N/A
Gastrointestinal
Measure Name

Emotional Distress

Release Date

December 13, 2010

Definition

This is a measure to assess emotional distress in the past 7 days.

Purpose

This measure can be used to assess a respondent's level of emotional distress, which can have a direct impact on gastrointestinal disorders and other physical problems.

Keywords

Emotional distress, anxiety, depression, sleep disturbance, Gastrointestinal, PROMIS

Measure Protocols
Protocol ID Protocol Name
190601 Emotional Distress
Publications

Glassberg, J. A., et al. (2020) Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry. Orphanet J Rare Dis. 2020 July; 15(1): 178. doi: 10.1186/s13023-020-01457-x