Protocol - Self-efficacy in Sickle Cell Disease
- Physical Activity Self-Efficacy - Adolescent
- Physical Activity Self-Efficacy - Adult
- Self-efficacy in Sickle Cell Disease
- Self-esteem
Description
The Sickle Cell Disease Self-Efficacy Scale is a nine-item self-administered questionnaire that measures disease-specific perceptions of the ability to manage day-to-day issues resulting from sickle cell disease (SCD). Items are scores according to a five-point scale ranging from "1 - Not sure at all" to "5 - Very sure." Responses from individual items are summed to give an overall score with higher scores indicating greater self-efficacy.
Specific Instructions
None
Availability
Protocol
Sickle Cell Disease Self-Efficacy Scale
The following questions ask about how sure you are in dealing day-to-day with sickle cell disease. There are no right or wrong answers; we just want to know what you think. So for each question, tell us how sure you are by circling the response that best tells how you feel. Please answer every question.
1. How sure are you that you can do something to cut down on most of the pain?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
2. How sure are you that you can keep doing most of the things you do day-to-day?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
3. How sure are you that you can keep sickle cell disease pain from interfering with your sleep?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
4. How sure are you that you can reduce your sickle cell disease pain by using methods other than taking medications?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
5. How sure are you that you can control how often or when you get tired?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
6. How sure are you that you can do something to help yourself feel better if you are feeling sad or blue?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
7. As compared with other people with sickle cell disease, how sure are you that you can manage your life from day-to-day?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
8. How sure are you that you can manage your sickle cell disease symptoms so that you can do the things you enjoy doing?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
9. How sure are you that you can deal with the frustration of having sickle cell disease?
1[ ]Not Sure at All
2[ ]Not Sure
3[ ]Neither
4[ ]Sure
5[ ]Very Sure
Scoring:
Responses from individual items are summed to give an overall score, with higher scores indicating greater self-efficacy.
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult
Participants
Adults, ages 18 and older
Selection Rationale
The Sickle Cell Disease Self-Efficacy Scale is a brief, reliable, and valid self-administered questionnaire that captures the participant’s ability to engage successfully in day-to-day activities despite having sickle cell disease (SCD).
Language
English
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Human Phenotype Ontology | Sickle Cell Anemia | ORPHA:232 | HPO |
| Human Phenotype Ontology | Anemia | OMIM:603903 | HPO |
| caDSR Form | PhenX PX820401 - Selfefficacy In Sickle Cell Disease | 6253509 | caDSR Form |
Derived Variables
None
Process and Review
Not applicable.
Protocol Name from Source
The Sickle Cell Disease Self-Efficacy Scale (SCSES)
Source
Edwards, R., Telfair, J., Cecil, H., & Lenoci, J. (2000). Reliability and validity of a self-efficacy instrument specific to sickle cell disease. Behaviour Research and Therapy 38, 951-963.
General References
Adegbola, M. (2011). Spirituality, self-efficacy, and quality of life among adults with sickle cell disease. Southern Online Journal of Nursing Research 11(1), 5.
Barakat, L. P., Schwartz, L. A., Salamon, K. S., & Radcliffe, J. (2010). A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease. Journal of Pediatric Hematology/Oncology 32(7), 540-547.
Edwards, R., Telfair, J., Cecil, H., & Lenoci, J. (2001). Self-efficacy as a predictor of adult adjustment to sickle cell disease: One-year outcomes. Psychosomatic Medicine 63(5), 850-858.
Protocol ID
820401
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX820401_SelfEfficacySCD_Life_Management_DayToDayy | ||||
| PX820401070000 | As compared with other people with sickle more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_Control_Frequency_GetTired | ||||
| PX820401050000 | How sure are you that you can control how more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_DealFrustration_HavingDisease | ||||
| PX820401090000 | How sure are you that you can deal with the more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_Doing_DayToDay | ||||
| PX820401020000 | How sure are you that you can keep doing more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_DoSomething_FeelBetter | ||||
| PX820401060000 | How sure are you that you can do something more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_ManageDiseaseSymptoms | ||||
| PX820401080000 | How sure are you that you can manage your more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_PreventPain_Interfering_Sleep | ||||
| PX820401030000 | How sure are you that you can keep sickle more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_ReducePain_NonMedication | ||||
| PX820401040000 | How sure are you that you can reduce your more | N/A | ||
| PX820401_SelfEfficacySCD_Sure_Something_Reduce_Pain | ||||
| PX820401010000 | How sure are you that you can do something more | N/A | ||
Measure Name
Self-efficacy in Sickle Cell Disease
Release Date
July 30, 2015
Definition
A questionnaire to measure a participant’s ability to manage sickle cell disease symptoms on a day-to-day basis.
Purpose
Self-efficacy, or one’s perceptions that they can exercise control over their behaviors and environment, may play an important role in determining the ability to adjust to chronic conditions such as sickle cell disease (SCD).
Keywords
sickle cell disease, SCD, Sickle Cell Disease Self-Efficacy Scale, self-efficacy, coping, "Neurology, quality of life, and Health Services"
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 820401 | Self-efficacy in Sickle Cell Disease |
Publications
There are no publications listed for this protocol.