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Protocol - History of Stroke - Ischemic Infarction and Hemorrhage

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Description

The Stroke Symptoms Form from the Jackson Heart Study (JHS) is an interviewer-administered questionnaire that captures the history of stroke(s) and associated symptoms such as slurred speech, double vision, loss of vision, and paralysis.

Specific Instructions

None

Availability

Available

Protocol

A. STROKE HISTORY

1. Have you ever been told by a physician that you had a stroke?

[ ] Yes

[ ] No [Go to Item 3]

2. When did the first stroke occur?

_ _ / _ _ _ _

m m y y

B. SUDDEN LOSS OR CHANGE OF SPEECH

3. Have you ever had any sudden loss or changes in speech lasting 24 hours or longer?

[ ] Yes

[ ] No [Go to Item 7]

[ ] Dont know [Go to Item 7]

4. Did the episode come on suddenly?

[ ] Yes

[ ] No

5. Do any of the following describe your change in speech?

[READ ALL CHOICES]

5a. Slurred speech like you were drunk?

[ ] Yes

[ ] No

[ ] Dont know

5b. Could talk but the wrong words came out?

[ ] Yes

[ ] No

[ ] Dont know

5c. Knew what you wanted to say, but the words would not come out?

[ ] Yes

[ ] No

[ ] Dont know

5d. Could not think of the right words?

[ ] Yes

[ ] No

[ ] Dont know

5e. [IF MORE THAN ONE OF ITEMS 5a-5d INDICATED, ASK "WHICH OF THESE MOST CLOSELY DESCRIBES THE PROBLEM?"]

[ ] Slurred speech

[ ] Wrong words came out

[ ] Words would not come out

[ ] Could not think of the right words

6. While you were having your episode of change in speech, did any of the following occur? [INCLUDE ALL THAT APPLY]

6a. Numbness or tingling?

[ ] Yes

[ ] No [Go to Item 6c]

6b. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

6c. Paralysis or weakness?

[ ] Yes

[ ] No [Go to Item 6e]

6d. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

6e. Lightheadedness, dizziness, or loss of balance?

[ ] Yes

[ ] No

6f. Blackouts or fainting?

[ ] Yes

[ ] No

6g. Seizures or convulsions?

[ ] Yes

[ ] No

6h. Headache?

[ ] Yes

[ ] No

6i. Visual disturbances?

[ ] Yes

[ ] No [Go to Item 7]

6j. Did you have:

[READ ALL CHOICES UNTIL A POSITIVE RESPONSE IS GIVEN]

[ ] Double vision

[ ] Vision loss in right eye only

[ ] Vision loss in left eye only

[ ] Total loss of vision in both eyes

[ ] Trouble in both eyes seeing to the right

[ ] Trouble in both eyes seeing to the left

[ ] Trouble in both eyes seeing to both sides or straight ahead

C. SUDDEN LOSS OF VISION

7. Have you ever had any sudden loss of vision, or blurring, lasting 24 hours or longer?

[ ] Yes

[ ] No [Go to Item 11]

[ ] Dont know [Go to Item 11]

8. Did the episode come on suddenly?

[ ] Yes

[ ] No

9. During the episode, which of the following parts of your vision were affected?

[READ ALL CHOICES]

[ ] Only the right eye [Go to Item 10a]

[ ] Only the left eye [Go to Item 10a]

[ ] Both eyes

9a. Did you have:

[READ ALL CHOICES UNTIL A POSITIVE RESPONSE IS GIVEN]

[ ] Trouble seeing to the right, but not to left

[ ] Trouble seeing to the left, but not to right

[ ] Trouble seeing both sides or straight ahead

10. While you were having your loss of vision, did any of the following occur? [INCLUDE ALL THAT APPLY]

10a. Speech disturbance?

[ ] Yes

[ ] No

10b. Numbness or tingling?

[ ] Yes

[ ] No [Go to Item 10d]

10c. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

10d. Paralysis or weakness?

[ ] Yes

[ ] No [Go to Item 10f]

10e. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

10f. Lightheadedness, dizziness, or loss of balance?

[ ] Yes

[ ] No

10g. Blackouts or fainting?

[ ] Yes

[ ] No

10h. Seizures or convulsions?

[ ] Yes

[ ] No

10i. Headache?

[ ] Yes

[ ] No

10j. Flashing lights?

[ ] Yes

[ ] No

D. DOUBLE VISION

11. Have you ever had a sudden spell of double vision, which lasted 24 hours or longer?

[ ] Yes

[ ] No [Go to Item 14]

[ ] Dont know [Go to Item 14]

11a. If you closed one eye, did the double vision go away?

[ ] Yes

[ ] No [Go to Item 14]

[ ] Dont know

12. Did the episode come on suddenly?

[ ] Yes

[ ] No

13. While you were having your double vision did any of the following occur? [INCLUDE ALL THAT APPLY]

13a. Speech disturbance?

[ ] Yes

[ ] No

13b. Numbness or tingling?

[ ] Yes

[ ] No [Go to Item 13d]

13c. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

13d. Paralysis or weakness?

[ ] Yes

[ ] No [Go to Item 13f]

13e. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

13f. Lightheadedness, dizziness, or loss of balance?

[ ] Yes

[ ] No

13g. Blackouts or fainting?

[ ] Yes

[ ] No

13h. Seizures or convulsions?

[ ] Yes

[ ] No

13i. Headache?

[ ] Yes

[ ] No

E. SUDDEN NUMBNESS OR TINGLING

14. Have you ever had sudden numbness, tingling, or loss of feeling on one side of your body, including your face, arm, or leg which lasted 24 hours or longer?

[ ] Yes

[ ] No [Go to Item 20]

[ ] Dont know [Go to Item 20]

15. Did the feeling of numbness or tingling occur only when you kept your arms or legs in a certain position?

[ ] Yes [Go to Item 20]

[ ] No

[ ] Dont know

16. Did the episode come on suddenly?

[ ] Yes

[ ] No

17. During the episode of sudden numbness or tingling, which part or parts of your body were affected?

[READ ALL CHOICES]

17a. Left arm or hand?

[ ] Yes

[ ] No

[ ] Dont know

17b. Left leg or foot?

[ ] Yes

[ ] No

[ ] Dont know

17c. Left side of face?

[ ] Yes

[ ] No

[ ] Dont know

17d. Right arm or hand?

[ ] Yes

[ ] No

[ ] Dont know

17e. Right leg or foot?

[ ] Yes

[ ] No

[ ] Dont know

17f. Right side of face?

[ ] Yes

[ ] No

[ ] Dont know

17g. Other?

[ ] Yes

[ ] No

[ ] Dont know

18. During this episode, did the abnormal sensation start in one part of your body and spread to another, or did it stay in the same place?

[ ] Started in one part and spread to another

[ ] Stayed in one part

[ ] Dont know

19. While you were having your episode of numbness, tingling or loss of sensation, did any of the following occur?

[INCLUDE ALL THAT APPLY]

19a. Speech disturbance?

[ ] Yes

[ ] No

19b. Paralysis or weakness?

[ ] Yes

[ ] No [Go to Item 19d]

19c. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

19d. Lightheadedness, dizziness, or loss of balance?

[ ] Yes

[ ] No

19e. Blackouts or fainting?

[ ] Yes

[ ] No

19f. Seizures or convulsions?

[ ] Yes

[ ] No

19g. Headache?

[ ] Yes

[ ] No

19h. Pain in the numb or tingling arm, leg or face?

[ ] Yes

[ ] No

19i. Visual disturbances?

[ ] Yes

[ ] No [Go to Item 20]

19j. Did you have:

[READ ALL CHOICES UNTIL A POSITIVE RESPONSE IS GIVEN]

[ ] Double vision

[ ] Vision loss in right eye only

[ ] Vision loss in left eye only

[ ] Total loss of vision in both eyes

[ ] Trouble in both eyes seeing to the right

[ ] Trouble in both eyes seeing to the left

[ ] Trouble in both eyes seeing to both sides or straight ahead

F. SUDDEN PARALYSIS OR WEAKNESS

20. Have you ever had any sudden episode of paralysis or weakness on one side of your body, including your face, arm, or leg which lasted at least 24 hours?

[ ] Yes

[ ] No [Go to Item 25]

[ ] Dont know [Go to Item 25]

21. Did the episode come on suddenly?

[ ] Yes

[ ] No

22. During this episode, which part or parts of your body were affected? [READ ALL CHOICES]

22a. Left arm or hand?

[ ] Yes

[ ] No

[ ] Dont know

22b. Left leg or foot?

[ ] Yes

[ ] No

[ ] Dont know

22c. Left side of face?

[ ] Yes

[ ] No

[ ] Dont know

22d. Right arm or hand?

[ ] Yes

[ ] No

[ ] Dont know

22e. Right leg or foot?

[ ] Yes

[ ] No

[ ] Dont know

22f. Right side of face?

[ ] Yes

[ ] No

[ ] Dont know

22g. Other?

[ ] Yes

[ ] No

[ ] Dont know

23. During this episode, did the paralysis or weakness start in one part of your body and spread to another, or did it stay in the same place?

[ ] Started in one part and spread to another

[ ] Stayed in one part

[ ] Dont know

24. While you were having your episode of paralysis or weakness, did any of the following occur?

[INCLUDE ALL THAT APPLY]

24a. Speech disturbances?

[ ] Yes

[ ] No

24b. Numbness or tingling?

[ ] Yes

[ ] No [Go to Item 24d]

24c. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

24d. Lightheadedness, dizziness, or loss of balance?

[ ] Yes

[ ] No

24e. Blackouts or fainting?

[ ] Yes

[ ] No

24f. Seizures or convulsions?

[ ] Yes

[ ] No

24g. Headache?

[ ] Yes

[ ] No

24h. Pain in the weak arm, leg or face?

[ ] Yes

[ ] No

24i. Visual disturbances?

[ ] Yes

[ ] No [Go to Item 25]

24j. Did you have:

[READ ALL CHOICES UNTIL A POSITIVE RESPONSE IS GIVEN]

[ ] Double vision

[ ] Vision loss in right eye only

[ ] Vision loss in left eye only

[ ] Total loss of vision in both eyes

[ ] Trouble in both eyes seeing to the right

[ ] Trouble in both eyes seeing to the left

[ ] Trouble in both eyes seeing to both sides or straight ahead

G. SUDDEN SPELLS OF DIZZINESS OR LOSS OF BALANCE

25. Have you had any sudden spells of dizziness, loss of balance, or sensation of spinning which lasted 24 hours or longer?

[ ] Yes

[ ] No [Go to Item 29]

[ ] Dont know [Go to Item 29]

26. Did the dizziness, loss of balance or spinning sensation occur only when changing the position of your head or body?

[ ] Yes [Go to Item 29]

[ ] No

[ ] Dont know

27. While you were having your episode of dizziness, loss of balance or spinning sensation, did any of the following occur? [INCLUDE ALL THAT APPLY]

27a. Speech disturbances?

[ ] Yes

[ ] No

27b. Paralysis or weakness?

[ ] Yes

[ ] No [Go to Item 27d]

27c. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

27d. Numbness or tingling?

[ ] Yes

[ ] No [Go to Item 27f]

27e. Did you have difficulty on:

[READ ALL CHOICES]

[ ] The right side only

[ ] The left side only

[ ] Both sides

27f. Blackouts or fainting?

[ ] Yes

[ ] No

27g. Seizures or convulsions?

[ ] Yes

[ ] No

27h. Headache?

[ ] Yes

[ ] No

27i. Visual disturbances?

[ ] Yes

[ ] No [Go to Item 28]

27j.Did you have:

[READ ALL CHOICES UNTIL A POSITIVE RESPONSE IS GIVEN]

[ ] Double vision

[ ] Vision loss in right eye only

[ ] Vision loss in left eye only

[ ] Total loss of vision in both eyes

[ ] Trouble in both eyes seeing to the right

[ ] Trouble in both eyes seeing to the left

[ ] Trouble in both eyes seeing to both sides or straight ahead

28. Did the episode of dizziness, loss of balance, or spinning sensation come on suddenly?

[ ] Yes

[ ] No

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews. The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

Equipment Needs

Either a pencil-and-paper or computer-assisted instrument may be used. If a computer-assisted instrument is used, computer software may be necessary to develop the instrument. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Lifestage

Adult, Senior

Participants

Adult, aged 18 or older

Selection Rationale

The Stroke Symptoms Form from the Jackson Heart Study (JHS) was compared to several other stroke scales and chosen based on its detailed questions, relatively short length, and its applicability to a general research population.

Language

Chinese, English

Standards
StandardNameIDSource
Logical Observation Identifiers Names and Codes (LOINC) Hx stroke proto 62761-2 LOINC
Human Phenotype Ontology Stroke HP:0001297 HPO
caDSR Form PhenX PX130301 - History Of Stroke Ischemic Infarction And Hemorrhage 6166927 caDSR Form
Derived Variables

None

Process and Review

Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from ERP 4 included the following:

  • No changes

Protocol Name from Source

Jackson Heart Study (JHS)

Source

U.S. Department of Health and Human Services; National Institutes of Health. National Heart, Lung, and Blood Institute; National Institute on Minority Health and Health Disparities; National Institute of Biomedical Imaging and Bioengineering. (2000). Jackson Heart Study (JHS). Stoke Symptoms Form. Version A.

General References

Aminoff, M. J., Greenberg, D. A., & Simon R. P. (2005). Clinical neurology (6th ed.). New York: Lange/McGraw-Hill Medical.

Wolf, P. A., D’Agostino, R. B., Belanger, A. J., & Kannel, W. B. (1991). Probability of stroke: A risk profile from the Framingham Study. Stroke, 22(3), 312-318.

Protocol ID

130301

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX130301_Affected_Side_Complications_With_Numbness
PX130301190300 Did you have difficulty on: N/A
PX130301_Affected_Side_Numbness_Double_Vision
PX130301130300 Did you have difficulty on: Variable Mapping
PX130301_Affected_Side_Numbness_With_Dizziness
PX130301270500 Did you have difficulty on: Variable Mapping
PX130301_Affected_Side_Paralysis_Double_Vision
PX130301130500 Did you have difficulty on: Variable Mapping
PX130301_Affected_Side_Paralysis_With_Dizziness
PX130301270300 Did you have difficulty on: Variable Mapping
PX130301_Blackouts_Fainting_With_Double_Vision
PX130301130700 While you were having your double vision did more
any of the following occur? Blackouts or fainting? show less
Variable Mapping
PX130301_Blackouts_Fainting_With_Vision_Loss
PX130301100700 While you were having your loss of vision, more
did any of the following occur? Blackouts or fainting? show less
Variable Mapping
PX130301_Blackouts_Or_Fainting
PX130301060600 Blackouts or fainting? Variable Mapping
PX130301_Blackouts_Or_Fainting_With_Numbness
PX130301190500 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Blackouts or fainting? show less
Variable Mapping
PX130301_Blackouts_With_Dizziness
PX130301270600 While you were having your episode of more
dizziness, loss of balance or spinning sensation, did any of the following occur? Blackouts or fainting? show less
Variable Mapping
PX130301_Blackouts_With_Paralysis_Weakness
PX130301240500 While you were having your episode of more
paralysis or weakness, did any of the following occur? Blackouts or fainting? show less
Variable Mapping
PX130301_Complications_Side_Affected_Vision_Loss
PX130301100300 Did you have difficulty on: Variable Mapping
PX130301_Could_Not_Find_Right_Words
PX130301050400 Could not think of the right words? Variable Mapping
PX130301_Date_Stroke_Occurred_Month
PX130301020100 When did the first stroke occur? Variable Mapping
PX130301_Date_Stroke_Occurred_Year
PX130301020200 When did the first stroke occur? Variable Mapping
PX130301_Dizziness_Change_Position_Only
PX130301260000 Did the dizziness, loss of balance or more
spinning sensation occur only when changing the position of your head or body? show less
Variable Mapping
PX130301_Dizziness_Loss_Of_Balance
PX130301250000 Have you had any sudden spells of dizziness, more
loss of balance, or sensation of spinning which lasted 24 hours or longer? show less
Variable Mapping
PX130301_Dizziness_Occurred_Suddenly
PX130301280000 Did the episode of dizziness, loss of more
balance, or spinning sensation come on suddenly? show less
Variable Mapping
PX130301_Double_Vision_Occurred_Suddenly
PX130301120000 Did the episode come on suddenly? Variable Mapping
PX130301_Double_Vision_One_Eye
PX130301110100 If you closed one eye, did the double vision more
go away? show less
Variable Mapping
PX130301_Episode_Came_On_Suddenly
PX130301080000 Did the episode come on suddenly? N/A
PX130301_Episode_Occur_Suddenly
PX130301040000 Did the episode come on suddenly? Variable Mapping
PX130301_Flashing_Lights_With_Vision_Loss
PX130301101000 While you were having your loss of vision, more
did any of the following occur? Flashing lights? show less
Variable Mapping
PX130301_Headache
PX130301060800 Headache? Variable Mapping
PX130301_Headache_With_Dizziness
PX130301270800 While you were having your episode of more
dizziness, loss of balance or spinning sensation, did any of the following occur? Headache? show less
Variable Mapping
PX130301_Headache_With_Double_Vision
PX130301130900 While you were having your double vision did more
any of the following occur? Headache? show less
Variable Mapping
PX130301_Headache_With_Numbness
PX130301190700 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Headache? show less
Variable Mapping
PX130301_Headache_With_Paralysis_Weakness
PX130301240700 While you were having your episode of more
paralysis or weakness, did any of the following occur? Headache? show less
Variable Mapping
PX130301_Headache_With_Vision_Loss
PX130301100900 While you were having your loss of vision, more
did any of the following occur? Headache? show less
Variable Mapping
PX130301_Lightheadedness_Dizziness_Balance_Vision_Loss
PX130301100600 While you were having your loss of vision, more
did any of the following occur? Lightheadedness, dizziness, or loss of balance? show less
Variable Mapping
PX130301_Lightheadedness_Dizziness_Loss_Of_Balance
PX130301060500 Lightheadedness, dizziness, or loss of balance? Variable Mapping
PX130301_Lightheadedness_With_Double_Vision
PX130301130600 While you were having your double vision did more
any of the following occur? Lightheadedness, dizziness, or loss of balance? show less
Variable Mapping
PX130301_Lightheadedness_With_Numbness
PX130301190400 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Lightheadedness, dizziness, or loss of balance? show less
Variable Mapping
PX130301_Lightheadedness_With_Paralysis_Weakness
PX130301240400 While you were having your episode of more
paralysis or weakness, did any of the following occur? Lightheadedness, dizziness, or loss of balance? show less
Variable Mapping
PX130301_Most_Representative_Symptom
PX130301050500 [IF MORE THAN ONE OF ITEMS 5a-5d INDICATED, more
ASK WHICH OF THESE MOST CLOSELY DESCRIBES THE PROBLEM?] show less
N/A
PX130301_Numbness_Left_Arm_Or_Hand
PX130301170100 During the episode of sudden numbness or more
tingling, which part or parts of your body were affected? Left arm or hand? show less
Variable Mapping
PX130301_Numbness_Left_Leg_Or_Foot
PX130301170200 During the episode of sudden numbness or more
tingling, which part or parts of your body were affected? Left leg or foot? show less
Variable Mapping
PX130301_Numbness_Left_Side_Of_Face
PX130301170300 During the episode of sudden numbness or more
tingling, which part or parts of your body were affected? Left side of face? show less
Variable Mapping
PX130301_Numbness_Or_Tingling
PX130301060100 Numbness or tingling? Variable Mapping
PX130301_Numbness_Other
PX130301170700 During the episode of sudden numbness or more
tingling, which part or parts of your body were affected? Other? show less
Variable Mapping
PX130301_Numbness_Right_Arm_Or_Hand
PX130301170400 During the episode of sudden numbness or more
tingling, which part or parts of your body were affected? Right arm or hand? show less
Variable Mapping
PX130301_Numbness_Right_Leg_Or_Foot
PX130301170500 During the episode of sudden numbness or more
tingling, which part or parts of your body were affected? Right leg or foot? show less
Variable Mapping
PX130301_Numbness_Right_Side_Of_Face
PX130301170600 During the episode of sudden numbness or more
tingling, which part or parts of your body were affected? Right side of face? show less
Variable Mapping
PX130301_Numbness_Tingling_In_Certain_Position
PX130301150000 Did the feeling of numbness or tingling more
occur only when you kept your arms or legs in a certain position? show less
Variable Mapping
PX130301_Numbness_Tingling_Occur_Suddenly
PX130301160000 Did the episode come on suddenly? Variable Mapping
PX130301_Numbness_Tingling_With_Double_Vision
PX130301130200 While you were having your double vision did more
any of the following occur? Numbness or tingling? show less
Variable Mapping
PX130301_Numbness_Tingling_With_Vision_Loss
PX130301100200 While you were having your loss of vision, more
did any of the following occur? Numbness or tingling? show less
Variable Mapping
PX130301_Numbness_With_Dizziness
PX130301270400 While you were having your episode of more
dizziness, loss of balance or spinning sensation, did any of the following occur? Numbness or tingling? show less
Variable Mapping
PX130301_Numbness_With_Paralysis_Weakness
PX130301240200 While you were having your episode of more
paralysis or weakness, did any of the following occur? Numbness or tingling? show less
Variable Mapping
PX130301_Pain_With_Numbness
PX130301190800 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Pain in the numb or tingling arm, leg or face? show less
Variable Mapping
PX130301_Pain_With_Paralysis_Weakness
PX130301240800 While you were having your episode of more
paralysis or weakness, did any of the following occur? Pain in the weak arm, leg or face? show less
Variable Mapping
PX130301_Paralysis_Or_Weakness
PX130301060300 Paralysis or weakness? Variable Mapping
PX130301_Paralysis_Or_Weakness_Occurred_Suddenly
PX130301210000 Did the episode come on suddenly? Variable Mapping
PX130301_Paralysis_Or_Weakness_With_Numbness
PX130301190200 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Paralysis or weakness? show less
Variable Mapping
PX130301_Paralysis_Weakness_Left_Arm_Hand
PX130301220100 During this episode, which part or parts of more
your body were affected? Left arm or hand? show less
Variable Mapping
PX130301_Paralysis_Weakness_Left_Leg_Foot
PX130301220200 During this episode, which part or parts of more
your body were affected? Left leg or foot? show less
Variable Mapping
PX130301_Paralysis_Weakness_Left_Side_Face
PX130301220300 During this episode, which part or parts of more
your body were affected? Left side of face? show less
Variable Mapping
PX130301_Paralysis_Weakness_Other
PX130301220700 During this episode, which part or parts of more
your body were affected? Other? show less
Variable Mapping
PX130301_Paralysis_Weakness_Right_Arm_Hand
PX130301220400 During this episode, which part or parts of more
your body were affected? Right arm or hand? show less
Variable Mapping
PX130301_Paralysis_Weakness_Right_Leg_Foot?
PX130301220500 During this episode, which part or parts of more
your body were affected? Right leg or foot? show less
Variable Mapping
PX130301_Paralysis_Weakness_Right_Side_Face
PX130301220600 During this episode, which part or parts of more
your body were affected? Right side of face? show less
Variable Mapping
PX130301_Paralysis_Weakness_Spread
PX130301230000 During this episode, did the paralysis or more
weakness start in one part of your body and spread to another, or did it stay in the same place? show less
Variable Mapping
PX130301_Paralysis_Weakness_Vision_Loss_Side
PX130301100500 Did you have difficulty on: Variable Mapping
PX130301_Paralysis_Weakness_With_Dizziness
PX130301270200 While you were having your episode of more
dizziness, loss of balance or spinning sensation, did any of the following occur? Paralysis or weakness? show less
Variable Mapping
PX130301_Paralysis_Weakness_With_Double_Vision
PX130301130400 While you were having your double vision did more
any of the following occur? Paralysis or weakness? show less
Variable Mapping
PX130301_Paralysis_Weakness_With_Vision_Loss
PX130301100400 While you were having your loss of vision, more
did any of the following occur? Paralysis or weakness? show less
Variable Mapping
PX130301_Parts_Of_Vision_Affected
PX130301090000 During the episode, which of the following more
parts of your vision were affected? show less
Variable Mapping
PX130301_Physician_Diagnosed_Stroke
PX130301010000 Have you ever been told by a physician that more
you had a stroke? show less
Variable Mapping
PX130301_Seizures_Convulsions_With_Double_Vision
PX130301130800 While you were having your double vision did more
any of the following occur? Seizures or convulsions? show less
Variable Mapping
PX130301_Seizures_Convulsions_With_Vision_Loss
PX130301100800 While you were having your loss of vision, more
did any of the following occur? Seizures or convulsions? show less
Variable Mapping
PX130301_Seizures_Or_Convulsions
PX130301060700 Seizures or convulsions? Variable Mapping
PX130301_Seizures_Or_Convulsions_With_Numbness
PX130301190600 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Seizures or convulsions? show less
Variable Mapping
PX130301_Seizures_With_Dizziness
PX130301270700 While you were having your episode of more
dizziness, loss of balance or spinning sensation, did any of the following occur? Seizures or convulsions? show less
Variable Mapping
PX130301_Seizures_With_Paralysis_Weakness
PX130301240600 While you were having your episode of more
paralysis or weakness, did any of the following occur? Seizures or convulsions? show less
Variable Mapping
PX130301_Sensation_Spread
PX130301180000 During this episode, did the abnormal more
sensation start in one part of your body and spread to another, or did it stay in the same place? show less
Variable Mapping
PX130301_Side_Affected_With_Paralysis_Weakness
PX130301240300 Did you have difficulty on: Variable Mapping
PX130301_Side_With_Numbness_Tingling
PX130301060200 Did you have difficulty on: Variable Mapping
PX130301_Side_With_Paralysis_Weakness
PX130301060400 Did you have difficulty on: Variable Mapping
PX130301_Slurred_Speech
PX130301050100 Slurred speech like you were drunk? Variable Mapping
PX130301_Speech_Disturbances_With_Dizziness
PX130301270100 While you were having your episode of more
dizziness, loss of balance or spinning sensation, did any of the following occur? Speech disturbances? show less
Variable Mapping
PX130301_Speech_Disturbances_With_Paralysis_Weakness
PX130301240100 While you were having your episode of more
paralysis or weakness, did any of the following occur? Speech disturbances? show less
Variable Mapping
PX130301_Speech_Disturbance_With_Double_Vision
PX130301130100 While you were having your double vision did more
any of the following occur? Speech disturbance? show less
Variable Mapping
PX130301_Speech_Disturbance_With_Numbness
PX130301190100 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Speech disturbance? show less
Variable Mapping
PX130301_Speech_Disturbance_With_Vision_Loss
PX130301100100 While you were having your loss of vision, more
did any of the following occur? Speech disturbance? show less
Variable Mapping
PX130301_Sudden_Loss_Of_Speech
PX130301030000 Have you ever had any sudden loss or changes more
in speech lasting 24 hours or longer? show less
Variable Mapping
PX130301_Sudden_Numbness_Tingling
PX130301140000 Have you ever had sudden numbness, tingling, more
or loss of feeling on one side of your body, including your face, arm, or leg which lasted 24 hours or longer? show less
Variable Mapping
PX130301_Sudden_Paralysis_Or_Weakness
PX130301200000 Have you ever had any sudden episode of more
paralysis or weakness on one side of your body, including your face, arm, or leg which lasted at least 24 hours? show less
Variable Mapping
PX130301_Sudden_Spell_Double_Vision
PX130301110000 Have you ever had a sudden spell of double more
vision, which lasted 24 hours or longer? show less
Variable Mapping
PX130301_Sudden_Vision_Loss_Or_Blurring
PX130301070000 Have you ever had any sudden loss of vision, more
or blurring, lasting 24 hours or longer? show less
Variable Mapping
PX130301_Trouble_Seeing_Left_Right_Ahead
PX130301090100 Did you have: Variable Mapping
PX130301_Vision_Disturbances_Description
PX130301061000 Did you have: Variable Mapping
PX130301_Visual_Disturbances
PX130301060900 Visual disturbances? Variable Mapping
PX130301_Visual_Disturbances_Description_Paralysis_Weakness
PX130301241000 Did you have: Variable Mapping
PX130301_Visual_Disturbances_Description_With_Dizziness
PX130301271000 Did you have: Variable Mapping
PX130301_Visual_Disturbances_Description_With_Numbness
PX130301191000 Did you have: Variable Mapping
PX130301_Visual_Disturbances_With_Dizziness
PX130301270900 While you were having your episode of more
dizziness, loss of balance or spinning sensation, did any of the following occur? Visual disturbances? show less
N/A
PX130301_Visual_Disturbances_With_Numbness
PX130301190900 While you were having your episode of more
numbness, tingling or loss of sensation, did any of the following occur? Visual disturbances? show less
Variable Mapping
PX130301_Visual_Disturbances_With_Paralysis_Weakness
PX130301240900 While you were having your episode of more
paralysis or weakness, did any of the following occur? Visual disturbances? show less
Variable Mapping
PX130301_Words_Would_Not_Come_Out
PX130301050300 Knew what you wanted to say, but the words more
would not come out? show less
Variable Mapping
PX130301_Wrong_Words
PX130301050200 Could talk but the wrong words came out? Variable Mapping
Neurology
Measure Name

History of Stroke - Ischemic Infarction and Hemorrhage

Release Date

May 12, 2010

Definition

A questionnaire to determine if the respondent has had an ischemic infarction (i.e. stroke) and/or any symptoms related to this event.

Purpose

This measure is used to determine whether an individual has had a stroke and to assess the associated complications. Stroke, a loss of brain function due to disrupted blood flow, is the most common debilitating neurological condition in the United States and is the third leading cause of death. Stroke etiology is influenced both by genetic and environmental factors, and risk factors include increasing age, systolic blood pressure, diabetes, atrial fibrillation, male gender, smoking, and cardiovascular disease (Aminoff et al., 2005, Wolf et al., 1991).

Keywords

Neurology, ischemic infarction, hemorrhage, stroke, Jackson Heart Study, JHS, National Heart Lung and Blood Institute, NHLBI, National Institute on Minority Health and Health Disparities, NIMHD, National Institute of Biomedical Imaging and Bioengineering, NIBIB, gerontology, aging, geriatrics

Measure Protocols
Protocol ID Protocol Name
130301 History of Stroke - Ischemic Infarction and Hemorrhage
Publications

Juan, J., et al. (2017) Joint Effects of PON1 Polymorphisms and Vegetable Intake on Ischemic Stroke: A Family-Based Case Control Study. Int J Mol Sci. 2017 December; 18(12): E2652. doi: 10.3390/ijms18122652

Majersik, J. J., et al. (2015) Recommendations from the International Stroke Genetics Consortium, Part 1: Standardized Phenotypic Data Collection. Stroke. 2015 January; 46(1): 279-284. doi: 10.1161/STROKEAHA.114.006839