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Protocol - Personal History of Type I and Type II Diabetes

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Description

These interviewer-administered questions from the Multi-Ethnic Study of Arthrosclerosis (MESA) ascertain whether an individual has ever been told by a doctor or health care professional that he or she has diabetes.

Specific Instructions

The following was taken from a stem question that captures more than just a personal history of diabetes. The Diabetes Working Group (WG) recommends removing "one of the following" from the initial question so that the question is "Has your doctor or health care professional told you that you had:" The Diabetes WG refers users to the Female Protocol of the Reproductive History measure for more questions on pregnancy history related to gestational diabetes.

The Expert Review Panel suggests that a question is asked about history of hospitalization for diabetes - ketoacidosis to help differentiate between type 1 diabetes mellitus and type 2 diabetes mellitus.

Availability

Available

Protocol

Has your doctor or health care professional told you that you had one of the following:

1. Diabetes (sugar in blood)

1 [ ] Yes

0 [ ] No

9 [ ] Don’t Know

IF YES:

a. Are you taking medicine for this?

1 [ ] Yes

0 [ ] No

9 [ ] Don’t Know

If Yes to a

[ ] Insulin

[ ] Pills

IF YES:

b. At what age was this first treated?

|__|__|__|

9 [ ] Don’t Know

c. Was insulin your first diabetes medicine?

1 [ ] Yes

0 [ ] No

9 [ ] Don’t Know

d. For Women: did diabetes occur ONLY during Pregnancy?

1 [ ] Yes

0 [ ] No

9 [ ] Don’t Know

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews. The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

Equipment Needs

These questions can be administered in a computerized or non-computerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Lifestage

Adult, Senior

Participants

An individual aged 18 or older. The protocol can also be administered to a child through an adult proxy.

Selection Rationale

The Multi-Ethnic Study of Arthrosclerosis (MESA) protocol was vetted against similar protocols and chosen because it captures age of diagnosis, whether the respondent is taking medication for diabetes, and whether the diagnosis was just during pregnancy (history of gestational diabetes mellitus [GDM]).

Language

Chinese, English, Other languages available at source

Standards
StandardNameIDSource
Logical Observation Identifiers Names and Codes (LOINC) Pers hx type 1-2 diabetes proto 62797-6 LOINC
Human Phenotype Ontology Diabetes Mellitus HP:0000819 HPO
caDSR Form PhenX PX140501 - Personal History Of Type 1 And Type 2 Diabetes 6169060 caDSR Form
Derived Variables

None

Process and Review

The Expert Review Panel #1 reviewed the measures in the Anthropometrics, Diabetes, Physical Activity and Physical Fitness, and Nutrition and Dietary Supplements domains.

Guidance from the ERP includes:

• Revised descriptions of measure

Back-compatible: no changes to Data Dictionary

Previous version in Toolkit archive (link)

Protocol Name from Source

Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History, 2001

Source

2001 Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History

General References

None

Protocol ID

140501

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX140501_Diabetes
PX140501010000 Has your doctor or health care professional more
told you that you had one of the following: Diabetes (sugar in blood) show less
N/A
PX140501_Diabetes_Age
PX140501010200 IF YES: At what age was this first treated? N/A
PX140501_Diabetes_Age_Coded
PX140501010201 IF YES: At what age was this first treated? N/A
PX140501_Diabetes_Insulin
PX140501010300 Was insulin your first diabetes medicine? Variable Mapping
PX140501_Diabetes_Medicine
PX140501010100 IF YES: Are you taking medicine for this? N/A
PX140501_Diabetes_Medicine_Type
PX140501010101 If Yes N/A
PX140501_Diabetes_Women_Pregnancy
PX140501010400 For Women: did diabetes occur ONLY during more
Pregnancy? show less
N/A
Diabetes
Measure Name

Personal History of Type I and Type II Diabetes

Release Date

May 10, 2010

Definition

A questionnaire to determine a respondent’s history of type 1 or type 2 diabetes.

Purpose

This measure can be used to stratify a study population into those with diabetes and those without diabetes.

Keywords

diabetes, MESA

Measure Protocols
Protocol ID Protocol Name
140501 Personal History of Type I and Type II Diabetes
Publications

Juan, J., et al. (2017) Joint Effects of PON1 Polymorphisms and Vegetable Intake on Ischemic Stroke: A Family-Based Case Control Study. Int J Mol Sci. 2017 December; 18(12): E2652. doi: 10.3390/ijms18122652