Protocol - Ethnicity
The interviewer asks the respondent if he or she considers himself or herself to be Hispanic, Latino or Spanish and, if so, asks an additional question about his or her specific Hispanic origin is asked. One or more Hispanic origin categories may be selected.
Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.
If the respondent answers "yes" to the first question, then the interviewer should proceed to the next question, which includes the categories of Hispanic origin or ancestry. For the follow-up question, the interviewer should hand the respondent a card with the list of categories and read the categories, if necessary.
1. Do you consider yourself to be Hispanic, Latino, or of Spanish origin?
READ IF NECESSARY: Where do your ancestors come from?
Other Latin American
Other Hispanic or Latino
1[ ]YES [ask follow-up question]
9[ ]DON’T KNOW
SPANISH, HISPANIC OR LATINO PEOPLE MAY BE OF ANY RACE. LISTED BELOW ARE HISPANIC OR LATINO CATEGORIES/COUNTRIES.
OTHER CENTRAL AMERICAN
OTHER SOUTH AMERICAN
OTHER HISPANIC OR LATINO:
2. Please give me the number of the group that represents your Hispanic/Latino or Spanish origin or ancestry. Please select 1 or more of these categories.
PROBE: Where do your ancestors come from?
11[ ]PUERTO RICAN
13[ ]DOMINICAN REPUBLIC
14[ ]COSTA RICAN
20[ ]OTHER CENTRAL AMERICAN
30[ ]OTHER SOUTH AMERICAN
OTHER HISPANIC OR LATINO:
34[ ]SPANISH AMERICAN
40[ ]OTHER HISPANIC/LATINO (SPECIFY)
99[ ]DON’T KNOW
Protocol Name from Source:
National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.
Personnel and Training Required
The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.
* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).
While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy
An individual aged 18 years or older. May be asked of children via a proxy.
The question meets the Office of Management and Budget (OMB) standards for capturing data on ethnicity. An important variable for population stratification distinguishes those who self-identify as Hispanic/Latino. Vetted against other ethnicity questions, the National Health and Nutrition Examination Survey (NHANES) question was selected because it met OMB standards, was used on a major U.S. health study, and provides additional Hispanic/Latino categories.
|Common Data Elements (CDE)||Centers for Disease Control and Prevention Ethnicity Unique Identifier Codes||2200284||CDE Browser|
|Logical Observation Identifiers Names and Codes (LOINC)||PhenX - ethnicity protocol||62299-3||LOINC|
Process and Review
The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments, and Environmental Exposures domains.
Guidance from ERP 2 includes:
• Updated protocol
• New Data Dictionary
Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)
National Center for Health Statistics. (N.d.). National Health and Nutrition Examination Survey (NHANES), 2013–2014, Demographics Module. Question numbers DMQ.241 and DMQ.253
Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0.
Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. Federal Register Notice (10/30/97, Vol. 62, No. 210).
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
|PX010502030000||Where do your ancestors come from?||N/A|
|PX010502010000||Do you consider yourself to be Hispanic, more||Variable Mapping|
|PX010502020000||READ IF NECESSARY: Where do your ancestors more||N/A|
May 11, 2016
Question asking the respondent to identify whether he or she is of Hispanic, Latino, or Spanish origin. The U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."
Ethnicity is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., Dominican). Ethnicity is a social and epidemiological factor, and individuals of some ethnicity are at greater risk for disease. By capturing the ethnicity of respondents, the researcher will be able to identify those who are or are not of Hispanic origin and will be able to stratify the study population accordingly.
Demographics, ancestry, Hispanic, Latino, population stratification, Centers for Disease Control and Prevention, CDC, National Health and Nutrition Examination Survey, NHANES