News and Views

"RTI's PhenX Toolkit to be established as biomedical knowledgebase with latest award," rti.org, RTI International, February 6, 2023

"The PhenX Toolkit: Measurement protocols investigators can use with confidence," rti.org, RTI International, December 16, 2021

"COVID-19 researchers gain quick access to surveys, protocols," Environmental Factor, NIEHS, May 6, 2020

"COVID-19 Specific Survey Items Now Available on PhenX and the NIH Disaster Research Response (DR2) Platforms," BSSR News, NIH, April 16, 2020

"A research toolkit of standard measures to be expanded to further support the biomedical community," rti.org, RTI International, September 28, 2017

"RTI to Use $5.3M NHGRI Grant to Expand Web-based Resource of Phenotype and Exposure Measures," GenomeWeb BioInform News, August 16, 2013

"NHGRI Awards RTI $5.3M to Expand PhenX Toolkit," genomeweb.com, GenomeWeb Daily News, August 13, 2013

"RTI International to Expand Resource for Genomic Research," rti.org, RTI International, August 12, 2013

"Consensus measures for phenotype and exposure (PhenX)," p3g.org, Public Population Project in Genomics and Society, October 1, 2012

"PhenX Real World Sharing and Implementation of the PhenX Toolkit (PhenX RISING)," genome.gov, NHGRI, July 20, 2012

"PhenX Toolkit Provides Standard Measures for Research," drugabuse.gov, National Institutes of Health (NIH), National Institute on Drug Abuse (NIDA), July 1, 2012

"PhenX Toolkit for Available for Sharing Human-subjects Data," Announcement, The University of Mississippi, April 1, 2012

"PhenX Is Here!," Clinical Trial Network Bulletin, NIDA, March 1, 2012

"NIDA and NHGRI announce new PhenX measures for substance abuse and addiction," Genome.com, February 24, 2012

"The PhenX Toolkit," Genetic Resources and Information for Vision Researchers, National Eye Institute, February 1, 2012

"NHGRI Expands PhenX Project with Standards, Measures Initiative," GenomeWeb Daily News, December 20, 2011

"NHGRI funds researchers to evaluate standard measures in genomic studies," Genome.com News and Features from the Office of the Director, December 20, 2011

"PhenX Newsletter Issue 17, December 16, 2011," Alcohol Reports, December 20, 2011

"NHGRI Funds Now Available to Include Standard Measures in Genomic Studies," Genome.com, March 11, 2011

"NHGRI to Fund Use of PhenX Data," GenomeWeb Daily News, January 24, 2011

"PhenX Toolkit Available for Measuring and Reporting Physical Traits and Environmental Exposures in Research Studies," Epidemiology and Genetics Research, NCI, January 13, 2011

"RTI 'toolkit' aims to make genetic data comparable," WRAL Tech Wire, December 27, 2010

"PhenX Toolkit," Center for Demography of Health and Aging (CDHA), December 21, 2010

"New Tools Available for Genetics Research," genome.gov, NHGRI, December 20, 2010

"Creating a Global Rare Disease Patient Registry Linked to a Rare Diseases Biorepository Database: Rare-Disease Hub (RD-HUB)," Contemporary Clinical Trial, September 1, 2010

"Tip of the Week: PhenX Toolkit for GWAS Phenotype and Exposure Studies," OpenHelix, June 3, 2009

"GWAS: New PhenX Toolkit aims to make data useful to more researchers," Genome Technology, June 1, 2009

"Free Online Toolkit Provides Standard Measures For Genome And Population Studies," Medical News Today, April 22, 2009

"The PhenX project: Identifying standard measures for genomics research," GSA Newsletter, September 1, 2008

"Microarray notes," Genome Technology, August 1, 2008

"Need for cross-study harmonization of data in genome-wide association studies (GWAS) prompts new PhenX project," EpiMonitor, July 1, 2008

"RTI wants researchers involved in developing GWAS measures," GenomeWeb Daily News, June 1, 2008

Studies that have incorporated PhenX measures.

NEIGHBOR Consortium - The NEI Glaucoma Human Genetics Collaboration (NEIGHBOR) is a collaborative effort to collect primary open-angle glaucoma (POAG) cases and controls to sufficiently power a genome-wide association study to identify genetic variants that significantly contribute to the disease. The consortium is using PhenX measures to collect/collate phenotypic data for this study.

Gulf Long-Term Follow-up Study (GuLF STUDY) - A National Institute of Environmental Health Sciences (NIEHS) epidemiologic study to assess potential short- and long-term health effects associated with oil spill cleanup from the BP / Deepwater Horizon disaster.

Children's Health after the Storm (CHATS) - A Centers for Disease Control and Prevention (CDC) study to investigate Ambispective environmental exposure in Children who resided in FEMA-provided temporary housing units during Hurricanes Katrina and Rita.

Notice of Availability of Administrative Supplements for the Addition of Standard Measures to Population-Based Genomic Research: The PhenX Toolkit - NOT-HG-11-001. National Human Genome Research Institute (NHGRI), Office of Behavioral and Social Sciences Research (OBSSR)

North American Pancreatitis Study 2 Continuation and Validation (NAPS2-CV) - A National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) study to collect a validation group of 500 Pancreatitis subjects for potential genome-wide association studies.

GARM II: A Study on the Genetics of Age-related Maculopathy - A National Eye Institute (NEI) study about age-related macular degeneration in the next generation of adults (49 to 65 years old) to identify the hereditary and exposure risk factors that lead to the development of ARM (Age related maculopathy).

"ASHG Honors Sharon Terry, MA, with the 2021 ASHG Advocacy Award," American Society of Human Genetics, July 2021

"Notice of Information: NIDA offers Genotyping on Smokescreen Genotyping Array to Substance Abuse Disorder Investigators," National Institute on Drug Abuse (NIDA), February 2016

"Notice Announcing the Availability of Common Data Elements for Research Related to Eating Disorders," National Institute of Mental Health (NIMH), September 2015

"Improving Access to NIH-supported Common Data Element Initiatives, National Institutes of Health," (NIH), February 2013

"Notice Announcing Data Harmonization for Substance Abuse and Addiction via the PhenX Toolkit," National Institute of Drug Abuse (NIDA), February 2012

"New Tools Available for Genetics Research," RTI Press Release, December 2010

"New Online 'Toolkit' Aims to Standardize Measures, Protocols Scientists Use in Genetic Studies," RTI Press Release, April 2009

"Free Online Toolkit Provides Standard Measures for Genome and Population Studies: New Measures Will Allow Integration of Multiple Research Studies," NHGRI Press Release, April 2009

"New Project Asks for Input from the Research Community to Choose Standard Measures for Genomics Research," RTI StaffNet, June 2008