Social Determinants of Health Project and Working Group (2020)

National Institute on Minority Health and Health Disparities (NIMHD) funded an administrative supplement to the PhenX project to select high-quality standard measures related to SDoH for inclusion in the PhenX (consensus measures for Phenotypes and eXposures) Toolkit (www.phenxtoolkit.org).

In 2020, the collections of SDoH measures were added to the PhenX Toolkit by the first PhenX Social Determinants of Health Working Group which was composed of nine scientists with relevant expertise:

• Barbara Entwisle, PhD, (Co-Chair), University of North Carolina at Chapel Hill
• Alicia Fernandez, MD, (Co-Chair), University of California, San Francisco
• Paula Braveman, MD, University of California, San Francisco
• Theresa Cullen, MD, Regenstrief Institute
• William Darity, Jr, PhD, Duke University
• Mark Fossett, PhD, Texas A&M University
• Patrick Remington, MD, University of Wisconsin, Madison
• Maile Taualii, PhD, Hawaii Permanente Medical Group
• Consuelo Wilkins, MD, Vanderbilt University

Protocols added to the PhenX Toolkit

1. Access to Health Services
2. Access to Health Technology
3. Air Quality Index
4. Concentrated Poverty
5. Disparate Health Care Quality
6. Educational Attainment - Community
7. English Proficiency
8. Environmental Justice
9. Food Insecurity
10. Food Swamp
11. Health Literacy
12. Health Numeracy
13. Job Insecurity
14. Occupational Prestige
15. Percent Unionized for Non-Agricultural Labor Force
16. Race/Ethnic Residential Segregation - Separation (S) Index, Unbiased
17. Social Vulnerability
18. Spirituality
19. Wealth

PhenX SDoH Working Group Responsibilities

The goals of the PhenX SDoH WG were to:

• Identify and review well-established measurement protocols and instruments currently in use in the field
• Examine SDoH - related measurement protocols in the PhenX Toolkit to ensure that newly selected protocols complement existing Toolkit content
• Select up to 20 preliminary protocols to share with the research community and get feedback (community outreach)
• Suggest groups in the research community for the community outreach efforts
• Consider feedback from community outreach when deciding the high-priority SDoH protocols to be included in the Toolkit
• Present recommended protocols to the PhenX Steering Committee (SC) for approval

PhenX Social Determinants of Health Senior Management Team

National Institute on Minority Health and Health Disparities (NIMHD)
Eliseo Pérez-Stable, MD Director	Nancy Breen, PhD (Former) Project Scientist
Nishadi Rajapakse, PhD, MHS Project Scientist	Andrew Louden, PhD (Former) Project Scientist
Nancy Jones, PhD Project Scientist	Xinzhi Zhang, MD, PhD (Former) Project Scientist

National Human Genome Research Institute (NHGRI)
Erin Ramos, PhD, MPH PhenX Project Scientist and SC Liaison to the SDoH WG	Natalie Pino, BA PhenX Project Analyst

RTI International
Carol M. Hamilton, PhD Principal Investigator	Cataia Ives, MS WG Manager
Tabitha Hendershot, BA Co-Investigator	Deborah Maiese, MPA Consensus Coordinator
Michelle Krzyzanowski, PhD WG Supervisor	Amanda Riley, PMP, BSBA Project Manager