Protocol - Sexual Orientation
A multi-part question asking participants to describe their sexual orientation. Multiple response options are provided along with an open-ended option.
While the original protocol is intended for computer administration, the PhenX Steering Committee acknowledges these items would be acceptable for use in paper-pencil questionnaires.
1a. Which of the following best represents how you think of yourself?
[ ] Gay
[ ] Lesbian
[ ] Straight; that is, not gay or lesbian, etc.
[ ] Bisexual
[ ] None of these describe me, and I’d like to see additional options
Branching logic: If ‘none of these describe me, and I’d like to see additional options’ selected:
1b. Are any of these a closer description of how you think of yourself?
[ ] Queer
[ ] Polysexual, omnisexual, sapiosexual or pansexual
[ ] Asexual
[ ] Two-spirit
[ ] Have not figured out or are in the process of figuring out your sexuality
[ ] Mostly straight, but sometimes attracted to people of your own sex
[ ] Do not think of yourself as having sexuality
[ ] Do not use labels to identity yourself
[ ] Don’t know the answer
[ ] No, I mean something else (optional free text) __________________
[ ] Prefer not to answer
Protocol Name from Source:
All of Us Research Program Participant Provided Information (PPI)
Personnel and Training Required
The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire."
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Self-administered or interviewer-administered questionnaire
Adults aged 18 and older
This protocol was selected because it is both the most up-to-date and in use by the national All of Us research program.
|Common Data Elements (CDE)||Person Biological Entity Sexual Orientation Code PCORnet CDM Sexual Orientation Code||6421669||CDE Browser|
Process and Review
All of Us Research Program Participant Provided Information (PPI) Version: December 17, 2018
The Precision Medicine Initiative Cohort Program – Building a Research Foundation for 21st Century Medicine Precision Medicine Initiative (PMI) Working Group Report to the Advisory Committee to the Director, NIH September 17, 2015
A New Initiative on Precision Medicine
Francis S. Collins, M.D., Ph.D., and Harold Varmus, M.D. January 30, 2015, at NEJM.org
National Research Council. Toward precision medicine: building a knowledge network for biomedical research and a new taxonomy of disease. Washington, DC: National Academies Press, 2011 (http://www.nap.edu/catalog/13284/toward-precision-medicine-building-a-knowledge-network-for-biomedical-research).
Perron, T., Kartoz, C., Himelfarb, C., LGBTQ Youth Part 1. National Association of School Nurses, 2017 Mar. 32(2): 106-115.
Perron, T., Kartoz, C., Himelfarb, C. LGBTQ Part 2. National Association of School Nurses. 2017 Mar. 32(2): 116-121.
The GenIUSS Group. (2014). Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. J.L. Herman (Ed.). Los Angeles, CA: The Williams Institute.
|Variable Name||Variable ID||Variable Description||Version||dbGaP Mapping|
|PX011701_Sexual_Orientation_Description||PX011701020100||Are any of these a closer description of how more||N/A|
|PX011701_Sexual_Orientation_Description_Other||PX011701020200||Are any of these a closer description of how more||N/A|
|PX011701_Sexual_Orientation_Identity||PX011701010000||Which of the following best represents how more||N/A|
June 4, 2019
An emotional, romantic, or sexual attraction to other people.
To obtain a self-report of a person’s romantic attraction to other people, be it gay, lesbian, straight, bisexual, or something else.
Sex, Gender, LGBTQ, LGBTQIA, Gay, Lesbian, Bisexual, Intersex, Asexual, Queer, Transgender, Questioning