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Protocol - Sexual Orientation

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Description:

A multi-part question asking participants to describe their sexual orientation. Multiple response options are provided along with an open-ended option.

Specific Instructions:

While the original protocol is intended for computer administration, the PhenX Steering Committee acknowledges these items would be acceptable for use in paper-pencil questionnaires.

Protocol:

1a. Which of the following best represents how you think of yourself?

[ ] Gay

[ ] Lesbian

[ ] Straight; that is, not gay or lesbian, etc.

[ ] Bisexual

[ ] None of these describe me, and I’d like to see additional options

Branching logic: If ‘none of these describe me, and I’d like to see additional options’ selected:

1b. Are any of these a closer description of how you think of yourself? 

[ ] Queer

[ ] Polysexual, omnisexual, sapiosexual or pansexual

[ ] Asexual

[ ] Two-spirit

[ ] Have not figured out or are in the process of figuring out your sexuality

[ ] Mostly straight, but sometimes attracted to people of your own sex

[ ] Do not think of yourself as having sexuality

[ ] Do not use labels to identity yourself

[ ] Don’t know the answer

[ ] No, I mean something else (optional free text) __________________

[ ] Prefer not to answer

Protocol Name from Source:

All of Us Research Program Participant Provided Information (PPI)

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire."

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered or interviewer-administered questionnaire

Life Stage:

Adult, Senior

Participants:

Adults aged 18 and older

Selection Rationale

This protocol was selected because it is both the most up-to-date and in use by the national All of Us research program.

Language

English, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Person Biological Entity Sexual Orientation Code PCORnet CDM Sexual Orientation Code 6421669 CDE Browser
Derived Variables

None

Process and Review

Not applicable.

Source

All of Us Research Program Participant Provided Information (PPI) Version: December 17, 2018

General References

The Precision Medicine Initiative Cohort Program – Building a Research Foundation for 21st Century Medicine Precision Medicine Initiative (PMI) Working Group Report to the Advisory Committee to the Director, NIH September 17, 2015

A New Initiative on Precision Medicine

Francis S. Collins, M.D., Ph.D., and Harold Varmus, M.D. January 30, 2015, at NEJM.org

National Research Council. Toward precision medicine: building a knowledge network for biomedical research and a new taxonomy of disease. Washington, DC: National Academies Press, 2011 (http://www.nap.edu/catalog/13284/toward-precision-medicine-building-a-knowledge-network-for-biomedical-research).

Google Scholar

Perron, T., Kartoz, C., Himelfarb, C., LGBTQ Youth Part 1. National Association of School Nurses, 2017 Mar. 32(2): 106-115.

Perron, T., Kartoz, C., Himelfarb, C. LGBTQ Part 2. National Association of School Nurses. 2017 Mar. 32(2): 116-121.

The GenIUSS Group. (2014). Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. J.L. Herman (Ed.). Los Angeles, CA: The Williams Institute.

Protocol ID:

11701

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX011701_Sexual_Orientation_Description PX011701020100 Are any of these a closer description of how more
you think of yourself? show less
N/A
PX011701_Sexual_Orientation_Description_Other PX011701020200 Are any of these a closer description of how more
you think of yourself? Other show less
N/A
PX011701_Sexual_Orientation_Identity PX011701010000 Which of the following best represents how more
you think of yourself? show less
N/A
Demographics
Measure Name:

Sexual orientation

Release Date:

June 4, 2019

Definition

An emotional, romantic, or sexual attraction to other people.

Purpose

To obtain a self-report of a person’s romantic attraction to other people, be it gay, lesbian, straight, bisexual, or something else.

Keywords

Sex, Gender, LGBTQ, LGBTQIA, Gay, Lesbian, Bisexual, Intersex, Asexual, Queer, Transgender, Questioning