Protocol - Sexual Orientation
A multi-part question asking participants to describe their sexual orientation. Multiple response options are provided along with an open-ended option.
The three dimensions of sexuality—attraction, identity, and behavior—may not correspond to the same orientation.
Identity: A persons core internal sense of their sexuality.
Attraction: A multidimensional concept that includes the gender(s) to which a person is attracted and the strength of this attraction, including whether a person feels attraction at all.
Behavior: A multidimensional concept that includes the gender(s) of sexual partners, specific sexual activities, and frequency of activity.
A person’s sexual orientation does not always align with behavior or attraction. Sexual orientation is useful as basic demographic information.
1a. Which of the following best represents how you think of yourself?
[ ] Gay
[ ] Lesbian
[ ] Straight; that is, not gay or lesbian, etc.
[ ] Bisexual
[ ] None of these describe me, and I’d like to see additional options
Branching logic: If ‘none of these describe me, and I’d like to see additional options’ selected:
1b. Are any of these a closer description of how you think of yourself?
[ ] Queer
[ ] Polysexual, omnisexual, sapiosexual or pansexual
[ ] Asexual
[ ] Two-spirit
[ ] Have not figured out or are in the process of figuring out your sexuality
[ ] Mostly straight, but sometimes attracted to people of your own sex
[ ] Do not think of yourself as having sexuality
[ ] Do not use labels to identity yourself
[ ] Don’t know the answer
[ ] No, I mean something else (optional free text) __________________
[ ] Prefer not to answer
Personnel and Training Required
The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire."
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Self-administered or interviewer-administered questionnaire
Adults aged 18 and older
This protocol was selected because it is both the most up-to-date and in use by the national All of Us research program.
English, Other languages available at source
Process and Review
The NIH Sexual and Gender Minority Research Office (SGMRO) reviewed this protocol in August 2023.
- Added NASEM report reference
- Removed The Precision Medicine Initiative Cohort Program, Collins, F.S. and Varmus, H., and National Research Council references
- Updated Specific Instructions
- Updated Protocol Definition
- Updated Purpose
- Updated Keywords
Protocol Name from Source
All of Us Research Program, Participant Provided Information (PPI), 2018
All of Us Research Program Participant Provided Information (PPI) Version: December 17, 2018
National Academies of Sciences, Engineering, and Medicine; Division of Behavioral and Social Sciences and Education; Committee on National Statistics; Committee on Measuring Sex, Gender Identity, and Sexual Orientation. Measuring Sex, Gender Identity, and Sexual Orientation. Becker T, Chin M, Bates N, editors. Washington (DC): National Academies Press (US); 2022 Mar 9. PMID: 35286054.
Perron, T., Kartoz, C., Himelfarb, C., LGBTQ Youth Part 1. National Association of School Nurses, 2017 Mar. 32(2): 106-115.
Perron, T., Kartoz, C., Himelfarb, C. LGBTQ Part 2. National Association of School Nurses. 2017 Mar. 32(2): 116-121.
The GenIUSS Group. (2014). Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. J.L. Herman (Ed.). Los Angeles, CA: The Williams Institute.
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
|PX011701020100||Are any of these a closer description of how more||N/A|
|PX011701020200||Are any of these a closer description of how more||N/A|
|PX011701010000||Which of the following best represents how more||N/A|
June 4, 2019
Often defined based on the gender(s) of a person's desired or actual partner(s) relative to their own gender identity.
To obtain a person’s self-reported sexual orientation related to who they might be attracted to or partner with.
sexual orientation, sex assigned at birth, gender, LGBTQ, LGBTQIA, gay, lesbian, bisexual, intersex, asexual, queer
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