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Protocol - Pre-existing Conditions Associated with Cancer

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Description:

This self-administered protocol asks respondents to indicate the year of diagnosis for clinician-diagnosed illnesses. The respondent is also asked to provide the year of first diagnosis.

Protocol:

1. Have you had any of these clinician-diagnosed illnesses?

Year of Diagnosis

mark here for Yes
Leave blank for NO;

Yes

Myocardial infarction (heart attack)

[_]

__ __ __ __

Angina pectoris

[_]

__ __ __ __

Confirmed angiography? [_] No [_] Yes

Coronary bypass, angioplasty, or stent

[_]

__ __ __ __

Transient ischemic attack (TIA)

[_]

__ __ __ __

Stroke (CVA)

[_]

__ __ __ __

Deep vein thrombosis/Pulmonary embolism

[_]

__ __ __ __

Melanoma

[_]

__ __ __ __

Basal cell skin cancer

[_]

__ __ __ __

Squamous cell skin cancer

[_]

__ __ __ __

Fibrocystic/other benign breast disease

[_]

__ __ __ __

Confirmed by breast biopsy? [_] No [_] Yes

Confirmed by aspiration? [_] No [_] Yes

Breast cancer

[_]

__ __ __ __

Other cancer

[_]

__ __ __ __

Specify site of other cancer: ______________________

Colon or rectal polyp (benign)

[_]

__ __ __ __

Ulcerative colitis/Crohn's

[_]

__ __ __ __

Gastric or duodenal ulcer

[_]

__ __ __ __

Barrett's Esophagus

[_]

__ __ __ __

Gallstones

[_]

__ __ __ __

Did you have symptoms? [_] No [_] Yes

How diagnosed? [_] X-ray or ultrasound [_] Other

Cholecystectomy

[_]

__ __ __ __

Diabetes mellitus

[_]

__ __ __ __

Elevated cholesterol

[_]

__ __ __ __

High blood pressure

[_]

__ __ __ __

Endometriosis−1st diagnosis

[_]

__ __ __ __

Confirmed by laparoscopy? [_] No [_] Yes

Uterine fibroids−1st diagnosis

[_]

__ __ __ __

Confirmed by pelvic exam? [_] No [_] Yes

Confirmed by ultrasound/hysterectomy? [_] No [_] Yes

Premenstrual syndrome (PMS)

[_]

__ __ __ __

Kidney stones

[_]

__ __ __ __

Multiple Sclerosis

[_]

__ __ __ __

Asthma, doctor diagnosed

[_]

__ __ __ __

Emphysema/Chronic Bronchitis, doctor diagnosis

[_]

__ __ __ __

Pneumonia, x-ray confirmed

[_]

__ __ __ __

Graves' Disease/Hyperthyroidism

[_]

__ __ __ __

Hypothyroidism

[_]

__ __ __ __

Thyroid nodule (benign)

[_]

__ __ __ __

Gout

[_]

__ __ __ __

SLE (systemic lupus)

[_]

__ __ __ __

Rheumatoid arthritis, doctor diagnosis

[_]

__ __ __ __

Other arthritis

[_]

__ __ __ __

Depression, clinician diagnosis

[_]

__ __ __ __

Other major illness or surgery

[_]

__ __ __ __

Please specify: Date:

Editor's Note: The Cancer Working Group (WG) slightly modified this question from the original protocol text. The original protocol obtains year of diagnosis by asking respondents to choose between three choices (Before June 1, 2003; June 2003 to May 2005; or after June 1, 2005). The Cancer WG removed the phrase "since June 2003" in order to allow collection of diagnoses that occurred prior to June 2003. The additional response options were deleted, and respondents are now asked to write in the four-digit year of diagnosis.

Protocol Name from Source:

The Expert Review Panel has not reviewed this measure yet.

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage:

Adult

Participants:

Women between the ages of 25 and 42 years*

*While this protocol was used in a study of younger women, the Cancer Working Group deems it appropriate to use with older women and adult males.

Specific Instructions:

None

Selection Rationale

The Nurses' Health Study II was established in 1989. This is a validated and reliable protocol.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Person Cancer Associated Pre-existing Condition Text 2961255 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) Pre-existing cancer conditions proto 62573-1 LOINC
Derived Variables

None

Process and Review

The Expert Review Panel has not reviewed this measure yet.

Source
U.S. Department of Health and Human Services. National Institutes of Health, The Nurses' Health Study II, 2005 Long form, question 11 (source for question 1).
General References

None

Protocol ID:

70801

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX070801_Angina_Pectoris_Confirmed_Angiography PX070801020300 Confirmed angiography? 4 N/A
PX070801_Angina_Pectoris_History PX070801020100 Have you had any of these clinician-diagnosed illnesses? Angina pectoris? 4 N/A
PX070801_Angina_Pectoris_Year PX070801020200 Year of Diagnosis, Angina pectoris? 4 N/A
PX070801_Asthma_History PX070801270100 Have you had any of these clinician-diagnosed illnesses? Asthma, doctor diagnosed? 4 N/A
PX070801_Asthma_Year PX070801270200 Year of Diagnosis, Asthma, doctor diagnosed? 4 N/A
PX070801_Barretts_Esophagus_History PX070801160100 Have you had any of these clinician-diagnosed illnesses? Barrett's Esophagus? 4 N/A
PX070801_Barretts_Esophagus_Year PX070801160200 Year of Diagnosis, Barrett's Esophagus? 4 N/A
PX070801_Basal_Cell_Skin_Cancer_History PX070801080100 Have you had any of these clinician-diagnosed illnesses? Basal cell skin cancer? 4 N/A
PX070801_Basal_Cell_Skin_Cancer_Year PX070801080200 Year of Diagnosis, Basal cell skin cancer? 4 N/A
PX070801_Breast_Cancer_History PX070801110100 Have you had any of these clinician-diagnosed illnesses? Breast cancer? 4 N/A
PX070801_Breast_Cancer_Year PX070801110200 Year of Diagnosis, Breast cancer? 4 N/A
PX070801_Cholecystectomy_History PX070801180100 Have you had any of these clinician-diagnosed illnesses? Cholecystectomy? 4 N/A
PX070801_Cholecystectomy_Year PX070801180200 Year of Diagnosis, Cholecystectomy? 4 N/A
PX070801_Colon_Rectal_Polyp_Benign_History PX070801130100 Have you had any of these clinician-diagnosed illnesses? Colon or rectal polyp (benign)? 4 N/A
PX070801_Colon_Rectal_Polyp_Benign_Year PX070801130200 Year of Diagnosis, Colon or rectal polyp (benign)? 4 N/A
PX070801_Coronary_Bypass_History PX070801030100 Have you had any of these clinician-diagnosed illnesses? Coronary bypass, angioplasty, or stent? 4 N/A
PX070801_Coronary_Bypass_Year PX070801030200 Year of Diagnosis, Coronary bypass, angioplasty, or stent? 4 N/A
PX070801_Depression_History PX070801370100 Have you had any of these clinician-diagnosed illnesses? Depression, clinician diagnosis? 4 N/A
PX070801_Depression_Year PX070801370200 Year of Diagnosis, Depression, clinician diagnosis? 4 N/A
PX070801_Diabetes_Mellitus_History PX070801190100 Have you had any of these clinician-diagnosed illnesses? Diabetes mellitus? 4 N/A
PX070801_Diabetes_Mellitus_Year PX070801190200 Year of Diagnosis, Diabetes mellitus? 4 N/A
PX070801_DVT_Thrombosis_PE_Embolism_History PX070801060100 Have you had any of these clinician-diagnosed illnesses? Deep vein thrombosis/Pulmonary embolism? 4 N/A
PX070801_DVT_Thrombosis_PE_Embolism_Year PX070801060200 Year of Diagnosis, Deep vein thrombosis/Pulmonary embolism? 4 N/A
PX070801_Elevated_Cholesterol_History PX070801200100 Have you had any of these clinician-diagnosed illnesses? Elevated cholesterol? 4 N/A
PX070801_Elevated_Cholesterol_Year PX070801200200 Year of Diagnosis, Elevated cholesterol? 4 N/A
PX070801_Emphysema_Chronic_Bronchitis_History PX070801280100 Have you had any of these clinician-diagnosed illnesses? Emphysema/Chronic Bronchitis, doctor diagnosis? 4 N/A
PX070801_Emphysema_Chronic_Bronchitis_Year PX070801280200 Year of Diagnosis, Emphysema/Chronic Bronchitis, doctor diagnosis? 4 N/A
PX070801_Endometriosis_Confirmed_Laparoscopy PX070801220300 Confirmed by laparoscopy? 4 N/A
PX070801_Endometriosis_History PX070801220100 Have you had any of these clinician-diagnosed illnesses? Endometriosis-1st diagnosis? 4 N/A
PX070801_Endometriosis_Year PX070801220200 Year of Diagnosis, Endometriosis-1st diagnosis? 4 N/A
PX070801_Fibrocystic_Benign_Breast_Confirmed_Aspiration PX070801100400 Confirmed by aspiration? 4 N/A
PX070801_Fibrocystic_Benign_Breast_Confirmed_Biopsy PX070801100300 Confirmed by breast biopsy? 4 N/A
PX070801_Fibrocystic_Benign_Breast_Disease_History PX070801100100 Have you had any of these clinician-diagnosed illnesses? Fibrocystic/other benign breast disease? 4 N/A
PX070801_Fibrocystic_Benign_Breast_Disease_Year PX070801100200 Year of Diagnosis, Fibrocystic/other benign breast disease? 4 N/A
PX070801_Gallstones_Diagnosed PX070801170400 How diagnosed? 4 Variable Mapping
PX070801_Gallstones_History PX070801170100 Have you had any of these clinician-diagnosed illnesses? Gallstones? 4 N/A
PX070801_Gallstones_Symptoms PX070801170300 Did you have symptoms? 4 N/A
PX070801_Gallstones_Year PX070801170200 Year of Diagnosis, Gallstones? 4 N/A
PX070801_Gastric_Duodenal_Ulcer_History PX070801150100 Have you had any of these clinician-diagnosed illnesses? Gastric or duodenal ulcer? 4 N/A
PX070801_Gastric_Duodenal_Ulcer_Year PX070801150200 Year of Diagnosis, Gastric or duodenal ulcer? 4 N/A
PX070801_Gout_History PX070801330100 Have you had any of these clinician-diagnosed illnesses? Gout? 4 N/A
PX070801_Gout_Year PX070801330200 Year of Diagnosis, Gout? 4 N/A
PX070801_Graves_Disease_Hyperthyroidism_History PX070801300100 Have you had any of these clinician-diagnosed illnesses? Graves' Disease/Hyperthyroidism 4 N/A
PX070801_Graves_Disease_Hyperthyroidism_Year PX070801300200 Year of Diagnosis, Graves' Disease/Hyperthyroidism 4 N/A
PX070801_High_Blood_Pressure_HBP_History PX070801210100 Have you had any of these clinician-diagnosed illnesses? High blood pressure? 4 N/A
PX070801_High_Blood_Pressure_HBP_Year PX070801210200 Year of Diagnosis, High blood pressure? 4 N/A
PX070801_Hypothyroidism_History PX070801310100 Have you had any of these clinician-diagnosed illnesses? Hypothyroidism? 4 N/A
PX070801_Hypothyroidism_Year PX070801310200 Year of Diagnosis, Hypothyroidism? 4 N/A
PX070801_Kidney_Stones_History PX070801250100 Have you had any of these clinician-diagnosed illnesses? Kidney stones? 4 N/A
PX070801_Kidney_Stones_Year PX070801250200 Year of Diagnosis, Kidney stones? 4 N/A
PX070801_Melanoma_History PX070801070100 Have you had any of these clinician-diagnosed illnesses? Melanoma? 4 Variable Mapping
PX070801_Melanoma_Year PX070801070200 Year of Diagnosis, Melanoma? 4 Variable Mapping
PX070801_Multiple_Sclerosis_History PX070801260100 Have you had any of these clinician-diagnosed illnesses? Multiple Sclerosis? 4 N/A
PX070801_Multiple_Sclerosis_Year PX070801260200 Year of Diagnosis, Multiple Sclerosis? 4 N/A
PX070801_Myocardial_Infarction_Heart_Attack_History PX070801010100 Have you had any of these clinician-diagnosed illnesses? Myocardial infarction (heart attack)? 4 N/A
PX070801_Myocardial_Infarction_Heart_Attack_Year PX070801010200 Year of Diagnosis, Myocardial infarction (heart attack)? 4 N/A
PX070801_Other_Arthritis_History PX070801360100 Have you had any of these clinician-diagnosed illnesses? Other arthritis? 4 N/A
PX070801_Other_Arthritis_Year PX070801360200 Year of Diagnosis, Other arthritis? 4 N/A
PX070801_Other_Cancer_History PX070801120100 Have you had any of these clinician-diagnosed illnesses? Other cancer? 4 N/A
PX070801_Other_Cancer_Site PX070801120300 Specify site of other cancer. 4 N/A
PX070801_Other_Cancer_Year PX070801120200 Year of Diagnosis, Other cancer? 4 N/A
PX070801_Other_Major_Illness_Surgery_Date PX070801380300 Please specify Date. 4 N/A
PX070801_Other_Major_Illness_Surgery_History PX070801380100 Have you had any of these clinician-diagnosed illnesses? Other major illness or surgery? 4 N/A
PX070801_Other_Major_Illness_Surgery_Year PX070801380200 Year of Diagnosis, Other major illness or surgery? 4 N/A
PX070801_Pneumonia_History PX070801290100 Have you had any of these clinician-diagnosed illnesses? Pneumonia, x-ray confirmed? 4 N/A
PX070801_Pneumonia_Year PX070801290200 Year of Diagnosis, Pneumonia, x-ray confirmed? 4 N/A
PX070801_Premenstrual_Syndrome_PMS_History PX070801240100 Have you had any of these clinician-diagnosed illnesses? Premenstrual syndrome (PMS)? 4 N/A
PX070801_Premenstrual_Syndrome_PMS_Year PX070801240200 Year of Diagnosis, Premenstrual syndrome (PMS)? 4 N/A
PX070801_Rheumatoid_Arthritis_History PX070801350100 Have you had any of these clinician-diagnosed illnesses? Rheumatoid arthritis, doctor diagnosis? 4 N/A
PX070801_Rheumatoid_Arthritis_Year PX070801350200 Year of Diagnosis, Rheumatoid arthritis, doctor diagnosis? 4 N/A
PX070801_SLE_Systemic_Lupus_History PX070801340100 Have you had any of these clinician-diagnosed illnesses? SLE (systemic lupus)? 4 N/A
PX070801_SLE_Systemic_Lupus_Year PX070801340200 Year of Diagnosis, SLE (systemic lupus)? 4 N/A
PX070801_Squamous_Cell_Skin_Cancer_History PX070801090100 Have you had any of these clinician-diagnosed illnesses? Squamous cell skin cancer? 4 N/A
PX070801_Squamous_Cell_Skin_Cancer_Year PX070801090200 Year of Diagnosis, Squamous cell skin cancer? 4 N/A
PX070801_Stroke_CVA_History PX070801050100 Have you had any of these clinician-diagnosed illnesses? Stroke (CVA)? 4 N/A
PX070801_Stroke_CVA_Year PX070801050200 Year of Diagnosis, Stroke (CVA)? 4 N/A
PX070801_Thyroid_Nodule_Benign_History PX070801320100 Have you had any of these clinician-diagnosed illnesses? Thyroid nodule (benign)? 4 Variable Mapping
PX070801_Thyroid_Nodule_Benign_Year PX070801320200 Year of Diagnosis, Thyroid nodule (benign)? 4 N/A
PX070801_Transient_Ischemic_Attack_TIA_History PX070801040100 Have you had any of these clinician-diagnosed illnesses? Transient ischemic attack (TIA)? 4 N/A
PX070801_Transient_Ischemic_Attack_TIA_Year PX070801040200 Year of Diagnosis, Transient ischemic attack (TIA)? 4 N/A
PX070801_Ulcerative_Colitis_Crohns_History PX070801140100 Have you had any of these clinician-diagnosed illnesses? Ulcerative colitis/Crohn's? 4 N/A
PX070801_Ulcerative_Colitis_Crohns_Year PX070801140200 Year of Diagnosis, Ulcerative colitis/Crohn's? 4 N/A
PX070801_Uterine_Fibroids_Confirmed_Pelvic_Exam PX070801230300 Confirmed by pelvic exam? 4 N/A
PX070801_Uterine_Fibroids_Confirmed_Ultrasound_Hysterectomy PX070801230400 Confirmed by ultrasound/hysterectomy? 4 N/A
PX070801_Uterine_Fibroids_History PX070801230100 Have you had any of these clinician-diagnosed illnesses? Uterine fibroids-1st diagnosis? 4 N/A
PX070801_Uterine_Fibroids_Year PX070801230200 Year of Diagnosis, Uterine fibroids-1st diagnosis? 4 N/A
Research Domain Information
Measure Name:

Pre-existing Conditions Associated with Cancer

Release Date:

December 30, 2009

Definition

Measure to assess history of clinician-diagnosed illnesses

Purpose

History of clinician-diagnosed illnesses is important to investigate because some pre-existing conditions are associated with cancer. These pre-existing conditions can cause or be associated with secondary conditions that may themselves cause cancer.

Keywords

clinician-diagnosed Illnesses, diseases, conditions, pre-existing, cancer, The Nurses Health Study II (NHS), Cancer