PhenX Toolkit: Toolkit

Essential Protocols

Total Protocols in My Toolkit: 30
	Burden of Cancer on Employment Medical Expenditure Panel Survey (MEPS) Check all Current Age Add to Toolkit Remove
	Chronic Medical Conditions - Self Reported Self-Administered Comorbidity Questionnaire (SCQ) Remove
	Cognitive Function Patient-Reported Outcomes Measurement Information System (PROMIS®) - Cognitive Function v2.0 - Short Form 6a Remove
	Fear of Cancer Recurrence Fear of Cancer Recurrence (FCR7) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Financial Hardship Associated with Cancer Medical Expenditure Panel Survey (MEPS), Experiences with Cancer Self-Administered Questionnaire (SAQ), 2011 Remove
	Functional Performance Status Karnofsky Performance Status Scale (KPS) Check all Current Age Add to Toolkit Remove
	Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form) Remove
	Patient Experience with Cancer Care - Cancer Surgery Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Drug Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Radiation Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30) Check all Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Long-term Quality of Life Patient/Cancer Survivor Version (QOL-CSV) Check all Current Age Add to Toolkit Remove
	Spirituality in Chronic Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4)) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Supportive Care Needs - Cancer Supportive Care Needs Survey -Short Form 34 (SCNS-SF34) Remove
	Unmet Needs of Cancer Survivors Survivor Unmet Needs Survey (SF- SUNS) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Adoption of Genetic Services: Healthcare Settings Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning Remove
	Awareness of Pharmacogenomics Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120. Check all Current Age Add to Toolkit Remove
	Baseline Knowledge of Genomics University of North Carolina Genomic Knowledge Scale (UNC-GKS) Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Clinician Confidence in Returning Genetic Test Results Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire Remove
	Information Sources for Patients after Return of Results Information Seeking V2 from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) Check all Current Age Add to Toolkit Remove
	Organizational Readiness for Change Organizational Readiness for Implementing Change (ORIC) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS) Remove
	Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR) Remove
	Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS) Remove
	Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Program Evaluation: Patient Uptake of Genetic Services Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Regret about Healthcare Decisions Decision Regret Scale Check all Current Age Add to Toolkit Remove
	Relative Advantage of a Genomic Medicine Intervention over Current Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey Remove
	Sharing Genomic Information with Relatives Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results Check all Current Age Add to Toolkit Remove
	Understanding Health Implications of Genomics KnowGene Check all Annual Household Family Income and Number of People Supported Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
Total Protocols in My Toolkit: 30

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

My Toolkit