Social Determinants of Health Project and Working Group (2022)
During deliberations from the first SDoH WG, NIMHD and the wider NIH community identified additional areas for which standard measures would be useful. A list of 20 SDoH elements provided the basis for a charge to a second PhenX SDoH WG.
In 2021, the National Institute on Minority Health and Health Disparities (NIMHD) funded an administrative supplement to the PhenX project to expand the selection of high-quality standard measures related to SDoH for inclusion in the PhenX (consensus measures for Phenotypes and eXposures) Toolkit (www.phenxtoolkit.org). This expansion focused on adding additional high priority areas that were not already covered in the SDoH collection.
The second PhenX Social Determinants of Health Working Group added protocols to the existing collections and was composed of eight scientists with relevant expertise:
- Keith Norris, MD, PhD (Co-chair), University of California, Los Angeles
- Myles Cockburn, PhD (Co-chair), University of Southern California
- Keisha Bentley-Edwards, PhD, Duke University
- Denise Dillard, PhD, Washington State University; Southcentral Foundation
- Yochai Eisenberg, PhD, University of Illinois, Chicago
- Monik Jimenez, ScD, Harvard University
- Dinushika Mohottige, MD, Icahn School of Medicine at Mount Sinai
- Keshia Pollack Porter, PhD, John Hopkins University
Protocols added to the PhenX Toolkit
- Affordability Problems in Accessing Dental Care
- Affordability Problems in Accessing Prescriptions
- Discrimination in Health Care
- Family History of Incarceration
- Healthcare Communications
- Housing Instability Due to Affordability
- Internet Access
- Minimum Wage
- Neighborhood Walking and Biking Environment
- Perceptions of Housing Insecurity
- Physical Activity - Neighborhood Environment
- Racial/Ethnic Discrimination - Recent and Lifetime
- Religious Behaviors and Congregational Support
- Residential Concentrations of Income
- Water Access and Sanitation
PhenX SDoH Working Group Responsibilities
The goals of the PhenX SDoH WG were to:
- Identify and review well-established measurement protocols and instruments currently in use in the field
- Examine SDoH - related measurement protocols in the PhenX Toolkit to ensure that newly selected protocols complement existing Toolkit content
- Select up to 14 preliminary protocols to share with the research community and get feedback (community outreach)
- Suggest groups in the research community for the community outreach efforts
- Consider feedback from community outreach when deciding the high-priority SDoH protocols to be included in the Toolkit
- Present recommended protocols to the PhenX Steering Committee (SC) for approval
PhenX Social Determinants of Health Senior Management Team
| National Institute on Minority Health and Health Disparities (NIMHD) | |
|---|---|
| Eliseo Pérez-Stable, MD Director |
Nancy Jones, PhD Project Scientist |
| Vanessa Marshall, PhD Project Scientist |
Monica Webb Hooper, PhD Deputy Director |
| Rada Dagher, PhD, MPH Liaison |
Tilda Farhat, PhD Liaison |
| Gniesha Dinwiddie, PhD Liaison |
|
| National Human Genome Research Institute (NHGRI) | |
|---|---|
| Jyoti Dayal, MS PhenX Project Scientist and SC Liaison to the SDoH WG |
Stephanie Calluori, BA PhenX Project Analyst |
| Erin Ramos, PhD, MPH PhenX Project Advisor |
|
| RTI International | |
|---|---|
| Carol M. Hamilton, PhD Principal Investigator |
Cataia Ives, MS WG Manager |
| Tabitha Hendershot, BA Co-Investigator |
Deborah Maiese, MPA Consensus Coordinator |
| Michelle Krzyzanowski, PhD WG Supervisor |
Cindy Changar Project Manager |