Protocol - Sexual Orientation

Description

A multi-part question asking participants to describe their sexual orientation. Multiple response options are provided along with an open-ended option.

Specific Instructions

While the original protocol is intended for computer administration, the PhenX Steering Committee acknowledges these items would be acceptable for use in paper-pencil questionnaires.

Protocol

1a. Which of the following best represents how you think of yourself?

[ ] Gay

[ ] Lesbian

[ ] Straight; that is, not gay or lesbian, etc.

[ ] Bisexual

[ ] None of these describe me, and I’d like to see additional options

Branching logic: If ‘none of these describe me, and I’d like to see additional options’ selected:

1b. Are any of these a closer description of how you think of yourself?

[ ] Queer

[ ] Polysexual, omnisexual, sapiosexual or pansexual

[ ] Asexual

[ ] Two-spirit

[ ] Have not figured out or are in the process of figuring out your sexuality

[ ] Mostly straight, but sometimes attracted to people of your own sex

[ ] Do not think of yourself as having sexuality

[ ] Do not use labels to identity yourself

[ ] Don’t know the answer

[ ] No, I mean something else (optional free text) __________________

[ ] Prefer not to answer

Availability

Available

Download PDF

Personnel and Training Required

None

Equipment Needs

The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire."

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Self-administered or interviewer-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults aged 18 and older

Selection Rationale

This protocol was selected because it is both the most up-to-date and in use by the national All of Us research program.

Language

English, Other languages available at source

Standards

Standard	Name	ID	Source
caDSR Common Data Elements (CDE)	Person Biological Entity Sexual Orientation Code PCORnet CDM Sexual Orientation Code	6421669	CDE Browser

Derived Variables

None

Process and Review

Not applicable.

Protocol Name from Source

All of Us Research Program, Participant Provided Information (PPI), 2018

Source

All of Us Research Program Participant Provided Information (PPI) Version: December 17, 2018

General References

The Precision Medicine Initiative Cohort Program – Building a Research Foundation for 21st Century Medicine Precision Medicine Initiative (PMI) Working Group Report to the Advisory Committee to the Director, NIH September 17, 2015

Collins, F. S. and Varmus, H. (2015). A New Initiative on Precision Medicine. N Engl J Med, 372, 793-795

National Research Council. Toward precision medicine: building a knowledge network for biomedical research and a new taxonomy of disease. Washington, DC: National Academies Press, 2011 (http://www.nap.edu/catalog/13284/toward-precision-medicine-building-a-knowledge-network-for-biomedical-research).

Perron, T., Kartoz, C., Himelfarb, C., LGBTQ Youth Part 1. National Association of School Nurses, 2017 Mar. 32(2): 106-115.

Perron, T., Kartoz, C., Himelfarb, C. LGBTQ Part 2. National Association of School Nurses. 2017 Mar. 32(2): 116-121.

The GenIUSS Group. (2014). Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. J.L. Herman (Ed.). Los Angeles, CA: The Williams Institute.

Protocol ID

11701

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX011701_Sexual_Orientation_Description
	PX011701020100	Are any of these a closer description of how more you think of yourself? show less	N/A
PX011701_Sexual_Orientation_Description_Other
	PX011701020200	Are any of these a closer description of how more you think of yourself? Other show less	N/A
PX011701_Sexual_Orientation_Identity
	PX011701010000	Which of the following best represents how more you think of yourself? show less	N/A

Demographics

Measure Name

Sexual orientation

Release Date

June 4, 2019

Definition

An emotional, romantic, or sexual attraction to other people.

Purpose

To obtain a self-report of a person’s romantic attraction to other people, be it gay, lesbian, straight, bisexual, or something else.

Keywords

sexual orientation, sex, gender, LGBTQ, LGBTQIA, Gay, Lesbian, Bisexual, Intersex, Asexual, Queer, transgender, Questioning, Demographics-Populations with HD

Measure Protocols

Protocol ID	Protocol Name
11701	Sexual Orientation

Publications

There are no publications listed for this protocol.