Protocol - Sexual Orientation
A multi-part question asking participants to describe their sexual orientation. Multiple response options are provided along with an open-ended option.
While the original protocol is intended for computer administration, the PhenX Steering Committee acknowledges these items would be acceptable for use in paper-pencil questionnaires.
1a. Which of the following best represents how you think of yourself?
[ ] Gay
[ ] Lesbian
[ ] Straight; that is, not gay or lesbian, etc.
[ ] Bisexual
[ ] None of these describe me, and I’d like to see additional options
Branching logic: If ‘none of these describe me, and I’d like to see additional options’ selected:
1b. Are any of these a closer description of how you think of yourself?
[ ] Queer
[ ] Polysexual, omnisexual, sapiosexual or pansexual
[ ] Asexual
[ ] Two-spirit
[ ] Have not figured out or are in the process of figuring out your sexuality
[ ] Mostly straight, but sometimes attracted to people of your own sex
[ ] Do not think of yourself as having sexuality
[ ] Do not use labels to identity yourself
[ ] Don’t know the answer
[ ] No, I mean something else (optional free text) __________________
[ ] Prefer not to answer
Personnel and Training Required
The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire."
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Self-administered or interviewer-administered questionnaire
Adults aged 18 and older
This protocol was selected because it is both the most up-to-date and in use by the national All of Us research program.
English, Other languages available at source
|caDSR Common Data Elements (CDE)||Person Biological Entity Sexual Orientation Code PCORnet CDM Sexual Orientation Code||6421669||CDE Browser|
Process and Review
Protocol Name from Source
All of Us Research Program, Participant Provided Information (PPI), 2018
All of Us Research Program Participant Provided Information (PPI) Version: December 17, 2018
The Precision Medicine Initiative Cohort Program – Building a Research Foundation for 21st Century Medicine Precision Medicine Initiative (PMI) Working Group Report to the Advisory Committee to the Director, NIH September 17, 2015
Collins, F. S. and Varmus, H. (2015). A New Initiative on Precision Medicine. N Engl J Med, 372, 793-795
National Research Council. Toward precision medicine: building a knowledge network for biomedical research and a new taxonomy of disease. Washington, DC: National Academies Press, 2011 (http://www.nap.edu/catalog/13284/toward-precision-medicine-building-a-knowledge-network-for-biomedical-research).
Perron, T., Kartoz, C., Himelfarb, C., LGBTQ Youth Part 1. National Association of School Nurses, 2017 Mar. 32(2): 106-115.
Perron, T., Kartoz, C., Himelfarb, C. LGBTQ Part 2. National Association of School Nurses. 2017 Mar. 32(2): 116-121.
The GenIUSS Group. (2014). Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. J.L. Herman (Ed.). Los Angeles, CA: The Williams Institute.
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
|PX011701020100||Are any of these a closer description of how more||N/A|
|PX011701020200||Are any of these a closer description of how more||N/A|
|PX011701010000||Which of the following best represents how more||N/A|
June 4, 2019
An emotional, romantic, or sexual attraction to other people.
To obtain a self-report of a person’s romantic attraction to other people, be it gay, lesbian, straight, bisexual, or something else.
sexual orientation, sex, gender, LGBTQ, LGBTQIA, Gay, Lesbian, Bisexual, Intersex, Asexual, Queer, transgender, Questioning, Demographics-Populations with HD
|Protocol ID||Protocol Name|
There are no publications listed for this protocol.