Protocol - Ethnicity and Race
This protocol includes 2 questions that ask about ethnicity and race with answers that are multiple choice. For Ethnicity, the respondent can specify an ‘other’ ethnicity. For Race, the respondent can select one or more answer choice and write in their specific origin.
Open ended responses can pose challenges to analyzing and interpreting data. To assist with standardization of reporting, a list of countries is provided here for use with this protocol.
Person 1 refers to the respondent.
NOTE: Please answer BOTH Question 1 about Hispanic origin and Question 2 about race. For this census, Hispanic origins are not races.
1. Is Person 1 of Hispanic, Latino, or Spanish origin?
[ ] No, not of Hispanic, Latino, or Spanish origin
[ ] Yes, Mexican, Mexican Am., Chicano
[ ] Yes, Puerto Rican
[ ] Yes, Cuban
[ ] Yes, another Hispanic, Latino, or Spanish origin – Print, for example, Salvadoran, Dominican, Colombian, Guatemalan, Spaniard, Ecuadorian, etc. __________________ (Recommended specific choices)
2. What is person 1’s race? Mark one or more boxes AND print origins.
[ ] White – Print, for example, German, Irish, English, Italian, Lebanese, Egyptian, etc. ______________ (Recommended specific choices)
[ ] Black or African Am. – Print, for example, African American, Jamaican, Haitian, Nigerian, Ethiopian, Somali, etc. ______________(Recommended specific choices)
[ ] American Indian or Alaska Native – Print name of enrolled or principal tribe(s), for example, Navajo Nation, Blackfeet Tribe, Mayan, Aztec, Native Village of Barrow Inupiat Traditional Government, Nome Eskimo Community, etc. _____________ (Recommended specific choices)
[ ] Chinese
[ ] Filipino
[ ] Asian Indian
[ ] Vietnamese
[ ] Korean
[ ] Japanese
[ ] Other Asian – Print, for example, Pakistani, Cambodian, Hmong, etc. ____________ (Recommended specific choices)
[ ] Native Hawaiian
[ ] Samoan
[ ] Chamorro
[ ] Other Pacific Islander – Print, for example, Tongan, Fijian, Marshallese, etc. _____________ (Recommended specific choices)
[ ] Some other race – Print race of origin. _____________________
Protocol Name from Source
U.S. Census Bureau, Census 2020, Questionnaire
Personnel and Training Required
The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy
Adults 18 and older
|Common Data Elements (CDE)||Ethnic Group Category Text||2192217||CDE Browser|
|Common Data Elements (CDE)||Race Category Text||2192199||CDE Browser|
Process and Review
United States Census 2020 Questionnaire – questions 8 and 9
All of Us Research Program, Participant Provided Information (PPI), Version: December 17, 2018
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
Ethnicity and Race
August 1, 2020
This measure includes two items. The first asks if the person considers himself or herself to be Hispanic, Latino or Spanish and, if so, asks an additional question about his or her specific Hispanic origin is asked. One or more Hispanic origin categories may be selected.The second question asks about race, with multiple close-ended answer choices and optional write-in to provide more country of origin.Both questions ask for self-reported information.
Ethnicity is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., Dominican). Ethnicity is a social and epidemiological factor, and individuals of some ethnicity are at greater risk for disease. By capturing the ethnicity of respondents, the researcher will be able to identify those who are or are not of Hispanic origin and will be able to stratify the study population accordingly.Race is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., African Americans). Race is a social and epidemiological factor, and individuals of some races are at greater risk for certain diseases.
U.S. Census Bureau, Census 2020, All of Us, Demographics