Protocol - Migraine - Children
The Pediatric Migraine Disability Assessment (PedMIDAS) headache disability questionnaire is completed by the patient and his/her parent and is reviewed with the clinician or study staff. It captures the impact of headaches on school performance (three questions), activities at home (one question on homework or chores), and social and/or sports functions (two questions). The PedMIDAS is scored by summing the answers across the six questions. If a range is provided as an answer, either use the high end of the range or prompt for a single answer. The frequency and severity are not scored but can be used for clinical reference.
Pediatric Migraine Disability Assessment (PedMIDAS)
The following questions try to assess how much the headaches are affecting day-to-day activity. Your answers should be based on the last three months. There are no "right" or "wrong" answers so please put down your best guess.
1. How many full school days of school were missed in the last 3 months due to headaches?
2. How many partial days of school were missed in the last 3 months due to headaches (do not include full days counted in the first question)?
3. How many days in the last 3 months did you function at less than half your ability in school because of a headache (do not include days counted in the first two questions)?
4. How many days were you not able to do things at home (i.e., chores, homework, etc.) due to a headache?
5. How many days did you not participate in other activities due to headaches (i.e., play, go out, sports, etc.)?
6. How many days did you participate in these activities, but functioned at less than half your ability (do not include days counted in the 5th question)?
Total PedMIDAS Score
The PedMIDAS is scored by summing the answers across the 6 questions. If a range is provided as an answer, either use the high end of the range or prompt for a single answer. The frequency and severity are not scored but can be used for clinical reference.
PedMIDAS Score Range
0 to 10
Little to none
11 to 30
31 to 50
Greater than 50
2001, Children’s Hospital Medical CenterAll Rights Reserved
Protocol Name from Source:
The Pediatric Migraine Disability Assessment (PedMIDAS)
Personnel and Training Required
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Self- or proxy-administered questionnaire
Children and adolescents, ages 4-18
The Pediatric Migraine Disability Assessment (PedMIDAS) is a brief, valid, and reliable self-administered questionnaire that measures the impact of migraines on children and adolescents and can be used to monitor treatment.
|Common Data Elements (CDE)||Neurology Pediatric Migraine Disability Assessment Assessment Score||4924374||CDE Browser|
Process and Review
Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.
Guidance from ERP 4 included the following:
- No changes
Hershey, A. D., Powers, S. W., Vockell, A. L., LeCates, S., Kabbouche, M. A., & Maynard, M. K. (2001). PedMIDAS: Development of a questionnaire to assess disability of migraines in children. Neurology, 57(11), 2034-2039.
Hershey, A. D., Powers, S. W., Vockell, A. L., LeCates, S. L., Segers, A., & Kabbouche, M. A. (2004). Development of a patient-based grading scale for PedMIDAS. Cephalagia, 24(10), 844-849.
Heyer, G. L., Merison, K., Rose, S. C., Perkins, S. Q., Lee, J. M., & Stewart, W. C. (2014). PedMIDAS-based scoring underestimates migraine disability on non-school days. Headache, 54(6), 1048-1053.
Rapoff, M. A., Connelly, M., Bickel, J. L., Powers, S. W., Hershey, A. D., Allen, J. R., Karlson, C. W., Litzenburg, C. C., & Belmont, J. M. (2014). Headstrong intervention for pediatric migraine headache: a randomized clinical trial. Journal of Headache and Pain, 15, 12.
|Variable Name||Variable ID||Variable Description||Version||dbGaP Mapping|
|PX130502_MigrainePediatrics_Days_Unable_Function_AtHome||PX130502040000||How many days were you not able to do things more||N/A|
|PX130502_MigrainePediatrics_Days_Unable_Participate_InActivities||PX130502050000||How many days did you not participate in more||N/A|
|PX130502_MigrainePediatrics_Function_LessThan_Ability_InActivities||PX130502060000||How many days did you participate in these more||N/A|
|PX130502_MigrainePediatrics_Function_LessThan_Ability_Past3Months||PX130502030000||How many days in the last 3 months did you more||N/A|
|PX130502_MigrainePediatrics_Missed_Full_SchoolDays_Past3Months||PX130502010000||How many full school days of school were more||N/A|
|PX130502_MigrainePediatrics_Missed_Partial_SchoolDays_Past3Months||PX130502020000||How many partial days of school were missed more||N/A|
July 30, 2015
A questionnaire to assess migraines and headaches.
This measure is used to screen a general population for the presence of headaches and migraines and to assess some of the associated symptoms.
Neurology, headache, pain, sickle cell disease, SCD