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Protocol - Migraine - Children

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Description:

The Pediatric Migraine Disability Assessment (PedMIDAS) headache disability questionnaire is completed by the patient and his/her parent and is reviewed with the clinician or study staff. It captures the impact of headaches on school performance (three questions), activities at home (one question on homework or chores), and social and/or sports functions (two questions). The PedMIDAS is scored by summing the answers across the six questions. If a range is provided as an answer, either use the high end of the range or prompt for a single answer. The frequency and severity are not scored but can be used for clinical reference.

Protocol:

Pediatric Migraine Disability Assessment (PedMIDAS)

Headache Disability.

The following questions try to assess how much the headaches are affecting day-to-day activity. Your answers should be based on the last three months. There are no "right" or "wrong" answers so please put down your best guess.

1. How many full school days of school were missed in the last 3 months due to headaches?

_________

2. How many partial days of school were missed in the last 3 months due to headaches (do not include full days counted in the first question)?

_________

3. How many days in the last 3 months did you function at less than half your ability in school because of a headache (do not include days counted in the first two questions)?

_________

4. How many days were you not able to do things at home (i.e., chores, homework, etc.) due to a headache?

_________

5. How many days did you not participate in other activities due to headaches (i.e., play, go out, sports, etc.)?

_________

6. How many days did you participate in these activities, but functioned at less than half your ability (do not include days counted in the 5th question)?

_________

Total PedMIDAS Score

_________

Headache Frequency

_________

Headache Severity

_________

Scoring

The PedMIDAS is scored by summing the answers across the 6 questions. If a range is provided as an answer, either use the high end of the range or prompt for a single answer. The frequency and severity are not scored but can be used for clinical reference.

PedMIDAS Score Range

Disability Grade

0 to 10

Little to none

11 to 30

Mild

31 to 50

Moderate

Greater than 50

Severe

2001, Children’s Hospital Medical Center

All Rights Reserved

Protocol Name from Source:

The Pediatric Migraine Disability Assessment (PedMIDAS)

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self- or proxy-administered questionnaire

Life Stage:

Child, Adolescent

Participants:

Children and adolescents, ages 4-18

Specific Instructions:

None

Selection Rationale

The Pediatric Migraine Disability Assessment (PedMIDAS) is a brief, valid, and reliable self-administered questionnaire that measures the impact of migraines on children and adolescents and can be used to monitor treatment.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Neurology Pediatric Migraine Disability Assessment Assessment Score 4924374 CDE Browser
Derived Variables

None

Process and Review

Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from ERP 4 included the following:

  • No changes

Source

Hershey, A. D., Powers, S. W., Vockell, A. L., LeCates, S., Kabbouche, M. A., & Maynard, M. K. (2001). PedMIDAS: Development of a questionnaire to assess disability of migraines in children. Neurology, 57(11), 2034-2039.

General References

Hershey, A. D., Powers, S. W., Vockell, A. L., LeCates, S. L., Segers, A., & Kabbouche, M. A. (2004). Development of a patient-based grading scale for PedMIDAS. Cephalagia, 24(10), 844-849.

Heyer, G. L., Merison, K., Rose, S. C., Perkins, S. Q., Lee, J. M., & Stewart, W. C. (2014). PedMIDAS-based scoring underestimates migraine disability on non-school days. Headache, 54(6), 1048-1053.

Rapoff, M. A., Connelly, M., Bickel, J. L., Powers, S. W., Hershey, A. D., Allen, J. R., Karlson, C. W., Litzenburg, C. C., & Belmont, J. M. (2014). Headstrong intervention for pediatric migraine headache: a randomized clinical trial. Journal of Headache and Pain, 15, 12.

Protocol ID:

130502

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX130502_MigrainePediatrics_Days_Unable_Function_AtHome PX130502040000 How many days were you not able to do things at home (i.e., chores, homework, etc.) due to a headache? 4 N/A
PX130502_MigrainePediatrics_Days_Unable_Participate_InActivities PX130502050000 How many days did you not participate in other activities due to headaches (i.e., play, go out, sports, etc.)? 4 N/A
PX130502_MigrainePediatrics_Function_LessThan_Ability_InActivities PX130502060000 How many days did you participate in these activities, but functioned at less than half your ability (do not include days counted in the 5th question)? 4 N/A
PX130502_MigrainePediatrics_Function_LessThan_Ability_Past3Months PX130502030000 How many days in the last 3 months did you function at less than half your ability in school because of a headache (do not include days counted in the first two questions)? 4 N/A
PX130502_MigrainePediatrics_Headache_Frequency PX130502070000 Headache Frequency 4 N/A
PX130502_MigrainePediatrics_Headache_Severity PX130502080000 Headache Severity 4 N/A
PX130502_MigrainePediatrics_Missed_Full_SchoolDays_Past3Months PX130502010000 How many full school days of school were missed in the last 3 months due to headaches? 4 N/A
PX130502_MigrainePediatrics_Missed_Partial_SchoolDays_Past3Months PX130502020000 How many partial days of school were missed in the last 3 months due to headaches (do not include full days counted in the first question)? 4 N/A
Research Domain Information
Measure Name:

Migraine

Release Date:

July 30, 2015

Definition

A questionnaire to assess migraines and headaches.

Purpose

This measure is used to screen a general population for the presence of headaches and migraines and to assess some of the associated symptoms.

Keywords

Neurology, headache, pain, sickle cell disease, SCD