PhenX Toolkit: Domains


	#130401Epilepsy Screener - Adult Ottman Brief Epilepsy Screener - Self-reported Version
	#130402Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener - Proxy-reported Version
	#131101Executive Function
	#131102Executive Function - Child
	#131601Executive Function - Direct Assessment - Adolescent Trail Making Test (TMT) for Older Children
	#131602Executive Function - Direct Assessment - Adult The Trail Making Test
	#131501Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A)
	#131502Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®)
	#131503Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®)-Preschool
	#130701Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©)
	#130702Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ-3™)
	#130703Global Mental Status Screener - Older Children and Adolescents Children’s Global Assessment Scale (CGAS)
	#131201Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS)
	#131202Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire
	#131203Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire
	#130601History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID)
	#130301History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS)
	#130501Migraine - Adult Self-Administered Questionnaire for Migraine
	#130502Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS)
	#130202Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS)
	#130201Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score
	#131701Nonverbal Reasoning Raven’s Progressive Matrices
	#131901Parkinsons Disease Screener - Questionnaire
	#130102Parkinsons Disease Symptoms Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)
	#131301Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale
	#131801Spatial Reasoning - Adolescents and Adults Block Design Test subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV)
	#131401Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale
	#130801Verbal Memory - Adult Logical Memory subtest Wechsler Memory Scale®, Fourth Edition (WMS®-IV).
	#130802Verbal Memory - Child Verbal Memory Subscales of the Children’s Memory Scale (CMS)
	#130901Visual Memory - Adult Visual Reproductions subtest of the Wechsler Memory Scale® Fourth Edition (WMS®-IV)
	#130902Visual Memory - Child The Visual Memory subtest of the Children’s Memory Scale®
	#131001Working Memory - Adult Digit Span Subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV).
	#131002Working Memory - Child Attention and Concentration Subtests of the Children’s Memory Scale (CMS)

Release Date:

May 12, 2010

Scope of Domain:

Scope Elements	Final Measures To Toolkit
Alzheimer's and other dementias	Executive Function
Alzheimer's and other dementias	Global Mental Status Screener
Alzheimer's and other dementias	Verbal Memory
Alzheimer's and other dementias	Visual Memory
Alzheimer's and other dementias	Working Memory
Brain trauma	History of Head Trauma
Cerebral palsy	Gross Motor Function
Epilepsy	Epilepsy Screener
Migraine	Migraine Screener
Nerve conduction disorders	Clinical Neuropathy Assessment
Parkinson's and other movement disorders	Parkinsonism Symptoms
Restless legs syndrome	Symptoms of Restless Legs Syndrome
Stroke and cerebrovascular disease	History of Stroke - Ischemic Infarction and Hemorrhage
Tremor	Essential Tremor

Working Group Roster:

WG Members:

Jeffery Vance, MD, PhD, Chair University of Miami School of Medicine Miami, FL	Charles Michael Cotten, MD, MHS Duke University Department of Pediatrics Durham, NC
Katrina Gwinn Hardy, MD Baylor College of Medicine Department of Molecular and Human Genetics Houston, TX	Richard B. Lipton, MD Albert Einstein College of Medicine Montefiore Headache Unit Bronx, NY
Sudha Seshadri, MD Boston University Alzheimer's Disease Center Boston, MA	Annapumi Jayam Trouth, MD, FAAN Howard University Department of Neurology Washington, DC

SC Liaison, WG Manager and WG Supervisor:

Lindsay A. Farrer, PhD, SC Liaison Boston University Boston, MA	Tracey L. Grant, MS, WG Manager RTI International Statistics and Epidemiology Division Research Triangle Park, NC
Wayne Huggins, PhD, WG Supervisor RTI International Research Triangle Park, NC

Expert Review Panel 4 - Neurology, Psychiatric, and Psychosocial domains:

ERP Members:

Bernice Pescosolido, PhD, Co-Lead Indiana University at Bloomington Department of Sociology Bloomington, IN	Ruth Ottman, PhD, Co-Lead Columbia University New York, NY
Deborah Blacker, MD, ScD Harvard University Belmont, MA	Daniel D. Pine, MD National Institute of Mental Health (NIMH) Bethesda, MD
Prudence Fisher, PhD Columbia University New York, NY	Sudha Seshadri, MD Boston University Alzheimer's Disease Center Boston, MA
Chanita Hughes-Halbert, PhD Medical University of South Carolina Charleston, SC	Helen Tager-Flusberg, PhD Boston University Boston, MA

SC Liaison, ERP Manager and ERP Supervisor:

Lindsay A. Farrer, PhD, SC Liaison Boston University Boston, MA	Stacie White, BS, ERP Manager RTI International Research Triangle Park, NC
Wayne Huggins, PhD, ERP Supervisor RTI International Research Triangle Park, NC

Neurology Supplemental Information includes:

MRI Neuroimaging (ADNI)

Additional Information for Neurology Measures:

There is no additional information for this domain.

Protocol Name	Status	DCW	DD	DD Mapping
Epilepsy Screener - Adult	minor edits	DCW	N/A	N/A
Executive Function	minor edits	N/A	N/A	N/A
Executive Function - Child	minor edits	N/A	N/A	N/A
History of Head Trauma	minor edits	DCW	N/A	N/A
Neuropathy - Clinical Assessment	minor edits	DCW	N/A	N/A
Parkinsonism Symptoms	updated	DCW	DD	DD Mapping
Parkinsons Disease Symptoms	minor edits	DCW	N/A	N/A
Signs of Essential Tremor	minor edits	DCW	N/A	N/A
SI-MRI_Neuroimaging	retired	N/A	N/A	N/A

Research Domain - Neurology

Research Domains:

#130401Epilepsy Screener - Adult Ottman Brief Epilepsy Screener - Self-reported Version

#130402Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener - Proxy-reported Version

#131101Executive Function

#131102Executive Function - Child

#131601Executive Function - Direct Assessment - Adolescent Trail Making Test (TMT) for Older Children

#131602Executive Function - Direct Assessment - Adult The Trail Making Test

#131501Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A)

#131502Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®)

#131503Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®)-Preschool

#130701Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©)

#130702Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ-3™)

#130703Global Mental Status Screener - Older Children and Adolescents Children’s Global Assessment Scale (CGAS)

#131201Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS)

#131202Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

#131203Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

#130601History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID)

#130301History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS)

#130501Migraine - Adult Self-Administered Questionnaire for Migraine

#130502Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS)

#130202Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS)

#130201Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score

#131701Nonverbal Reasoning Raven’s Progressive Matrices

#131901Parkinsons Disease Screener - Questionnaire

#130102Parkinsons Disease Symptoms Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)

#131301Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale

#131801Spatial Reasoning - Adolescents and Adults Block Design Test subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV)

#131401Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale

#130801Verbal Memory - Adult Logical Memory subtest Wechsler Memory Scale®, Fourth Edition (WMS®-IV).

#130802Verbal Memory - Child Verbal Memory Subscales of the Children’s Memory Scale (CMS)

#130901Visual Memory - Adult Visual Reproductions subtest of the Wechsler Memory Scale® Fourth Edition (WMS®-IV)

#130902Visual Memory - Child The Visual Memory subtest of the Children’s Memory Scale®

#131001Working Memory - Adult Digit Span Subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV).

#131002Working Memory - Child Attention and Concentration Subtests of the Children’s Memory Scale (CMS)

Release Date:

Scope of Domain:

Working Group Roster:

Expert Review Panel 4 - Neurology, Psychiatric, and Psychosocial domains:

Neurology Supplemental Information includes:

Additional Information for Neurology Measures:

#130401Epilepsy Screener - Adult

Ottman Brief Epilepsy Screener - Self-reported Version

#130402Epilepsy Screener - Child/Proxy

Ottman Brief Epilepsy Screener - Proxy-reported Version

#131601Executive Function - Direct Assessment - Adolescent

Trail Making Test (TMT) for Older Children

#131602Executive Function - Direct Assessment - Adult

The Trail Making Test

#131501Executive Function - Questionnaire - Adult

Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A)

#131502Executive Function - Questionnaire - Children

Behavior Rating Inventory of Executive Function® (BRIEF®)

#131503Executive Function - Questionnaire - Preschool Children

The Behavior Rating Inventory of Executive Function® (BRIEF®)-Preschool

#130701Global Mental Status Screener - Adult

Montreal Cognitive Assessment (MOCA©)

#130702Global Mental Status Screener - Child

The Ages & Stages Questionnaires®, Third Edition (ASQ-3™)

#130703Global Mental Status Screener - Older Children and Adolescents

Children’s Global Assessment Scale (CGAS)

#131201Gross Motor Function - 2-4 Years Old

Gross Motor Function Classification System Family Report Questionnaire (GMFCS)

#131202Gross Motor Function - 4-6 Years Old

Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

#131203Gross Motor Function - 6-12 Years Old

Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

#130601History of Head Trauma

The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID)

#130301History of Stroke - Ischemic Infarction and Hemorrhage

Jackson Heart Study (JHS)

#130501Migraine - Adult

Self-Administered Questionnaire for Migraine

#130502Migraine - Children

The Pediatric Migraine Disability Assessment (PedMIDAS)

#130202Neuropathy - Autonomic Assessment - Adult

Survey of Autonomic Symptoms (SAS)

#130201Neuropathy - Clinical Assessment

Charcot-Marie-Tooth Neuropathy Score

#131701Nonverbal Reasoning

Raven’s Progressive Matrices

#130102Parkinsons Disease Symptoms

Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)

#131301Signs of Essential Tremor

Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale

#131801Spatial Reasoning - Adolescents and Adults

Block Design Test subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV)

#131401Symptoms of Restless Legs Syndrome

The Restless Legs Syndrome Rating Scale

#130801Verbal Memory - Adult

Logical Memory subtest Wechsler Memory Scale®, Fourth Edition (WMS®-IV).

#130802Verbal Memory - Child

Verbal Memory Subscales of the Children’s Memory Scale (CMS)

#130901Visual Memory - Adult

Visual Reproductions subtest of the Wechsler Memory Scale® Fourth Edition (WMS®-IV)

#130902Visual Memory - Child

The Visual Memory subtest of the Children’s Memory Scale®

#131001Working Memory - Adult

Digit Span Subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV).

#131002Working Memory - Child

Attention and Concentration Subtests of the Children’s Memory Scale (CMS)