PhenX Toolkit: Domains


	Epilepsy Screener - Adult Ottman Brief Epilepsy Screener - Self-reported Version	#130401
	Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener - Proxy-reported Version	#130402
	Executive Function	#131101
	Executive Function - Child	#131102
	Executive Function - Direct Assessment - Adolescent Trail Making Test (TMT) for Older Children	#131601
	Executive Function - Direct Assessment - Adult The Trail Making Test	#131602
	Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A)	#131501
	Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®)	#131502
	Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®)-Preschool	#131503
	Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©)	#130701
	Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ-3™)	#130702
	Global Mental Status Screener - Older Children and Adolescents Children’s Global Assessment Scale (CGAS)	#130703
	Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS)	#131201
	Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire	#131202
	Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire	#131203
	History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID)	#130601
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS)	#130301
	Migraine - Adult Self-Administered Questionnaire for Migraine	#130501
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS)	#130502
	Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS)	#130202
	Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score	#130201
	Nonverbal Reasoning Raven’s Progressive Matrices	#131701
	Parkinsons Disease Screener - Questionnaire	#131901
	Parkinsons Disease Symptoms Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)	#130102
	Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale	#131301
	Spatial Reasoning - Adolescents and Adults Block Design Test subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV)	#131801
	Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale	#131401
	Verbal Memory - Adult Logical Memory subtest Wechsler Memory Scale®, Fourth Edition (WMS®-IV).	#130801
	Verbal Memory - Child Verbal Memory Subscales of the Children’s Memory Scale (CMS)	#130802
	Visual Memory - Adult Visual Reproductions subtest of the Wechsler Memory Scale® Fourth Edition (WMS®-IV)	#130901
	Visual Memory - Child The Visual Memory subtest of the Children’s Memory Scale®	#130902
	Working Memory - Adult Digit Span Subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV).	#131001
	Working Memory - Child Attention and Concentration Subtests of the Children’s Memory Scale (CMS)	#131002

Release Date:

May 12, 2010

Scope of Domain:

Scope Elements	Final Measures To Toolkit
Alzheimer's and other dementias	Executive Function
Alzheimer's and other dementias	Global Mental Status Screener
Alzheimer's and other dementias	Verbal Memory
Alzheimer's and other dementias	Visual Memory
Alzheimer's and other dementias	Working Memory
Brain trauma	History of Head Trauma
Cerebral palsy	Gross Motor Function
Epilepsy	Epilepsy Screener
Migraine	Migraine Screener
Nerve conduction disorders	Clinical Neuropathy Assessment
Parkinson's and other movement disorders	Parkinsonism Symptoms
Restless legs syndrome	Symptoms of Restless Legs Syndrome
Stroke and cerebrovascular disease	History of Stroke - Ischemic Infarction and Hemorrhage
Tremor	Essential Tremor

Working Group Roster:

WG Members:

Jeffery Vance, MD, PhD, Chair University of Miami School of Medicine Miami, FL	Charles Michael Cotten, MD, MHS Duke University Department of Pediatrics Durham, NC
Katrina Gwinn Hardy, MD Baylor College of Medicine Department of Molecular and Human Genetics Houston, TX	Richard B. Lipton, MD Albert Einstein College of Medicine Montefiore Headache Unit Bronx, NY
Sudha Seshadri, MD Boston University Alzheimer's Disease Center Boston, MA	Annapumi Jayam Trouth, MD, FAAN Howard University Department of Neurology Washington, DC

SC Liaison, WG Manager and WG Supervisor:

Lindsay A. Farrer, PhD, SC Liaison Boston University Boston, MA	Tracey L. Grant, MS, WG Manager RTI International Statistics and Epidemiology Division Research Triangle Park, NC
Wayne Huggins, PhD, WG Supervisor RTI International Research Triangle Park, NC

Expert Review Panel 4 - Neurology, Psychiatric, and Psychosocial domains:

ERP Members:

Bernice Pescosolido, PhD, Co-Lead Indiana University at Bloomington Department of Sociology Bloomington, IN	Ruth Ottman, PhD, Co-Lead Columbia University New York, NY
Deborah Blacker, MD, ScD Harvard University Belmont, MA	Daniel D. Pine, MD National Institute of Mental Health (NIMH) Bethesda, MD
Prudence Fisher, PhD Columbia University New York, NY	Sudha Seshadri, MD Boston University Alzheimer's Disease Center Boston, MA
Chanita Hughes-Halbert, PhD Medical University of South Carolina Charleston, SC	Helen Tager-Flusberg, PhD Boston University Boston, MA

SC Liaison, ERP Manager and ERP Supervisor:

Lindsay A. Farrer, PhD, SC Liaison Boston University Boston, MA	Stacie White, BS, ERP Manager RTI International Research Triangle Park, NC
Wayne Huggins, PhD, ERP Supervisor RTI International Research Triangle Park, NC

Neurology Supplemental Information includes:

MRI Neuroimaging (ADNI)

Additional Information for Neurology Measures:

There is no additional information for this domain.

Protocol Name	Status	DCW	DD	DD Mapping
Epilepsy Screener - Adult	minor edits	DCW	N/A	N/A
Executive Function	minor edits	DCW	N/A	N/A
Executive Function - Child	minor edits	DCW	N/A	N/A
History of Head Trauma	minor edits	DCW	N/A	N/A
Neuropathy - Clinical Assessment	minor edits	DCW	N/A	N/A
Parkinsonism Symptoms	updated	DCW	DD	DD Mapping
Parkinsons Disease Symptoms	minor edits	DCW	N/A	N/A
Signs of Essential Tremor	minor edits	DCW	N/A	N/A
SI-MRI_Neuroimaging	retired	N/A	N/A	N/A

Research Domain - Neurology

Research Domains:

Epilepsy Screener - Adult Ottman Brief Epilepsy Screener - Self-reported Version

#130401

Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener - Proxy-reported Version

#130402

Executive Function

#131101

Executive Function - Child

#131102

Executive Function - Direct Assessment - Adolescent Trail Making Test (TMT) for Older Children

#131601

Executive Function - Direct Assessment - Adult The Trail Making Test

#131602

Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A)

#131501

Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®)

#131502

Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®)-Preschool

#131503

Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©)

#130701

Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ-3™)

#130702

Global Mental Status Screener - Older Children and Adolescents Children’s Global Assessment Scale (CGAS)

#130703

Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS)

#131201

Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

#131202

Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

#131203

History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID)

#130601

History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS)

#130301

Migraine - Adult Self-Administered Questionnaire for Migraine

#130501

Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS)

#130502

Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS)

#130202

Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score

#130201

Nonverbal Reasoning Raven’s Progressive Matrices

#131701

Parkinsons Disease Screener - Questionnaire

#131901

Parkinsons Disease Symptoms Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)

#130102

Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale

#131301

Spatial Reasoning - Adolescents and Adults Block Design Test subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV)

#131801

Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale

#131401

Verbal Memory - Adult Logical Memory subtest Wechsler Memory Scale®, Fourth Edition (WMS®-IV).

#130801

Verbal Memory - Child Verbal Memory Subscales of the Children’s Memory Scale (CMS)

#130802

Visual Memory - Adult Visual Reproductions subtest of the Wechsler Memory Scale® Fourth Edition (WMS®-IV)

#130901

Visual Memory - Child The Visual Memory subtest of the Children’s Memory Scale®

#130902

Working Memory - Adult Digit Span Subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV).

#131001

Working Memory - Child Attention and Concentration Subtests of the Children’s Memory Scale (CMS)

#131002

Release Date:

Scope of Domain:

Working Group Roster:

Expert Review Panel 4 - Neurology, Psychiatric, and Psychosocial domains:

Neurology Supplemental Information includes:

Additional Information for Neurology Measures:

Epilepsy Screener - Adult

Ottman Brief Epilepsy Screener - Self-reported Version

Epilepsy Screener - Child/Proxy

Ottman Brief Epilepsy Screener - Proxy-reported Version

Executive Function - Direct Assessment - Adolescent

Trail Making Test (TMT) for Older Children

Executive Function - Direct Assessment - Adult

The Trail Making Test

Executive Function - Questionnaire - Adult

Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A)

Executive Function - Questionnaire - Children

Behavior Rating Inventory of Executive Function® (BRIEF®)

Executive Function - Questionnaire - Preschool Children

The Behavior Rating Inventory of Executive Function® (BRIEF®)-Preschool

Global Mental Status Screener - Adult

Montreal Cognitive Assessment (MOCA©)

Global Mental Status Screener - Child

The Ages & Stages Questionnaires®, Third Edition (ASQ-3™)

Global Mental Status Screener - Older Children and Adolescents

Children’s Global Assessment Scale (CGAS)

Gross Motor Function - 2-4 Years Old

Gross Motor Function Classification System Family Report Questionnaire (GMFCS)

Gross Motor Function - 4-6 Years Old

Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

Gross Motor Function - 6-12 Years Old

Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

History of Head Trauma

The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID)

History of Stroke - Ischemic Infarction and Hemorrhage

Jackson Heart Study (JHS)

Migraine - Adult

Self-Administered Questionnaire for Migraine

Migraine - Children

The Pediatric Migraine Disability Assessment (PedMIDAS)

Neuropathy - Autonomic Assessment - Adult

Survey of Autonomic Symptoms (SAS)

Neuropathy - Clinical Assessment

Charcot-Marie-Tooth Neuropathy Score

Nonverbal Reasoning

Raven’s Progressive Matrices

Parkinsons Disease Symptoms

Movement Disorder Society United Parkinson’s Disease Rating Scale (MDS-UPDRS)

Signs of Essential Tremor

Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale

Spatial Reasoning - Adolescents and Adults

Block Design Test subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV)

Symptoms of Restless Legs Syndrome

The Restless Legs Syndrome Rating Scale

Verbal Memory - Adult

Logical Memory subtest Wechsler Memory Scale®, Fourth Edition (WMS®-IV).

Verbal Memory - Child

Verbal Memory Subscales of the Children’s Memory Scale (CMS)

Visual Memory - Adult

Visual Reproductions subtest of the Wechsler Memory Scale® Fourth Edition (WMS®-IV)

Visual Memory - Child

The Visual Memory subtest of the Children’s Memory Scale®

Working Memory - Adult

Digit Span Subtest of the Wechsler Adult Intelligence Scale®, Fourth Edition (WAIS®-IV).

Working Memory - Child

Attention and Concentration Subtests of the Children’s Memory Scale (CMS)