Protocol - Personal History of Type I and Type II Diabetes
Description
These interviewer-administered questions from the Multi-Ethnic Study of Arthrosclerosis (MESA) ascertain whether an individual has ever been told by a doctor or health care professional that he or she has diabetes.
Specific Instructions
The following was taken from a stem question that captures more than just a personal history of diabetes. The Diabetes Working Group (WG) recommends removing "one of the following" from the initial question so that the question is "Has your doctor or health care professional told you that you had:" The Diabetes WG refers users to the Female Protocol of the Reproductive History measure for more questions on pregnancy history related to gestational diabetes.
The Expert Review Panel suggests that a question is asked about history of hospitalization for diabetes - ketoacidosis to help differentiate between type 1 diabetes mellitus and type 2 diabetes mellitus.
Availability
Protocol
Has your doctor or health care professional told you that you had one of the following:
1. Diabetes (sugar in blood)
1 [ ] Yes
0 [ ] No
9 [ ] Don’t Know
IF YES:
a. Are you taking medicine for this?
1 [ ] Yes
0 [ ] No
9 [ ] Don’t Know
If Yes to a
[ ] Insulin
[ ] Pills
IF YES:
b. At what age was this first treated?
|__|__|__|
9 [ ] Don’t Know
c. Was insulin your first diabetes medicine?
1 [ ] Yes
0 [ ] No
9 [ ] Don’t Know
d. For Women: did diabetes occur ONLY during Pregnancy?
1 [ ] Yes
0 [ ] No
9 [ ] Don’t Know
Personnel and Training Required
The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews. The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.
Equipment Needs
These questions can be administered in a computerized or non-computerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Interviewer-administered questionnaire
Lifestage
Adult, Senior
Participants
An individual aged 18 or older. The protocol can also be administered to a child through an adult proxy.
Selection Rationale
The Multi-Ethnic Study of Arthrosclerosis (MESA) protocol was vetted against similar protocols and chosen because it captures age of diagnosis, whether the respondent is taking medication for diabetes, and whether the diagnosis was just during pregnancy (history of gestational diabetes mellitus [GDM]).
Language
Chinese, English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Logical Observation Identifiers Names and Codes (LOINC) | Pers hx type 1-2 diabetes proto | 62797-6 | LOINC |
| Human Phenotype Ontology | Diabetes Mellitus | HP:0000819 | HPO |
| caDSR Form | PhenX PX140501 - Personal History Of Type 1 And Type 2 Diabetes | 6169060 | caDSR Form |
Derived Variables
None
Process and Review
The Expert Review Panel #1 reviewed the measures in the Anthropometrics, Diabetes, Physical Activity and Physical Fitness, and Nutrition and Dietary Supplements domains.
Guidance from the ERP includes:
• Revised descriptions of measure
Back-compatible: no changes to Data Dictionary
Previous version in Toolkit archive (link)
Protocol Name from Source
Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History, 2001
Source
2001 Multi-Ethnic Study of Arthrosclerosis (MESA), Exam 1, Medical History
General References
None
Protocol ID
140501
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX140501_Diabetes | ||||
| PX140501010000 | Has your doctor or health care professional more | N/A | ||
| PX140501_Diabetes_Age | ||||
| PX140501010200 | IF YES: At what age was this first treated? | N/A | ||
| PX140501_Diabetes_Age_Coded | ||||
| PX140501010201 | IF YES: At what age was this first treated? | N/A | ||
| PX140501_Diabetes_Insulin | ||||
| PX140501010300 | Was insulin your first diabetes medicine? | Variable Mapping | ||
| PX140501_Diabetes_Medicine | ||||
| PX140501010100 | IF YES: Are you taking medicine for this? | N/A | ||
| PX140501_Diabetes_Medicine_Type | ||||
| PX140501010101 | If Yes | N/A | ||
| PX140501_Diabetes_Women_Pregnancy | ||||
| PX140501010400 | For Women: did diabetes occur ONLY during more | N/A | ||
Measure Name
Personal History of Type I and Type II Diabetes
Release Date
May 10, 2010
Definition
A questionnaire to determine a respondent’s history of type 1 or type 2 diabetes.
Purpose
This measure can be used to stratify a study population into those with diabetes and those without diabetes.
Keywords
diabetes, MESA
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 140501 | Personal History of Type I and Type II Diabetes |
Publications
Juan, J., et al. (2017) Joint Effects of PON1 Polymorphisms and Vegetable Intake on Ischemic Stroke: A Family-Based Case Control Study. Int J Mol Sci. 2017 December; 18(12): E2652. doi: 10.3390/ijms18122652