Protocol - Disparate Health Care Quality

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A protocol to examine the perception of prejudice, stereotyping, and discrimination in clinical encounters and experience

Specific Instructions

Not applicable




Was there ever a time when you would have gotten better medical care if you had belonged to a different race or ethnic group?

01[ ]YES

02[ ]NO



Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews. The interviewer should be trained to prompt respondents further if a “don’t know” response is provided.

Equipment Needs

The PhenX Working Group acknowledges that these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer or handheld computer to administer a computer-assisted questionnaire.

Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire




Adults aged 18 or older

Selection Rationale

The California Health Interview Survey (CHIS) question allows a binary measurement of perceived discrimination that can be aggregated at a community level to determine whether there are different levels of perceived health care discrimination across racial groups.


Chinese, English, Spanish, Other languages available at source

Derived Variables


Process and Review

Not applicable

Protocol Name from Source

California Health Interview Survey (CHIS), 2017


UCLA Center for Health Policy Research. (2019, October 2). California Health Interview Survey: CHIS 2017 Adult Questionnaire, question QA17_DM1 [DMC8] (version 2.20). Los Angeles, CA. 

General References

Abramson, C. M., Hashemi, M., & Sánchez-Jankowski, M. (2015). Perceived discrimination in U.S. healthcare: Charting the effects of key social characteristics within and across racial groups. Preventive Medicine Reports, 2, 615–621.

Institute of Medicine (IOM). (2011). The future of nursing: Leading change, advancing health. Washington, DC: National Academies Press.

Schulson, L. B., Paasche-Orlow, M. K., Xuan, Z., & Fernandez, A. (2019). Changes in perceptions of discrimination in health care in California, 2003 to 2017. JAMA Network Open, 2(7), e196665.

Protocol ID


Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX280101010000 Was there ever a time when you would have more
gotten better medical care if you had belonged to a different race or ethnic group? show less
Individual Social Determinants of Health
Measure Name

Disparate Health Care Quality

Release Date

May 11, 2020


Disparate health care quality is defined as differences in the process and quality of health care between two groups with equal access to care yet different social standing that cannot be explained by patient preferences, appropriateness, or clinical need.


By recognizing the underlying causes of socially based disparities in health care process and health care outcomes, actions can be taken to reduce the disparities.


California Health Interview Survey, CHIS, health care, Health Disparities, Perceived Discrimination, Access to Health Care

Measure Protocols
Protocol ID Protocol Name
280101 Disparate Health Care Quality

There are no publications listed for this protocol.