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Protocol - Patient Satisfaction with Genetic Counseling

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Description

The Genetic Counseling Satisfaction Scale (GCSS) is a 6-item, 5-point Likert scale used to assess patient satisfaction with genetic counseling. 

Specific Instructions

This scale should only be administered after a patient has met with a genetic counselor and discussed the results of genetic testing (e.g., a BRCA test for breast and ovarian cancer risk).

Protocol

1. My genetic counselor seemed to understand the stresses I was facing...

1[ ]Strongly disagree

2[ ]Disagree somewhat

3[ ]Uncertain

4[ ]Agree somewhat

5[ ]Agree strongly

2. My genetic counselor helped me to identify what I needed to know to make decisions about what could happen to me…

1[ ]Strongly disagree

2[ ]Disagree somewhat

3[ ]Uncertain

4[ ]Agree somewhat

5[ ]Agree strongly

3. I felt better about my health after meeting with my genetic counselor…

1[ ]Strongly disagree

2[ ]Disagree somewhat

3[ ]Uncertain

4[ ]Agree somewhat

5[ ]Agree strongly

4. The genetic counseling session was about the right length of time I needed….

1[ ]Strongly disagree

2[ ]Disagree somewhat

3[ ]Uncertain

4[ ]Agree somewhat

5[ ]Agree strongly

5. My genetic counselor was truly concerned about my well-being…

1[ ]Strongly disagree

2[ ]Disagree somewhat

3[ ]Uncertain

4[ ]Agree somewhat

5[ ]Agree strongly

6. The genetic counseling session was valuable to me…

1[ ]Strongly disagree

2[ ]Disagree somewhat

3[ ]Uncertain

4[ ]Agree somewhat

5[ ]Agree strongly

Protocol Name from Source

Genetic Counseling Satisfaction Scale (GCSS)

Availability

Available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage

Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy

Participants

Adults, age 18 years and older

Selection Rationale

The Genetic Counseling Satisfaction Scale (GCSS) is widely used and often reported—and, therefore, allows for comparison. It is also freely available.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Genomic Medicine Implementation Genetic Counseling Satisfaction Scale Assessment Scale 7409073 CDE Browser
Derived Variables

None

Process and Review

Not applicable

Source

DeMarco, T. A., Peshkin, B. N., Mars, B. D., & Tercyak, K. P. (2004). Patient satisfaction with cancer genetic counseling: A psychometric analysis of the Genetic Counseling Satisfaction Scale. Journal of genetic counseling, 13(4), 293–304.  

General References

Buchanan, A. H., Datta, S. K., Skinner, C. S., Hollowell, G. P., Beresford, H. F., Freeland, T., Rogers, B., Boling, J., Marcom, P. K., Adams, M. B. (2015). Randomized trial of telegenetics vs. in-person cancer genetic counseling: Cost, patient satisfaction and attendance. Journal of Genetic Counseling, 24(6), 961–970.

Tercyak, K. P., Demarco, T. A., Mars, B. D., & Peshkin, B. N. (2004). Women’s satisfaction with genetic counseling for hereditary breast-ovarian cancer: Psychological aspects. American Journal of Medical Genetics Part A, 131(1), 36–41.

Protocol ID

311001

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
Genomic Medicine Implementation
Measure Name

Patient Satisfaction with Genetic Counseling

Release Date

September 10, 2020

Definition

A scale used to determine how satisfied a person is with his or her genetic counseling. 

Purpose

Health care organizations and providers can use this scale to determine if their genetic counseling met patient expectations and, if necessary, to determine how to improve the services.

Keywords

Genetic counseling, genetic testing, genomic testing, satisfaction, scale, Genetic Counseling Satisfaction Scale, GCSS