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Research Domain - Genomic Medicine Implementation

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Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning
#310201

Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120.
#310301

University of North Carolina Genomic Knowledge Scale (UNC-GKS)
#310401

Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire
#310501

Information Seeking V2 from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results)
#310601

Organizational Readiness for Implementing Change (ORIC)
#310701

Genomics Outcome Scale (GOS)
#310801

Feelings About genomiC Testing Results (FACToR)
#310901

Genetic Counseling Satisfaction Scale (GCSS)
#311001

Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey
#311101

Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning
#311201

Decision Regret Scale
#311301

Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey
#311401

Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results
#311501

KnowGene
#311601
Release Date:

September 10, 2020

Scope of Domain:
Scope Elements Final Measures To Toolkit
Change in Management and Treatment - PGx based drug selection/dosing Awareness of Pharmacogenomics
Genomic Knowledge and Education - Patient & Provider Baseline Knowledge of Genomics
Genomic Knowledge and Education - Patient & Provider Understanding of Health Implications of Genomics
Ethical Legal Social Implications (ELSI) Regret about Healthcare Decisions
Implementation Science - Baseline Organizational Readiness for Change
Implementation Science - Baseline Perceived Compatibility with Current Clinical Practice
Implementation Science - Baseline Relative Advantage of a Genomic Medicine Intervention over Current Practice
Implementation Science - Follow-up Adoption of Genetic Services: Healthcare Settings
Implementation Science - Follow-up Program Evaluation: Patient Uptake of Genetic Services
Patient Outcomes Patient Empowerment After Genetic Services and Counseling - 6 item
Patient Outcomes Patient Response to Genetic Testing
Patient Outcomes Patient Satisfaction with Genetic Counseling
Return of Results - Family Communication Communication with Relatives about Genomic Information
Return of Results - Information Seeking Information Sources for Patients After Return of Results
Return of Results - to Providers Clinician Confidence in Returning Genetic Test Results
Working Group Roster:

WG Members:

Wendy Chung, MD, PhD, Co-Chair
Columbia University
New York, NY
Kyle Brothers, MD, PhD, Co-Chair
University of Louisville
Louisville, KY
Angela Bradbury, MD
University of Pennsylvania
Philadelphia, PA
Sirisak Chanprasert, MD
University of Washington
Seattle, WA
Lori Orlando, MD
Duke University
Durham, NC
Ali Torkamani, PhD
Scripps Research Institute
La Jolla, SD
Heather Zierhut, PhD, MS, CGC
University of Minnesota
Saint Paul, MN

SC Liaison, WG Manager and WG Supervisor:

Marylyn D. Ritchie, PhD, SC Liaison
University of Pennsylvania
Philadelphia, PA
Jennifer Schoden, BA, WG Manager
RTI International
Research Triangle Park, NC
Michael Phillips, MS, WG Supervisor
RTI International
Research Triangle Park, NC
Genomic Medicine Implementation Supplemental Information includes:
Additional Information for Genomic Medicine Implementation Measures:

There is no additional information for this domain.

Protocol Name Status DCW DD DD Mapping