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Research Domain - Genomic Medicine Implementation

Select	Protocol	ID
	Adoption of Genetic Services: Healthcare Settings Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) Checklist for Study or Intervention Planning	#310201
	Awareness of Pharmacogenomics Daud, A. N. A., et al. (2017). Knowledge and attitude regarding pharmacogenetics among formerly pregnant women in the Netherlands and their interest in pharmacogenetic research. BMC Pregnancy Childbirth, 17(1), 120.	#310301
	Baseline Knowledge of Genomics University of North Carolina Genomic Knowledge Scale (UNC-GKS)	#310401
	Clinician Confidence in Returning Genetic Test Results Clinical Sequencing Evidence-Generating Research Consortium (CSER) Provider Measures - Post-Return of Results Follow-up #1 & Electronic Medical Records and Genomics (eMERGE) Post-Return of Results Provider Follow-up Questionnaire	#310501
	Information Sources for Patients after Return of Results Information Seeking V2 from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results)	#310601
	Organizational Readiness for Change Organizational Readiness for Implementing Change (ORIC)	#310701
	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS) Genomics Outcome Scale (GOS)	#310801
	Patient Response to Genetic Testing Feelings About genomiC Testing Results (FACToR)	#310901
	Patient Satisfaction with Genetic Counseling Genetic Counseling Satisfaction Scale (GCSS)	#311001
	Perceived Compatibility with Current Clinical Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey	#311101
	Program Evaluation: Patient Uptake of Genetic Services Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning	#311201
	Regret about Healthcare Decisions Decision Regret Scale	#311301
	Relative Advantage of a Genomic Medicine Intervention over Current Practice Implementing GeNomics In pracTicE (IGNITE) Pre-implementation Provider Survey	#311401
	Sharing Genomic Information with Relatives Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results	#311501
	Understanding Health Implications of Genomics KnowGene	#311601

Release Date:

September 10, 2020

Scope of Domain:

Scope Elements	Final Protocols To Toolkit (15)
Change in Management and Treatment - PGx based drug selection/dosing	Awareness of Pharmacogenomics
Genomic Knowledge and Education - Patient & Provider	Baseline Knowledge of Genomics
Genomic Knowledge and Education - Patient & Provider	Understanding of Health Implications of Genomics
Ethical Legal Social Implications (ELSI)	Regret about Healthcare Decisions
Implementation Science - Baseline	Organizational Readiness for Change
Implementation Science - Baseline	Perceived Compatibility with Current Clinical Practice
Implementation Science - Baseline	Relative Advantage of a Genomic Medicine Intervention over Current Practice
Implementation Science - Follow-up	Adoption of Genetic Services: Healthcare Settings
Implementation Science - Follow-up	Program Evaluation: Patient Uptake of Genetic Services
Patient Outcomes	Patient Empowerment After Genetic Services and Counseling - 6 item
Patient Outcomes	Patient Response to Genetic Testing
Patient Outcomes	Patient Satisfaction with Genetic Counseling
Return of Results - Family Communication	Communication with Relatives about Genomic Information
Return of Results - Information Seeking	Information Sources for Patients After Return of Results
Return of Results - to Providers	Clinician Confidence in Returning Genetic Test Results

Working Group Roster:

WG Members:

Wendy Chung, MD, PhD, Co-Chair Columbia University New York, NY	Kyle Brothers, MD, PhD, Co-Chair University of Louisville Louisville, KY
Angela Bradbury, MD University of Pennsylvania Philadelphia, PA	Sirisak Chanprasert, MD University of Washington Seattle, WA
Lori Orlando, MD Duke University Durham, NC	Ali Torkamani, PhD Scripps Research Institute La Jolla, SD
Heather Zierhut, PhD, MS, CGC University of Minnesota Saint Paul, MN

SC Liaison, WG Manager and WG Supervisor:

Marylyn D. Ritchie, PhD, SC Liaison University of Pennsylvania Philadelphia, PA	Jennifer Schoden, BA, WG Manager RTI International Research Triangle Park, NC
Michael Phillips, MS, WG Supervisor RTI International Research Triangle Park, NC

Genomic Medicine Implementation Supplemental Information includes:

Additional Information for Genomic Medicine Implementation Measures:

There is no additional information for this domain.

Select	Measure Name	Protocols
	Adoption of Genetic Services: Healthcare Settings	Adoption of Genetic Services: Healthcare Settings
	Awareness of Pharmacogenomics	Awareness of Pharmacogenomics
	Baseline Knowledge of Genomics	Baseline Knowledge of Genomics
	Clinician Confidence in Returning Genetic Test Results	Clinician Confidence in Returning Genetic Test Results
	Information Sources for Patients after Return of Results	Information Sources for Patients after Return of Results
	Organizational Readiness for Change	Organizational Readiness for Change
	Patient Empowerment After Genetic Services and Counseling	Patient Empowerment After Genetic Services and Counseling - Genomics Outcome Scale (GOS)
	Patient Response to Genetic Testing	Patient Response to Genetic Testing
	Patient Satisfaction with Genetic Counseling	Patient Satisfaction with Genetic Counseling
	Perceived Compatibility with Current Clinical Practice	Perceived Compatibility with Current Clinical Practice
	Program Evaluation: Patient Uptake of Genetic Services	Program Evaluation: Patient Uptake of Genetic Services
	Regret about Healthcare Decisions	Regret about Healthcare Decisions
	Relative Advantage of a Genomic Medicine Intervention over Current Practice	Relative Advantage of a Genomic Medicine Intervention over Current Practice
	Communication with Relatives about Genetic Information	Sharing Genomic Information with Relatives
	Understanding Health Implications of Genomics	Understanding Health Implications of Genomics