Loading…

Protocol - Financial Hardship Associated with Cancer

Add to My Toolkit
Description

This self-administered subset of the questionnaire collects data on the effects of cancer and cancer treatments on the lives of those who have been diagnosed with cancer. These questions focus on different kinds of financial hardship on the participant and participant’s family members associated with cancer. 

Specific Instructions

None

Protocol

The next questions ask about different kinds of financial burden you or your family may have experienced because of your cancer, its treatment, or the lasting effects of that treatment.

Please continue to think about all the time from when you were first diagnosed with cancer to now.

If you have had more than one type of cancer please think about your experiences across all of them. If that is not possible, please focus on the most severe, and if they were equally severe, please focus on the most recent.

1. Have you or has anyone in your family had to borrow money or go into debt because of your cancer, its treatment, or the lasting effects of that treatment?

[ ] Yes

[ ] No → GO TO Question 4

2. How much did you or your family borrow, or how much debt did you incur because of your cancer, its treatment, or the lasting effects of that treatment?

[ ] Less than $10,000

[ ] $10,000 to $24,999

[ ] $25,000 to $49,999

[ ] $50,000 to $74,999

[ ] $75,000 to $99,999

[ ] $100,000 or more

3. Did you or your family ever file for bankruptcy because of your cancer, its treatment, or the lasting effects of that treatment?

[ ] Yes

[ ] No

4. Have you or your family had to make any other kinds of financial sacrifices because of your cancer, its treatment, or the lasting effects of that treatment?

[ ] Yes

[ ] No → GO TO Question 5

     Please describe:

 

 

 

 

 

 

5. Have you ever worried about having to pay large medical bills related to your cancer?

[ ] Yes

[ ] No

6. Please think about medical care visits for cancer, its treatment, or the lasting effects of that treatment. Have you ever been unable to cover your share of the cost of those visits?

[ ] Yes

[ ] No

Availability

Available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage

Adult

Participants

18 years or older

Selection Rationale

Research using the MEPS Experiences with Cancer Survivorship Section 6 can be used to understand financial hardship as a result of cancer treatment.

Language

English, Spanish

Standards
StandardNameIDSource
caDSR Common Data Elements (CDE) Cancer Outcome financial hardship Medical Expenditure Panel Survey Assessment Text 7533656 CDE Browser
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Medical Expenditure Panel Survey (MEPS), Experiences with Cancer Self-Administered Questionnaire (SAQ), 2011

Source

The Agency for Healthcare Research and Quality and The Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services.2011. Medical Expenditure Panel Survey Experiences with Cancer Supplemental Questionnaire, Section 6 (71 – 76).

General References

Yabroff, K. R., Dowling, E., Rodriguez, J., Ekwueme, D. U., Meissner, H., Soni, A., Virgo, K. S. (2012). The Medical Expenditure Panel Survey (MEPS) experiences with cancer survivorship supplement. Journal of cancer survivorship : research and practice, 6(4), 407–419. doi:10.1007/s11764-012-0221-2

Mariotto AB, Yabroff KR, Shao Y, Feuer EJ, Brown ML. Projections of the cost of cancer care in the United States: 2010–2020. J Natl Cancer Inst. 2011;103(2):117–28. [PubMed], [Google Scholar]

Guy GP, Ekwueme DU, Yabroff KR, et al. : Economic burden of cancer survivorship among adults in the United States. J. Clin Oncol 31 (30); 3749-57, 2013. [PubMed].

Guy GP, Yabroff KR, Ekwueme DU, et al.: Estimating the health and economic burden of cancer among these diagnosed as adolescents and young adults. Health Aff (Millwood) 33 (6): 1024-31, 2014 [PubMed].

Protocol ID

320501

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
Cancer Outcomes and Survivorship
Measure Name

Financial Hardship Associated with Cancer

Release Date

December 17, 2020

Definition

Not having health insurance or having a lot of costs for medical care not covered by health insurance can cause financial problems and may lead to debt and bankruptcy. Financial toxicity can also affect a patient’s quality of life and access to medical care. For example, a patient may not take a prescription medicine or may avoid going to the doctor to save money. Cancer patients are more likely to have financial toxicity than people without cancer. Also called economic burden, economic hardship, financial burden, financial distress, financial hardship, and financial stress from NCI dictionary.

Purpose

Questions ask about different kinds of financial burden you or your family mayhave experienced because of your cancer, its treatment, or the lasting effects of thattreatment.

Keywords

Cancer outcomes and survivorship, financial toxicity, financial burden, financial distress, hardship, financial hardship, economic burden, economic hardship, finances, MEPS, Medical Expenditure Panel Survey, self-administered survey