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Research Domain - Cancer Outcomes and Survivorship

Select	Protocol	ID
	Burden of Cancer on Employment Medical Expenditure Panel Survey (MEPS)	#320101
	Chronic Medical Conditions - Self Reported Self-Administered Comorbidity Questionnaire (SCQ)	#320201
	Cognitive Function Patient-Reported Outcomes Measurement Information System (PROMIS®) - Cognitive Function v2.0 - Short Form 6a	#320301
	Fear of Cancer Recurrence Fear of Cancer Recurrence (FCR7)	#320401
	Financial Hardship Associated with Cancer Medical Expenditure Panel Survey (MEPS), Experiences with Cancer Self-Administered Questionnaire (SAQ), 2011	#320501
	Functional Performance Status Karnofsky Performance Status Scale (KPS)	#320601
	Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)	#320701
	Patient Experience with Cancer Care - Cancer Surgery Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery	#320801
	Patient Experience with Cancer Care - Drug Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy	#320802
	Patient Experience with Cancer Care - Radiation Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy	#320803
	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30)	#320901
	Quality of Life in Cancer Survivors - Long-term Quality of Life Patient/Cancer Survivor Version (QOL-CSV)	#320902
	Spirituality in Chronic Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4))	#321001
	Supportive Care Needs - Cancer Supportive Care Needs Survey -Short Form 34 (SCNS-SF34)	#321101
	Unmet Needs of Cancer Survivors Survivor Unmet Needs Survey (SF- SUNS)	#321201

Release Date:

December 17, 2020

Scope of Domain:

There is no scope information for this domain.

Working Group Roster:

WG Members:

Roxanne Jensen, PhD, Co-Chair National Cancer Institute Bethesda, MD	Larissa Nekhlyudov, MD, MPH, Co-Chair Brigham and Women's Hospital Boston, MA
Keith Bellizzi, PhD, MPH University of Connecticut Farmington, CT	Shelley Fuld Nasso, MPP National Coalition for Cancer Survivorship Silver Springs, MD
Andrew Galligan, MD, MS University of South Florida Tampa, FL	Bellinda King-Kallimanis, PhD Food and Drug Administration (FDA) Silver Spring, MD
Deborah Mayer, PhD, RN, AOCN, FAAN UNC Lineberger Cancer Center/NCI Chapel Hill, NC	Christine Miaskowski, RN, PhD University of California, San Francisco San Francisco, CA
Talya Salz, PhD Memorial Sloan Kettering New York, NY

SC Liaison, WG Manager and WG Supervisor:

Catherine A. McCarty, PhD, SC Liaison University of Minnesota Medical School Duluth, MN	Christine Hill, MPA, WG Manager RTI International Atlanta, GA
Lisa Cox, MS, WG Supervisor RTI International Atlanta, GA

Select	Measure Name	Protocols
	Burden of Cancer on Employment	Burden of Cancer on Employment
	Chronic Medical Conditions - Self Reported	Chronic Medical Conditions - Self Reported
	Cognitive Function	Cognitive Function
	Fear of Cancer Recurrence	Fear of Cancer Recurrence
	Financial Hardship Associated with Cancer	Financial Hardship Associated with Cancer
	Functional Performance Status	Functional Performance Status
	Patient Centered Communication - Cancer	Patient Centered Communication - Cancer
	Patient Experience with Cancer Care	Patient Experience with Cancer Care - Cancer Surgery Patient Experience with Cancer Care - Drug Therapy Patient Experience with Cancer Care - Radiation Therapy
	Quality of Life in Cancer Survivors	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Survivors - Long-term
	Spirituality in Chronic Illness	Spirituality in Chronic Illness
	Supportive Care Needs - Cancer	Supportive Care Needs - Cancer
	Unmet Needs of Cancer Survivors	Unmet Needs of Cancer Survivors