Loading…

Protocol - Rheumatic Fever/Rheumatic Heart Disease

Add to My Toolkit
Description:

Measure to assess history of Rheumatic Fever or Rheumatic Heart Disease.

Protocol:

1. Has a doctor ever said you had rheumatic fever (inflammatory rheumatism)?

[] Yes

[] No

If Yes

2. Have you had it in the past 12 months?

[] Yes

[] No

[] Don't Know

3. Are you taking any pills or medicine for it?

[] Yes

[] No

If Yes

4. What is it? ____________________________________________________

Protocol Name from Source:

The Expert Review Panel has not reviewed this measure yet.

Availability:

Publicly available

Personnel and Training Required

An interviewer who is trained to conduct personal interviews with individuals from the general population is required. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don't know" response is provided.

*There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Life Stage:

Adolescent, Adult

Participants:

12–17-year-olds with parent/guardian consent or parent/guardian as surrogate

Note: This protocol has been reliably used with ages 12–17 years. However, the Cardiovascular Working Group suggests the same methodology can be used for ages 12 years and over.

Specific Instructions:

Ask question 1, and if "yes," proceed to ask questions 2, 3, and 4.

Selection Rationale

This protocol was selected because it collects a personal history of the disease, as well as information about medication usage.

Language

English, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Person Rheumatic Fever Indicator 2935436 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) Rheumatic fever proto 62403-1 LOINC
Derived Variables

None

Process and Review

The Expert Review Panel has not reviewed this measure yet.

Source

Centers for Disease Control and Prevention (CDC). National Center for Health Statistics. Health Examination Survey (HES) I–III. Page 39. Questions 62a–62d (source for questions 1–4).

General References

Diagnostic Criteria:

One or both of two subcategories can be present for diagnosis of rheumatic fever (RF) or rheumatic heart disease (RHD), according to the World Health Organization (WHO) Criteria:

(a) RF: Two major or one major and two minor manifestations plus evidence of a preceding group A streptococcal infection.

  • Major criteria are carditis, polyarthritis, chorea, erythema marginatum, and subcutaneous nodules.
  • Minor manifestations include fever and polyarthralgia; EKG-prolonged PR interval; elevated laboratory evidence of inflammation (erythrocyte sedimentation rate, white blood cell count, C-reactive protein).

(b) Chronic valve lesions of RHD: presentation with pure mitral stenosis or mixed mitral valve disease with or without aortic valve disease. Do not require other criteria for Rheumatic Heart Disease diagnosis.

World Health Organization (WHO). (2004). Rheumatic fever and rheumatic heart disease: Report of a WHO Expert Consultation, Geneva, 29 October–1 November 2001 (WHO Technical Report Series No. 923). Geneva, Switzerland: Author (source for Diagnostic Criteria).

Protocol ID:

41401

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX041401_Have_Rheumatic_Fever PX041401010000 Has a doctor ever said you had rheumatic fever (inflammatory rheumatism)? 4 N/A
PX041401_Rheumatic_Fever_Medication PX041401030000 Are you taking any pills or medicine for it? 4 N/A
PX041401_Rheumatic_Fever_Medication_Name PX041401040000 What is it? 4 N/A
PX041401_Rheumatic_Fever_Past_12Month PX041401020000 Have you had it in the past 12 months? 4 N/A
Research Domain Information
Measure Name:

Rheumatic Fever/Rheumatic Heart Disease

Release Date:

September 9, 2009

Definition

This measure assesses the respondent's history of rheumatic fever or rheumatic heart disease.

Purpose

To assess history of Rheumatic Fever or Rheumatic Heart Disease as a determinant of damage to the heart valves and possible risk of heart failure.

Keywords

cardiovascular, heart failure, Health Examination Survey, HES, rheumatic fever, rheumatic heart disease, inflammatory rheumatism, valvular dysfunction, personal history