Protocol - Rheumatic Fever/Rheumatic Heart Disease
Description
Measure to assess history of Rheumatic Fever or Rheumatic Heart Disease.
Specific Instructions
Ask question 1, and if "yes," proceed to ask questions 2, 3, and 4.
Availability
Protocol
1. Has a doctor ever said you had rheumatic fever (inflammatory rheumatism)?
[ ] Yes
[ ] No
If Yes
2. Have you had it in the past 12 months?
[ ] Yes
[ ] No
[ ] Dont Know
3. Are you taking any pills or medicine for it?
[ ] Yes
[ ] No
If Yes
4. What is it? ____________________________________________________
Personnel and Training Required
An interviewer who is trained to conduct personal interviews with individuals from the general population is required. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "dont know" response is provided.
*There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Interviewer-administered questionnaire
Lifestage
Adolescent, Adult
Participants
12–17-year-olds with parent/guardian consent or parent/guardian as surrogate
Note: This protocol has been reliably used with ages 12–17 years. However, the Cardiovascular Working Group suggests the same methodology can be used for ages 12 years and over.
Selection Rationale
This protocol was selected because it collects a personal history of the disease, as well as information about medication usage.
Language
Chinese, English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Logical Observation Identifiers Names and Codes (LOINC) | Rheumatic fever proto | 62403-1 | LOINC |
| Human Phenotype Ontology | Fever | HP:0001945 | HPO |
| caDSR Form | PhenX PX041401 - Rheumatic Fever Rheumatic Heart Disease | 5849257 | caDSR Form |
Derived Variables
None
Process and Review
Not applicable.
Protocol Name from Source
Health Examination Survey (HES)
Source
Centers for Disease Control and Prevention (CDC). National Center for Health Statistics. Health Examination Survey (HES) I–III. Page 39. Questions 62a–62d (source for questions 1–4).
General References
Diagnostic Criteria:
One or both of two subcategories can be present for diagnosis of rheumatic fever (RF) or rheumatic heart disease (RHD), according to the World Health Organization (WHO) Criteria:
(a) RF: Two major or one major and two minor manifestations plus evidence of a preceding group A streptococcal infection.
- Major criteria are carditis, polyarthritis, chorea, erythema marginatum, and subcutaneous nodules.
- Minor manifestations include fever and polyarthralgia; EKG-prolonged PR interval; elevated laboratory evidence of inflammation (erythrocyte sedimentation rate, white blood cell count, C-reactive protein).
(b) Chronic valve lesions of RHD: presentation with pure mitral stenosis or mixed mitral valve disease with or without aortic valve disease. Do not require other criteria for Rheumatic Heart Disease diagnosis.
World Health Organization (WHO). (2004). Rheumatic fever and rheumatic heart disease: Report of a WHO Expert Consultation, Geneva, 29 October–1 November 2001 (WHO Technical Report Series No. 923). Geneva, Switzerland: Author (source for Diagnostic Criteria).
Protocol ID
41401
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX041401_Have_Rheumatic_Fever | ||||
| PX041401010000 | Has a doctor ever said you had rheumatic more | Variable Mapping | ||
| PX041401_Rheumatic_Fever_Medication | ||||
| PX041401030000 | Are you taking any pills or medicine for it? | N/A | ||
| PX041401_Rheumatic_Fever_Medication_Name | ||||
| PX041401040000 | What is it? | N/A | ||
| PX041401_Rheumatic_Fever_Past_12Month | ||||
| PX041401020000 | Have you had it in the past 12 months? | N/A | ||
Measure Name
Rheumatic Fever/Rheumatic Heart Disease
Release Date
September 9, 2009
Definition
This measure assesses the respondent's history of rheumatic fever or rheumatic heart disease.
Purpose
To assess history of Rheumatic Fever or Rheumatic Heart Disease as a determinant of damage to the heart valves and possible risk of heart failure.
Keywords
Cardiovascular, heart failure, Health Examination Survey, HES, rheumatic fever, rheumatic heart disease, inflammatory rheumatism, valvular dysfunction, personal history
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 41401 | Rheumatic Fever/Rheumatic Heart Disease |
Publications
There are no publications listed for this protocol.