SCD Psychosocial and Social Determinants of Health
Release Date:
February 6, 2023
Scope of Collection
| Element Considered | Final Measures in Toolkit |
|---|---|
| Transition Readiness | Sickle Cell Disease Transition Readiness Assessment |
| Sickle Cell Disease Transition Readiness Assessment (SI) | |
| Response to Stress | Sickle Cell Disease Responses to Stress - Youth |
| Sickle Cell Disease Responses to Stress - Parent Report | |
| Self-Management | Sickle Cell Disease Self-Management - Adolescent Skills Checklist |
| Sickle Cell Disease Self-Management - Caregiver Skills Checklist | |
| Stigma | Sickle Cell Disease Health-Related Stigma - Child |
| Sickle Cell Disease Health-Related External Stigma - Adolescent and Adult | |
| Sickle Cell Disease Health-Related Internal Stigma - Adolescent and Adult | |
| Trust in Medical Care and Research | Trust in the Medical Professional - Adult |
| Trust in Medical Researchers - 12-item | |
| Trust in Medical Researchers - 4-item | |
| Grief | Inventory of Complicated Grief |
| Reactions to Loss Scale | |
| Resilience | Resilience |
| Spiritual Coping | Religious Behaviors and Congregational Support |
| Attitude Toward Illness | Attitude Toward Illness - Child (SI) |
| Self-Efficacy | General Self-Efficacy - Child (SI) |
| General Self-Efficacy - Adolescent (SI) | |
| General Self-Efficacy - Child Parent Report (SI) | |
| General Self-Efficacy - Adult (SI) | |
| Illness Identity | Illness Identity Questionnaire (SI) |
| Medication Adherence | Medication Adherence (SI) |
| Optimism | Optimism (SI) |
| Self-Perception | Self-Perception Profile - Child (SI) |
| Self-Perception Profile - Adolescent (SI) | |
| Self-Perception Profile - Adult (SI) |
Working Group Roster:
WG Members:
|
Lori Crosby, PsyD, Chair University of Cincinnati Cincinnati, OH |
Steven Hardy, PhD Children's National Hospital Washington, DC |
|
Staci D. Arnold, MD, MBA, MPH Emory University School of Medicine Atlanta, GA |
Allison A. King, MD, MPH Washington University School of Medicine St. Louis, MO |
|
Sherif Badawy, MD, MBA, MPH Anne and Robert H. Lurie Children's Hospital of Chicago Chicago, IL |
Jerlym Porter, PhD, MPH St. Jude Children's Research Hospital Memphis, TN |
|
Dominique Bulgin, PhD, RN University of Tennessee Knoxville, TN |
Sickle Cell Disease Panel Liaison, WG Manager and WG Supervisor:
|
Marian Sullivan, MS, MPH, WG Supervisor RTI International Research Triangle Park, NC |
Cataia Ives, MS, WG Manager RTI International Research Triangle Park, NC |
Supplemental Information includes protocols that the Working Group or Expert Review Panel considered useful and highly relevant to the domain but do not meet the criteria for inclusion in the Toolkit.
Additional Information:
There is no additional information for this collection.