SCD Pain
Release Date:
December 25, 2021
Scope of Collection
| Element Considered | Final Measures in Toolkit |
|---|---|
| Intensity | Pain Intensity |
| Location | Pain Location |
| Pain Quality | Pain Quality Descriptors |
| Anxiety: Pain-related, state, trait, disorder | |
| Catastrophizing | Pain Catastrophizing |
| Coping | Pain Coping |
| Emotional | |
| Psychosocial | |
| Self-efficacy | |
| Social | |
| Care utilization | |
| Frequency | |
| Pain Burden | Pain Burden |
| Physical Interference/Impact | Pain Interference |
| Physical Mobility | |
| Medication use | Treatment Response: Medication Use |
| Patient reported treatment, satisfaction, or effectiveness | Patient Reported Impression of Change |
Working Group Roster:
WG Members:
|
Amanda Brandow, DO, Co-Chair Medical College of Wisconsin Milwaukee, WI |
Pat Carroll, MD, Co-Chair Johns Hopkins University Baltimore, MD |
|
Nitya Bakshi, MD Emory University School of Medicine Atlanta, GA |
Claudia Campbell, PhD Johns Hopkins University Baltimore, MD |
|
Deepika Darbari, MD Children's National Hospital Washington, DC |
Stephanie Guarino, MD Nemours Children's Hospital Wilmington, DE |
|
Martha Kenney, MD Duke University School of Medicine Durham, NC |
Wally Smith, MD Virginia Commonwealth University Richmond, VA |
|
Jennifer Stinson, PhD, RN-EC, CPNP The Hospital for Sick Children Toronto, ON |
William Zempsky, MD Connecticut Children's Medical Center Hartford, CT |
Sickle Cell Disease Panel Liaison, WG Manager and WG Supervisor:
|
Mark Nelms, PhD, WG Supervisor RTI International Research Triangle Park, NC |
David Williams, MEng, WG Manager RTI International Research Triangle Park, NC |
Supplemental Information includes protocols that the Working Group or Expert Review Panel considered useful and highly relevant to the domain but do not meet the criteria for inclusion in the Toolkit.
Additional Information:
There is no additional information for this collection.