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Protocol - Health Conditions, Medications and Health Care During COVID-19 Pandemic

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Description

The COVID-19 Community Response Survey is used to understand how people’s physical, emotional and mental health are being affected or have changed as a result of COVID-19.

Specific Instructions
None
Protocol

READ: I would like to ask you about your other health conditions and how your health care has been impacted by the COVID-19 pandemic.

1. Do you have any of the following conditions? (Select all that apply)

Yes

No

HIV

 [ ] 1

 [ ] 0

Hepatitis B virus (HBV)

 [ ] 1

 [ ] 0

Hepatitis C virus (HCV)

 [ ] 1

 [ ] 0

Tuberculosis (TB)

 [ ] 1

 [ ] 0

Hypertension

 [ ] 1

 [ ] 0

Diabetes

 [ ] 1

 [ ] 0

Chronic kidney disease

 [ ] 1

 [ ] 0

Cancer

 [ ] 1

 [ ] 0

Cardiovascular disease

 [ ] 1

 [ ] 0

Asthma

 [ ] 1

 [ ] 0

Chronic obstructive pulmonary disease

 [ ] 1

 [ ] 0

Depression

 [ ] 1

 [ ] 0

Alcohol or substance use disorder

 [ ] 1

 [ ] 0

Other mental health condition

 [ ] 1

 [ ] 0

Other chronic condition (specify)

 [ ] 1

 [ ] 0

(SKIP to Q2 if all No)

   1a. Specify: ___________________

   1b. Are you currently taking any medications for any of these conditions?

1[ ]Yes

0[ ]No

   1c. Are you currently taking any medications for any other health or mental health conditions?

1[ ]Yes

0[ ]No

   (SKIP to 2 if 1b and 1c are both No)

   1d. How many days’ worth of medication do you currently have at home? If you take more than one medication, choose the medication you have the lowest supply of.

   __________ days (If >30 days, skip to Q2)

   1e. Have you made arrangements to get your medication refill/s?

0[ ]No

1[ ]You have been able to arrange for some medication refills but not all

2[ ]You are waiting to hear from your physician on how to refill medications

3[ ]Yes, home delivery

4[ ]Yes, you will be picking up from the pharmacy

5[ ]Yes, someone will be picking up your medications for you

2. Since the COVID-19 pandemic (March 1, 2020), have you needed to postpone any medical procedures?

1[ ]Yes

0[ ]No

3. In the past month, have you missed any scheduled appointments with any health care provider?

1[ ]Yes

0[ ]No (SKIP to 4)

97[ ]Don’t Know (SKIP to 4)

98[ ]Refused to answer (SKIP to 4)

   3a. What is the MAIN reason you missed appointments with any healthcare provider in the past month?

1[ ]Your clinic cancelled your appointment because of COVID-19

2[ ]Your clinic is closed because of the COVID-19

3[ ]You had symptoms of COVID-19, so you stayed home

4[ ]You cancelled the appointment to avoid being around others

5[ ]You cancelled the appointment because you did not want to be in a healthcare setting

6[ ]You felt okay or good enough

7[ ]You didn’t have money or insurance

8[ ]You didn’t want to take public transportation and had no other way to get there

9[ ]You forgot to go/just missed your appointment

10[ ]You felt disrespected by the office or medical staff

12[ ]You were drinking/using drugs

12[ ]Other (specify)

97[ ]Don’t know

98[ ]Refused to answer

3a1. Specify: __________

4. In the past month, have you missed taking any medications?

1[ ]Yes

0[ ]No (SKIP to Q4)

97[ ]Don’t Know (SKIP to Q4)

98[ ]Refused to answer (SKIP to Q4)

   4a. What is the MAIN reason you missed taking medications in the past month?

1[ ]You couldn’t get your medications because the pharmacy closed

2[ ]You couldn’t get to the pharmacy because of COVID-19 shutdowns

3[ ]You couldn’t get to the pharmacy because you wanted to avoid being around others

4[ ]You felt good, didn’t need your medications

5[ ]Your doctor advised you to delay treatment

6[ ]You were worried about side effects

7[ ]You didn’t have money or insurance to get medicine

8[ ]You didn’t want to take public transport to pick up your prescription and had no other way to get there

9[ ]You were drinking or using drugs

10[ ]You forgot to take your medications

11[ ]Other (specify)

97[ ]Don’t know

98[ ]Refused to answer

       4a1. Specify: ______________

Availability

Available

Personnel and Training Required

Equipment Needs

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Lifestage

Adult

Participants

Not specified

Selection Rationale

PhenX used input from crowdsourcing to enable rapid response and release of COVID-19 related protocols in the Toolkit. 

Language

English

Standards
StandardNameIDSource
caDSR Common Data Elements (CDE) COVID-19 Comorbidity and Healthcare Questionnaire Assessment Text 7484979 CDE Browser
Derived Variables

Process and Review

Not applicable

Protocol Name from Source

COVID-19 Community Response Survey

Source

COVID-19 Community Response Survey. Johns Hopkins Bloomberg School of Public Health. Module 5 Comorbidities and Care Engagement.

General References

Protocol ID

940301

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Appointments_Healthcare_Provider
PX940301030100 In the past month, have you missed any more
scheduled appointments with any health care provider? show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Appointments_Healthcare_Provider_Reason
PX940301030201 What is the MAIN reason you missed more
appointments with any healthcare provider in the past month? show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Appointments_Healthcare_Provider_Reason_Other
PX940301030202 What is the MAIN reason you missed more
appointments with any healthcare provider in the past month? Specify: show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Alcohol_Substance_Use
PX940301011300 Do you have any of the following conditions? more
Alcohol or substance use disorder show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Asthma
PX940301011000 Do you have any of the following conditions? more
Asthma show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Cancer
PX940301010800 Do you have any of the following conditions? more
Cancer show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Cardiovascular_Disease
PX940301010900 Do you have any of the following conditions? more
Cardiovascular disease show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Chronic_Kidney_Disease
PX940301010700 Do you have any of the following conditions? more
Chronic kidney disease show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Chronic_Pulmonary_Disease
PX940301011100 Do you have any of the following conditions? more
Chronic obstructive pulmonary disease show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Depression
PX940301011200 Do you have any of the following conditions? more
Depression show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Diabetes
PX940301010600 Do you have any of the following conditions? more
Diabetes show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Hepatitis_B
PX940301010200 Do you have any of the following conditions? more
Hepatitis B virus (HBV) show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Hepatitis_C
PX940301010300 Do you have any of the following conditions? more
Hepatitis C virus (HCV) show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Hiv
PX940301010100 Do you have any of the following conditions? HIV N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Hypertension
PX940301010500 Do you have any of the following conditions? more
Hypertension show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Other_Chronic
PX940301011501 Do you have any of the following conditions? more
Other chronic condition show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Other_Chronic_Specify
PX940301011502 Do you have any of the following conditions? more
Other chronic condition. Specify: show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Other_Mental_Health
PX940301011400 Do you have any of the following conditions? more
Other mental health condition show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Conditions_Tuberculosis
PX940301010400 Do you have any of the following conditions? more
Tuberculosis (TB) show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Medications
PX940301011600 Are you currently taking any medications for more
any of these conditions? show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Medications_Amount
PX940301011800 How many days' worth of medication do you more
currently have at home? If you take more than one medication, choose the medication you have the lowest supply of. show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Medications_Other_Conditions
PX940301011700 Are you currently taking any medications for more
any other health or mental health conditions? show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Medication_Refill
PX940301011900 Have you made arrangements to get your more
medication refill/s? show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Missed_Medications
PX940301040100 In the past month, have you missed taking more
any medications? show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Missed_Medications_Reason
PX940301040201 What is the MAIN reason you missed taking more
medications in the past month? show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Missed_Medications_Reason_Other
PX940301040202 What is the MAIN reason you missed taking more
medications in the past month? Specify: show less
N/A
PX940301_Covid19_Community_Comorbidities_Care_Engagement_Postpone_Medical_Procedure
PX940301020000 Since the COVID-19 pandemic (March 1, 2020), more
have you needed to postpone any medical procedures? show less
N/A
COVID-19 Research
Measure Name

Health conditions, medications and health care during COVID-19 pandemic

Release Date

October 30, 2020

Definition

A measurement on how the COVID-19 pandemic has affected medications and health care during COVID-19 pandemic

Purpose

To assess how people’s physical, emotional and mental health are affected or have changed as a result of COVID-19.

Keywords

COVID-19, coronavirus, covid, Community response, comorbidities, and care engagement

Measure Protocols
Protocol ID Protocol Name
940301 Health Conditions, Medications and Health Care During COVID-19 Pandemic
Publications

There are no publications listed for this protocol.