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Protocol - Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)

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Description

A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with sleep issues and hallucinations.

Specific Instructions

The Steering Committee recommends using insomnia in the context as described by NHLBI - https://www.nhlbi.nih.gov/health/insomnia.

Availability

Available

Protocol

Sleeping Issues

1. Have you experienced any SLEEPING ISSUES since the start of your COVID-19 illness?

[ ] Yes
[ ] No

1a. Which of the following sleeping issues have you experienced since the start of your COVID-19 illness?

[ ] Lucid dreams (dreams where you are aware you are dreaming or have some control over what you dream about)
[ ] Vivid dreams
[ ] Nightmares
[ ] Insomnia
[ ] Night sweats
[ ] Restless leg syndrome
[ ] Awakened by feeling like you couldn’t breathe
[ ] Sleep apnea
[ ] Other ________

1b. When did you experience these symptoms?

Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.

Week 1

Week 2

Week 3

Week 4

Month 2

Month 3

Month 4

Month 5

Month 6

Month 7

Insomnia

Sleep
apnea

All the other sleeping symptoms


2. If you have/had insomnia, which best describes the type of insomnia?

[ ] Difficulty falling asleep
[ ] Waking up early in the morning
[ ] Waking up several times during the night
[ ] None of the above

3. What is causing/caused your insomnia?

[ ] Pain
[ ] Sensitivity to outside light/noise
[ ] Other physical discomfort
[ ] Anxiety/depression/racing thoughts
[ ] Difficulty breathing
[ ] A sensation of adrenaline/energy
[ ] A sensation like the virus was keeping me awake
[ ] Other ___________

Hallucinations

4. Have you experienced any HALLUCINATIONS (visual, hearing, or touch) since the start of your COVID-19 illness?

[ ] Yes
[ ] No

4a. Which of the following hallucinations have you experienced since the start of your COVID-19 illness?

[ ] Visual (seeing) Hallucinations
[ ] Auditory (hearing) Hallucinations
[ ] Tactile (touch) Hallucinations
[ ] Hallucinations, other ___________

4b. When did you experience these symptoms?

Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.

Week 1

Week 2

Week 3

Week 4

Month 2

Month 3

Month 4

Month 5

Month 6

Month 7

Hallucinations

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Adults aged 18 years or older

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English, Other languages available at source

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Online Survey on Recovery from COVID-19

Source

University College London (2022). Online Survey on Recovery from COVID-19, Section “Sleep Issues and Hallucinations Sections”

General References

None

Protocol ID

992006

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Experience_Symptoms_Hallucinations
PX992006040300 When did you experience these symptoms? more
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. Hallucinations: show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Experience_Symptoms_Insomnia
PX992006010301 When did you experience these symptoms? more
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. Insomnia: show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Experience_Symptoms_Other
PX992006010303 When did you experience these symptoms? more
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. All the other sleeping symptoms: show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Experience_Symptoms_Sleep_Apnea
PX992006010302 When did you experience these symptoms? more
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. Sleep apnea: show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Hallucinations
PX992006040100 Have you experienced any HALLUCINATIONS more
(visual, hearing, or touch) since the start of your COVID-19 illness? show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Hallucinations_Type
PX992006040201 Which of the following hallucinations have more
you experienced since the start of your COVID-19 illness? show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Hallucinations_Type_Other
PX992006040202 Which of the following hallucinations have more
you experienced since the start of your COVID-19 illness? Hallucinations, other show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Insomnia_Cause
PX992006030100 What is causing/caused your insomnia? N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Insomnia_Cause_Other
PX992006030200 What is causing/caused your insomnia? Other N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Insomnia_Type
PX992006020000 If you have/had insomnia, which best more
describes the type of insomnia? show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Sleeping_Issues
PX992006010100 Have you experienced any SLEEPING ISSUES more
since the start of your COVID-19 illness? show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Sleeping_Issues_Symptoms
PX992006010201 Which of the following sleeping issues have more
you experienced since the start of your COVID-19 illness? show less
N/A
PX992006_Long_Covid_Symptoms_Psychiatric_Short_Sleeping_Issues_Symptoms_Other
PX992006010202 Which of the following sleeping issues have more
you experienced since the start of your COVID-19 illness?Other show less
N/A
Long COVID
Measure Name

Long COVID - Symptoms Due to COVID-19

Release Date

March 17, 2023

Definition

This is a measure of an individual’s new or continuing COVID-19 symptoms.

Purpose

Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

coronavirus, COVID-19, Sleep Issues, hallucinations, University College London, UCL, insomnia, sleep apnea, Restless leg syndrome

Measure Protocols
Protocol ID Protocol Name
992001 Long COVID - Symptoms Due to COVID-19 - Screener
992002 Long COVID - Symptoms Due to COVID-19 - Memory
992003 Long COVID - Symptoms Due to COVID-19 - Neurology
992004 Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
992005 Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
992006 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)
992007 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form)
992008 Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
992009 Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
992010 Long COVID - Symptoms Due to COVID-19 - Respiratory
992011 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form)
992012 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
992013 Long COVID - Symptoms Due to COVID-19 - Allergies
992014 Long COVID - Symptoms Due to COVID-19 - Skin and Hair
992015 Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
992016 Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form)
992017 Long COVID - Symptoms Due to COVID-19 - Genitourinary
992018 Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
992019 Long COVID - Symptoms Due to COVID-19 - Tooth Pain
992020 Long COVID - Symptoms Due to COVID-19 - Pediatric
Publications

There are no publications listed for this protocol.