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Protocol - Long COVID - Symptoms Due to COVID-19 - Respiratory

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Description

A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with cough, shortness of breath and tightness in chest.

Specific Instructions

None

Availability

Available

Protocol

1a. Do you still have the new or worsening cough?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

1b. Does/did the new or worsening cough affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

1c. When did the new or worsening cough clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

2a. Do you still have the shortness of breath?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

2b. Does/did the shortness of breath affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

2c. When did the shortness of breath clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

3a. Do you still have the discomfort, tightness, or pressure in chest?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

3b. Does/did the discomfort, tightness, or pressure in chest affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

3c. When did the discomfort, tightness, or pressure in chest rate clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults aged 18 years or older

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Johns Hopkins COVID Long Study

Source

Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on worsening cough; shortness of breath; discomfort, tightness, or pressure in chest.

General References
None
Protocol ID

992010

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992010_Long_COVID_Symptoms_Respiratory_Discomfort_Chest
PX992010030100 Do you still have the discomfort, tightness, more
or pressure in chest? show less
N/A
PX992010_Long_COVID_Symptoms_Respiratory_Discomfort_Chest_Clear
PX992010030300 When did the discomfort, tightness, or more
pressure in chest rate clear? show less
N/A
PX992010_Long_COVID_Symptoms_Respiratory_Discomfort_Chest_Normal_Activities
PX992010030200 Does/did the discomfort, tightness, or more
pressure in chest affect your ability to do your normal activities? show less
N/A
PX992010_Long_COVID_Symptoms_Respiratory_New_Worsening_Cough
PX992010010100 Do you still have the new or worsening cough? N/A
PX992010_Long_COVID_Symptoms_Respiratory_New_Worsening_Cough_Clear
PX992010010300 When did the new or worsening cough clear? N/A
PX992010_Long_COVID_Symptoms_Respiratory_New_Worsening_Cough_Normal_Activities
PX992010010200 Does/did the new or worsening cough affect more
your ability to do your normal activities? show less
N/A
PX992010_Long_COVID_Symptoms_Respiratory_Shortness_Breath
PX992010020100 Do you still have the shortness of breath? N/A
PX992010_Long_COVID_Symptoms_Respiratory_Shortness_Breath_Clear
PX992010020300 When did the shortness of breath clear? N/A
PX992010_Long_COVID_Symptoms_Respiratory_Shortness_Breath_Normal_Activities
PX992010020200 Does/did the shortness of breath affect your more
ability to do your normal activities? show less
N/A
Long COVID
Measure Name

Long COVID - Symptoms Due to COVID-19

Release Date

March 17, 2023

Definition

This is a measure of an individual’s new or continuing COVID-19 symptoms.

Purpose

Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

coronavirus, COVID, COVID-related symptoms, COVID-19, cough, shortness of breath, tightening chest, John Hopkins

Measure Protocols
Protocol ID Protocol Name
992001 Long COVID - Symptoms Due to COVID-19 - Screener
992002 Long COVID - Symptoms Due to COVID-19 - Memory
992003 Long COVID - Symptoms Due to COVID-19 - Neurology
992004 Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
992005 Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
992006 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)
992007 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form)
992008 Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
992009 Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
992010 Long COVID - Symptoms Due to COVID-19 - Respiratory
992011 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form)
992012 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
992013 Long COVID - Symptoms Due to COVID-19 - Allergies
992014 Long COVID - Symptoms Due to COVID-19 - Skin and Hair
992015 Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
992016 Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form)
992017 Long COVID - Symptoms Due to COVID-19 - Genitourinary
992018 Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
992019 Long COVID - Symptoms Due to COVID-19 - Tooth Pain
992020 Long COVID - Symptoms Due to COVID-19 - Pediatric
Publications

There are no publications listed for this protocol.