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Inflammatory Bowel Disease (IBD) Research Registry

Study Name Inflammatory Bowel Disease (IBD) Research Registry
Study Acronym IBD
Funding Agency NIDDK NIH HHS,NCATS NIH HHS
Primary Research Focus Inflammatory bowel disease (IBD) is a heterogeneous collection of chronic inflammatory disorders of the digestive tract. Clinical, genetic, and pathological heterogeneity makes it increasingly difficult to translate efficacy studies into real-world practice. Our objective was to develop a comprehensive natural history registry derived from multi-year observational data to facilitate effectiveness and clinical phenotypic research in IBD.
Study Design Name Cohort (Retrospective)
Number Participants >1000
Study Website https://pittplusme.org/studyarms/publicdetails?Guid=e5518222-afe0-448b-8638-c1265b3c2f85
Protocol Ids 50301, 50501, 121101
Grant Number T32 DK063922,TL1 TR000145
Citation Link https://www.ncbi.nlm.nih.gov/pubmed/27619390