| Primary Research Focus |
SCCRIP is a cohort study with prospective follow-up, ongoing data accrual, and retrospective collection of exten- sive clinical history. The overarching goal of SCCRIP is to under- stand the clinical, biological, and psychosocial progression of SCD and factors contributing to early mortality across the lifespan, with the ultimate goal of facilitating effective therapies. The objectives are two-fold: (1) to establish a longitudinal clinical cohort of patients with SCD; and (2) to establish a biorepository of DNA, urine, and plasma. |