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Analyzing Real-World Use of Research Common Data Elements

Study Name Analyzing Real-World Use of Research Common Data Elements
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Primary Research Focus Our study builds upon previous mapping work to investigate the number of CDEs that could be identified using a varying level of commonness threshold in a real-world data repository, the Database of Phenotypes and Genotypes (dbGaP). In an analyzed collection of mapped variables from 426 dbGaP studies, only 1,414 PhenX variables (PHENotypes and eXposures; a CDE initiative) are observed out of all 24,938 defined PhenX variables.
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Protocol Ids 20201
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Citation Link https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6371255/