Analyzing Real-World Use of Research Common Data Elements
Study Name | Analyzing Real-World Use of Research Common Data Elements |
---|---|
Study Acronym | |
Funding Agency | |
Primary Research Focus | Our study builds upon previous mapping work to investigate the number of CDEs that could be identified using a varying level of commonness threshold in a real-world data repository, the Database of Phenotypes and Genotypes (dbGaP). In an analyzed collection of mapped variables from 426 dbGaP studies, only 1,414 PhenX variables (PHENotypes and eXposures; a CDE initiative) are observed out of all 24,938 defined PhenX variables. |
Study Design Name | |
Number Participants | |
Study Website | |
Protocol Ids | 20201 |
Grant Number | |
Citation Link | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6371255/ |