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Analyzing Real-World Use of Research Common Data Elements

Study Name Analyzing Real-World Use of Research Common Data Elements
Study Acronym
Funding Agency
Primary Research Focus Our study builds upon previous mapping work to investigate the number of CDEs that could be identified using a varying level of commonness threshold in a real-world data repository, the Database of Phenotypes and Genotypes (dbGaP). In an analyzed collection of mapped variables from 426 dbGaP studies, only 1,414 PhenX variables (PHENotypes and eXposures; a CDE initiative) are observed out of all 24,938 defined PhenX variables.
Study Design Name Epidemiologic Studies | Electronic Health Records |
Number Participants
Study Website
Protocol Ids 20201
Grant Number
Citation Link https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6371255/