SCD Pregnancy
| Select | Protocol | ID |
|---|---|---|
#890601 |
||
|
#890801 |
|
#890301 |
||
|
#890101 |
|
|
#890201 |
|
|
#890202 |
|
|
#890401 |
|
|
#890501 |
Release Date:
June 28, 2024
Scope of Collection
| Element Considered | Final Measures in Toolkit |
|---|---|
| Pre-Implantation Genetic Diagnosis | |
| Non-Invasive Prenatal Testing | Cell-free Fetal DNA Testing for Sickle Cell Disease (Supplemental Information) |
| Chorionic Villus Sampling (CVS) | Invasive Prenatal Testing Guidelines (Supplemental Information) |
| Amniocentesis | Invasive Prenatal Testing Guidelines (Supplemental Information) |
| Acute Chest Syndrome | Acute Chest Syndrome During Pregnancy |
| Acute Chest Syndrome - General Populations (Supplemental Information) | |
| Transfusion | Prophylactic Transfusion during Pregnancy |
| Transfusion Indications | |
| Transfusion Reactions | |
| Hydroxyurea | Hydroxyurea Use during Pregnancy |
| Hydroxyurea Use Adherence - Prospective Studies | |
| Thromboprophylaxis | Thromboprophylaxis |
| Thrombosis - Catheter-related | |
| Thrombosis - Venous | |
| Multidisciplinary Care for SCD | Multidisciplinary Care for Sickle Cell Disease Pregnancies (Supplemental Information) |
Working Group Roster:
WG Members:
|
A. Kinga Malinowski, MD, MSc, FRCSC, Co-Chair University of Toronto Toronto, ON |
Deva Sharma, MD, MS, Co-Chair Vanderbilt University Medical Center Nashville, TN |
|
Monika Asnani, DM, PhD The University of the West Indies Kingston, JM |
Kevin Kuo, MD, MSc, FRCPC University of Toronto Toronto, ON |
|
Eugene Oteng-Ntim, DTropM, PhD, FRCOG King's College London London, UK |
Kim Smith-Whitley, MD Global Blood Therapeutics Children's Hospital of Philadelphia South San Francisco, CA |
Sickle Cell Disease Panel Liaison, WG Manager and WG Supervisor:
|
Marian Sullivan, MS, MPH, WG Supervisor RTI International Research Triangle Park, NC |
Thien Lam, MA, WG Manager RTI International Research Triangle Park, NC |
Supplemental Information includes protocols that the Working Group or Expert Review Panel considered useful and highly relevant to the domain but do not meet the criteria for inclusion in the Toolkit.
Additional Information:
There is no additional information for this collection.