PhenX Toolkit: Toolkit

Essential Protocols

Total Protocols in My Toolkit: 32
	Prothrombin Time Prothrombin Time (PT), CPT 85610 Check all Current Age Medication Inventory Add to Toolkit Remove
	Left Ventricular Global Longitudinal Strain by Speckle Tracking Echocardiography Voigt, et al. Definitions for a common standard for 2D speckle tracking echocardiography: Consensus document of the EACVI/ASE/Industry Task Force to standardize deformation imaging. European Heart Journal - Cardiovascular Imaging, 16(1), 1-11. Check all Current Age Add to Toolkit Remove
	Psychosocial Assessment of Candidates for Transplantation (PACT) Psychosocial Assessment of Candidates for Transplantation (PACT) Remove
	Sickle Cell Disease Transplant Conditioning Regimen Cure Sickle Cell Initiative (CureSCi) Transplant Conditioning Case Report Form (CRF) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Stem Cell Source and Cell Manipulation Cure Sickle Cell Initiative (CureSCi) Drug Product Case Report Form and Center for International Blood and Marrow Transplant Research (CIBMTR) Form 2400 (R8.0) Pre-Transplant Essential Data, 2021 Remove
	Recurrent Priapism Center for International Blood and Marrow Transplant (CIBMTR), Form 2030 (R3.0) Sickle Cell Pre-HSCT Data, 2021 Remove
	White Cell Chimerism and Graft Failure Center for International Blood and Marrow Transplant Research (CIBMTR), Form 2450 (R5.0) Post-Transplant Essential Data, 2020 Remove
	Graft versus Host Disease Center for International Blood and Marrow Transplant Research (CIBMTR),Form 2450 (R5.0) Post-Transplant Essential Data, 2021 Remove
	Pre-transfusion Antibody Testing Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE) Remove
	Transfusion Reaction Reporting The Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE) Remove This protocol is retired.
	Thyroid Stimulating Hormone (hTSH) in Serum Thyroid Stimulating Hormone (TSH), CPT 84443 Remove
	Determination of Liver Iron Concentration by R2* Garbowski, M. W., Carpenter, J.-P., Smith, G., Roughton, M., Alam, M. H., He, T., Pennell, D. J., & Porter, J. B. (2014). Biopsy-based calibration of T2* magnetic resonance for estimation of liver iron concentration and comparison with R2 Ferriscan. Journal of Cardiovascular Magnetic Resonance, 16, 40. Remove
	Determination of Liver Iron Concentration by Ferriscan St. Pierre, T. G., et al. Single spin-echo proton transverse relaxometry of iron-loaded liver. NMR Biomedicine, 2004 Remove
	Sickle Cell Disease Health-Related Stigma - Child Child Stigma Scale (CSS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Sickle Cell Disease Health-Related Internal Stigma - Adolescent and Adult Measure of Sickle Cell Stigma (MoSCS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Reactions to Loss Reactions to Loss Scale (RTL) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Responses to Stress - Youth Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC) Check all Current Address Current Age Add to Toolkit Remove
	Sickle Cell Disease Responses to Stress - Parent Report Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC), Parent Report version Check all Current Address Current Age Add to Toolkit Remove
	Sickle Cell Disease Transition Readiness Assessment Sickle Cell Transition Intervention Program - Readiness for Transition (TIP-RFT) Check all Current Age Current Employment Status Educational Attainment - Individual Add to Toolkit Remove
	Trust in the Medical Professional - Adult Wake Forest Trust in the Medical Professional Remove
	Trust in Medical Researchers - 12-Item Trust in Medical Researchers - Long Form - Adult Remove
	Trust in Medical Researchers - 4-Item Trust in Medical Researchers - Short Form - Adult Remove
	Religious Behaviors and Congregational Support Brief Multidimensional Measure of Religiousness/Spirituality (BMMRS) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Self-Management - Adolescent Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Teens Check all Current Age Medication Inventory Add to Toolkit Remove
	Sickle Cell Disease Self-Management - Caregiver Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Caregivers Remove
	Prolonged Grief Disorder Prolonged Grief Disorder (PG-13-R) Check all Current Age Add to Toolkit Remove
	Resilience Connor-Davidson Resilience Scale (CD-RISC 25) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Health-Related External Stigma - Adolescent and Adult Sickle Cell Disease Health-Related Stigma Scale Short Form (SCD-HRSS-SF) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Media Use During COVID-19 COVID-19 Experiences (COVEX) Remove
	Access to Health Technology Health Information National Trends Survey (HINTS), Annotated Form, Full-Content, Cycle 2, 2018 Check all Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	COVID-19 Related Information and Trust in News and Government Institutions RAND 2020 American Life Panel Survey (ALP) on Impacts of COVID-19 Remove
	Media Use Population Assessment of Tobacco and Health (PATH) Study [United States] Public-Use Files, Wave 6: Adult Questionnaire (English Version) Remove
Total Protocols in My Toolkit: 32

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

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