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Protocol - Symptoms of Autism Spectrum Disorders - Adolescent

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Description:

The adolescent version of the Autism Spectrum Quotient is a 50-question instrument designed to be filled out by a parent of an adolescent between 12 and 15 years old. A scoring key is also included.

Specific Instructions:

None

Protocol:

Please answer each of the following questions about your child or the person who is under your care by indicating a box that reflects your answer to the question most appropriately.

1. S/he prefers to do things with others rather than on her/his own.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

2. S/he prefers to do things the same way over and over again.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

3. If s/he tries to imagine something, s/he finds it very easy to create a picture in her/his mind.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

4. S/he frequently gets so strongly absorbed in one thing that s/he loses sight of other things.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

5. S/he often notices small sounds when others do not.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

6. S/he usually notices car number plates or similar strings of information.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

7. Other people frequently tell her/him that what s/he has said is impolite, even though s/he thinks it is polite.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

8. When s/he is reading a story, s/he can easily imagine what the characters might look like.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

9. S/he is fascinated by dates.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

10. In a social group, s/he can easily keep track of several different people’s conversations.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

11. S/he finds social situations easy.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

12. S/he tends to notice details that others do not.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

13. S/he would rather go to a library than a party.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

14. S/he finds making up stories easy.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

15. S/he finds her/himself drawn more strongly to people than to things.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

16. S/he tends to have very strong interests, which s/he gets upset about if s/he can’t pursue.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

17. S/he enjoys social chit-chat.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

18. When s/he talks, it isn’t always easy for others to get a word in edgeways.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

19. S/he is fascinated by numbers.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

20. When s/he is reading a story, s/he finds it difficult to work out the characters’ intentions.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

21. S/he doesn’t particularly enjoy reading fiction.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

22. S/he finds it hard to make new friends.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

23. S/he notices patterns in things all the time.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

24. S/he would rather go to the theatre than a museum.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

25. It does not upset him/her if his/her daily routine is disturbed.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

26. S/he frequently finds that s/he doesn’t know how to keep a conversation going.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

27. S/he finds it easy to "read between the lines" when someone is talking to her/him.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

28. S/he usually concentrates more on the whole picture, rather than the small details.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

29. S/he is not very good at remembering phone numbers.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

30. S/he doesn’t usually notice small changes in a situation, or a person’s appearance.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

31. S/he knows how to tell if someone listening to him/her is getting bored.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

32. S/he finds it easy to do more than one thing at once.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

33. When s/he talks on the phone, s/he is not sure when it’s her/his turn to speak.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

34. S/he enjoys doing things spontaneously.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

35. S/he is often the last to understand the point of a joke.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

36. S/he finds it easy to work out what someone is thinking or feeling just by looking at their face.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

37. If there is an interruption, s/he can switch back to what s/he was doing very quickly.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

38. S/he is good at social chit-chat.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

39. People often tell her/him that s/he keeps going on and on about the same thing.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

40. When s/he was younger, s/he used to enjoy playing games involving pretending with other children.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

41. S/he likes to collect information about categories of things (e.g., types of car, types of bird, types of train, types of plant, etc.).

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

42. S/he finds it difficult to imagine what it would be like to be someone else.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

43. S/he likes to plan any activities s/he participates in carefully.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

44. S/he enjoys social occasions.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

45. S/he finds it difficult to work out people’s intentions.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

46. New situations make him/her anxious.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

47. S/he enjoys meeting new people.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

48. S/he is a good diplomat.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

49. S/he is not very good at remembering people’s date of birth.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

50. S/he finds it very easy to play games with children that involve pretending.

[ ] Definitely Agree

[ ] Slightly Agree

[ ] Slightly Disagree

[ ] Definitely Disagree

Scoring Instructions

Responses that score 1 point are marked. Other responses score 0. For total score, sum all items. Minimum score possible is 0, Maximum score possible is 50. A score of 30 or above is highly predictive of Autism Spectrum disorders in adolescents.

Definitely Agree

Slightly Agree

Slightly Disagree

Definitely Disagree

1. S/he prefers to do things with others rather than on her/his own.

1

1

2. S/he prefers to do things the same way over and over again.

1

1

3. If s/he tries to imagine something, s/he finds it very easy to create a picture in her/his mind.

1

1

4. S/he frequently gets so strongly absorbed in one thing that s/he loses sight of other things.

1

1

5. S/he often notices small sounds when others do not.

1

1

6. S/he usually notices car number plates or similar strings of information.

1

1

7. Other people frequently tell her/him that what s/he has said is impolite, even though s/he thinks it is polite.

1

1

8. When s/he is reading a story, s/he can easily imagine what the characters might look like.

1

1

9. S/he is fascinated by dates.

1

1

10. In a social group, s/he can easily keep track of several different people’s conversations.

1

1

11. S/he finds social situations easy.

1

1

12. S/he tends to notice details that others do not.

1

1

13. S/he would rather go to a library than a party.

1

1

14. S/he finds making up stories easy.

1

1

15. S/he finds her/himself drawn more strongly to people than to things.

1

1

16. S/he tends to have very strong interests, which s/he gets upset about if s/he can’t pursue.

1

1

17. S/he enjoys social chit-chat.

1

1

18. When s/he talks, it isn’t always easy for others to get a word in edgeways.

1

1

19. S/he is fascinated by numbers.

1

1

20. When s/he is reading a story, s/he finds it difficult to work out the characters’ intentions.

1

1

21. S/he doesn’t particularly enjoy reading fiction.

1

1

22. S/he finds it hard to make new friends.

1

1

23. S/he notices patterns in things all the time.

1

1

24. S/he would rather go to the theatre than a museum.

1

1

25. It does not upset him/her if his/her daily routine is disturbed.

1

1

26. S/he frequently finds that s/he doesn’t know how to keep a conversation going.

1

1

27. S/he finds it easy to "read between the lines" when someone is talking to her/him.

1

1

28. S/he usually concentrates more on the whole picture, rather than the small details.

1

1

29. S/he is not very good at remembering phone numbers.

1

1

30. S/he doesn’t usually notice small changes in a situation, or a person’s appearance.

1

1

31. S/he knows how to tell if someone listening to him/her is getting bored.

1

1

32. S/he finds it easy to do more than one thing at once.

1

1

33. When s/he talks on the phone, s/he is not sure when it’s her/his turn to speak.

1

1

34. S/he enjoys doing things spontaneously.

1

1

35. S/he is often the last to understand the point of a joke.

1

1

36. S/he finds it easy to work out what someone is thinking or feeling just by looking at their face.

1

1

37. If there is an interruption, s/he can switch back to what s/he was doing very quickly.

1

1

38. S/he is good at social chit-chat.

1

1

39. People often tell her/him that s/he keeps going on and on about the same thing.

1

1

40. When s/he was younger, s/he used to enjoy playing games involving pretending with other children.

1

1

41. S/he likes to collect information about categories of things (e.g., types of car, types of bird, types of train, types of plant, etc.).

1

1

42. S/he finds it difficult to imagine what it would be like to be someone else.

1

1

43. S/he likes to plan any activities s/he participates in carefully.

1

1

44. S/he enjoys social occasions.

1

1

45. S/he finds it difficult to work out people’s intentions.

1

1

46. New situations make him/her anxious.

1

1

47. S/he enjoys meeting new people.

1

1

48. S/he is a good diplomat.

1

1

49. S/he is not very good at remembering people’s date of birth.

1

1

50. S/he finds it very easy to play games with children that involve pretending.

1

1

Protocol Name from Source:

The Autism Spectrum Quotient-Adolescent Version

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self- or proxy-administered questionnaire

Life Stage:

Adolescent

Participants:

Parent report of an adolescent between ages 12 and 15 years old.

Selection Rationale

The Autism Spectrum Quotient was vetted against similar protocols and was selected because it is a nonproprietary, free instrument that is low burden to investigators and respondents and is available for a variety of age ranges.

Language

Danish, Dutch, English, French, German, Greek, Italian, Latvian, Mandarin Chinese, Slovenian, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Adolescent Autism Spectrum Disorder Assessment Score 3075507 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) Autism disorders adoles proto 62739-8 LOINC
Human Phenotype Ontology Autistic behavior HP:0000729 HPO
Derived Variables

None

Process and Review

Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from ERP 4 included the following:

· Revised description of measure

Source

Baron-Cohen, S., Hoekstra, R. A., Knickmeyer, R., & Wheelwright, S. (2006). The Autism-Spectrum Quotient (AQ)-Adolescent version. Journal of Autism and Developmental Disorders, 36, 343-350.

General References

American Psychiatric Association (APA). (2000). Diagnostic and statistical manual of mental disorders (4th ed., text rev.). Washington, DC: Author.

Baron-Cohen, S., Jaffa, T., Davies, S., Auyeung, B., Allison, C., & Wheelwright, S. (2013). Do girls with anorexia nervosa have elevated autistic traits? Molecular Autism, 4, 24.

Centers for Disease Control and Preventions (CDC), Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators. (2009). Prevalence of autism spectrum disorders-Autism and Developmental Disabilities Monitoring Network, United States, 2006. Morbidity and Mortality Weekly Report Surveillance Summaries, 58(10), 1-20.

Hadjikhani, N., Zürcher, N. R., Rogier, O., Hippolyte, L., Lemonnier, E., Ruest, T., Ward, N., Lassalle, A., Gillberg, N., Helles, A., Gillber, C., Solomon, P., Prkachin, K. M., & Gillberg, C. (2014). Emotional contagion for pain is intact in autism spectrum disorders. Translational Psychiatry, 4(1), e343.

Protocol ID:

120902

Variables:
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX120902_Anxious_New_Situations
PX120902460000 New situations make him/her anxious. N/A
PX120902_Collect_Categories
PX120902410000 S/he likes to collect information about more
categories of things (e.g. types of car, types of bird, types of train, types of plant, etc.). show less
N/A
PX120902_Daily_Routine
PX120902250000 It does not upset him/her if his/her daily more
routine is disturbed. show less
N/A
PX120902_Difficulty_Imagining_Being_Someone_Else
PX120902420000 S/he finds it difficult to imagine what it more
would be like to be someone else. show less
N/A
PX120902_Difficulty_Making_Friends
PX120902220000 S/he finds it hard to make new friends. N/A
PX120902_Difficulty_Remembering_Birth_Dates
PX120902490000 S/he is not very good at remembering more
people's date of birth. show less
N/A
PX120902_Difficulty_Remembering_Phone_Numbers
PX120902290000 S/he is not very good at remembering phone more
numbers. show less
N/A
PX120902_Difficulty_Understanding_Jokes
PX120902350000 S/he is often the last to understand the more
point of a joke. show less
N/A
PX120902_Difficulty_Understanding_Story_Characters
PX120902200000 When s/he is reading a story, s/he finds it more
difficult to work out the characters' intentions. show less
N/A
PX120902_Difficulty_With_Conversation
PX120902260000 S/he frequently finds that s/he doesn't know more
how to keep a conversation going. show less
N/A
PX120902_Difficulty_With_Phone_Conversations
PX120902330000 When s/he talks on the phone, s/he is not more
sure when it's her/his turn to speak. show less
N/A
PX120902_Difficulty_Working_Out_Intentions
PX120902450000 S/he finds it difficult to work out people's more
intentions. show less
N/A
PX120902_Does_Not_Enjoy_Fiction
PX120902210000 S/he doesn't particularly enjoy reading fiction. N/A
PX120902_Dominate_Conversation
PX120902180000 When s/he talks, it isn't always easy for more
others to get a word in edgeways. show less
N/A
PX120902_Drawn_To_People
PX120902150000 S/he finds her/himself drawn more strongly more
to people than to things. show less
N/A
PX120902_Easily_Imagine_Story_Characters
PX120902080000 When s/he is reading a story, s/he can more
easily imagine what the characters might look like. show less
N/A
PX120902_Easy_Create_Picture_Imagination
PX120902030000 If s/he tries to imagine something, s/he more
finds it very easy to create a picture in her/his mind. show less
N/A
PX120902_Easy_To_Multitask
PX120902320000 S/he finds it easy to do more than one thing more
at once. show less
N/A
PX120902_Easy_To_Play_Pretend_Games
PX120902500000 S/he finds it very to easy to play games more
with children that involve pretending. show less
N/A
PX120902_Easy_To_Read_Facial_Expression
PX120902360000 S/he finds it easy to work out what someone more
is thinking or feeling just by looking at their face. show less
N/A
PX120902_Easy_To_Switch_After_Interruption
PX120902370000 If there is an interruption, s/he can switch more
back to what s/he was doing very quickly. show less
N/A
PX120902_Enjoy_Chit_Chat
PX120902170000 S/he enjoys social chit-chat. N/A
PX120902_Enjoy_Meeting_New_People
PX120902470000 S/he enjoys meeting new people. Variable Mapping
PX120902_Enjoy_Planning_Activities
PX120902430000 S/he likes to plan any activities s/he more
participates in carefully. show less
N/A
PX120902_Enjoy_Social_Occasions
PX120902440000 S/he enjoys social occasions. N/A
PX120902_Enjoy_Spontaneity
PX120902340000 S/he enjoys doing things spontaneously. N/A
PX120902_Fascinated_By_Numbers
PX120902190000 S/he is fascinated by numbers. N/A
PX120902_Fascinated_Dates
PX120902090000 S/he is fascinated by dates. N/A
PX120902_Good_At_Chitchat
PX120902380000 S/he is good at social chit-chat. N/A
PX120902_Good_Diplomat
PX120902480000 S/he is a good diplomat. N/A
PX120902_Go_On_About_One_Thing
PX120902390000 People often tell her/him that s/he keeps more
going on and on about the same thing. show less
N/A
PX120902_Keep_Track_Different_Conversations
PX120902100000 In a social group, s/he can easily keep more
track of several different people's conversations. show less
N/A
PX120902_Library_Over_Party
PX120902130000 S/he would rather go to a library than a party. N/A
PX120902_Make_Up_Stories_Easily
PX120902140000 S/he finds making up stories easy. N/A
PX120902_Notice_Details
PX120902120000 S/he tends to notice details that others do not. N/A
PX120902_Notice_License_Plates
PX120902060000 S/he usually notices car number plates or more
similar strings of information. show less
N/A
PX120902_Notice_Patterns
PX120902230000 S/he notices patterns in things all the time. N/A
PX120902_Notice_Small_Changes
PX120902300000 S/he doesn't usually notice small changes in more
a situation, or a person's appearance. show less
N/A
PX120902_Notice_Small_Sounds
PX120902050000 S/he often notices small sounds when others more
do not. show less
N/A
PX120902_People_Call_Child_Impolite
PX120902070000 Other people frequently tell her/him that more
what s/he has said is impolite, even though s/he thinks it is polite. show less
N/A
PX120902_Prefer_Do_Things_Same_Way
PX120902020000 S/he prefers to do things the same way over more
and over again. show less
N/A
PX120902_Prefer_Do_Things_With_Others
PX120902010000 S/he prefers to do things with others rather more
than on her/his own. show less
N/A
PX120902_Pretend_With_Other_Children
PX120902400000 When s/he was younger, s/he used to enjoy more
playing games involving pretending with other children. show less
N/A
PX120902_Read_Between_Conversation_Lines
PX120902270000 S/he finds it easy to "read between the more
lines" when someone is talking to her/him. show less
N/A
PX120902_Social_Situations_Easy
PX120902110000 S/he finds social situations easy. N/A
PX120902_Strongly_Absorbed
PX120902040000 S/he frequently gets so strongly absorbed in more
one thing that s/he loses sight of other things. show less
N/A
PX120902_Strong_Interests
PX120902160000 S/he tends to have very strong interests, more
which s/he gets upset about if s/he can't pursue. show less
N/A
PX120902_Tell_If_Boring_Others
PX120902310000 S/he knows how to tell if someone listening more
to him/her is getting bored. show less
N/A
PX120902_Theatre_Over_Museum
PX120902240000 S/he would rather go to the theatre than a museum. N/A
PX120902_Whole_Picture_Over_Details
PX120902280000 S/he usually concentrates more on the whole more
picture, rather than the small details. show less
N/A
Psychiatric
Measure Name:

Symptoms of Autism Spectrum Disorder

Release Date:

May 12, 2010

Definition

A questionnaire to assess autism spectrum disorder (ASD), a group of developmental problems that includes autism, Asperger’s syndrome, Rett syndrome, and the category of Pervasive Developmental Disorders Not Otherwise Specified. ASD is characterized by a lack of social interaction, difficulties in verbal and nonverbal communication, and restricted, repetitive, and stereotyped patterns of behavior (APA, 2000).

Purpose

This measure is used to screen an individual for the symptoms of autism spectrum disorder (ASD). According to the Centers for Disease Control and Prevention (CDC), it is estimated that between 1 in 80 and 1 in 240 children, with an average of 1 in 110 children, in the United States have an ASD (CDC, 2009). Autism displays a familial pattern because first-order relatives of those with ASD are at greater risk for autism and other developmental problems than the general population (APA, 2000).

Keywords

Psychiatric, Asperger’s syndrome, social impairment, repetitive behavior, Rett syndrome, communication disability