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Protocol - Parkinsons Disease Screener - Questionnaire

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Description:

This protocol includes one question from the Framingham Heart Study that assess whether the participant has ever been told by a doctor that her or she has Parkinson’s disease.

Protocol:

1. Have you been told by a doctor you have Parkinson Disease?

[ ] 0 = No

[ ] 1 = Yes

[ ] 9 = Unknown

Scoring:

The respondent is considered to be a Parkinson’s Disease case if they reply "Yes"

Protocol Name from Source:

N/A - see source

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage:

Adult, Senior

Participants:

Adults, ages 18 and older

Specific Instructions:

None

Selection Rationale

This question from the Framingham Heart Study was selected because it has been used in a large US population-based study and subsequently validated as a screen for Parkinson’s Disease.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Physician Diagnosed Parkinson's Disease Personal Medical History Yes No Not Applicable Indicator 4035279 CDE Browser
Derived Variables

None

Process and Review

Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from ERP 4 included the following:

  • Added new protocol
  • Created new data dictionary

Source

National Heart, Lung, and Blood Institute (NHLBI), & Boston University. (2011). Framingham Heart Study, Cohort Examination 29: Medical History-Hospitalizations, ER Visits, MD Visits. Question number fw132.

General References

Jain, S., Himali, J., Beiser, A., Ton, T.G., Kelly-Hayes, M., Biggs, M.L., Delaney, J.A., Rosano, C., Seshadri, S., & Frank, S.A. (2015). Validation of secondary data sources to identify Parkinson disease against clinical diagnostic criteria. American Journal of Epidemiology, 181(3), 185-190.

Protocol ID:

131901

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
Research Domain Information
Measure Name:

Parkinsons Disease Screener

Release Date:

November 28, 2017

Definition

A questionnaire to screen for Parkinson’s disease.

Purpose

This measure can be used to screen participants quickly in large, population-based cohorts for the presence of Parkinson’s disease. Parkinsonism occurs in about 0.2% of the population, and the risk increases with age. Parkinsonism can be caused by genetics, vascular disease, certain medications, and environmental contaminants such as manganese dust, carbon monoxide, or pesticides (Aminoff et al., 2005).

Keywords

Neurology, Parkinsonism, Parkinson’s Disease, movement disorders,