Protocol - Behavioral Disturbances
Description
The NPI-Q is a self-administered questionnaire used by informants (e.g., caregivers) to assess neuropsychiatric symptoms of a patient over the previous month and the effect on the patient and caregiver. Twelve domains and cardinal symptoms of each domain are assessed with yes/no responses. Both severity (a 3-point scale) and distress ratings (a 5-point scale) are recorded for each confirmed symptom. The severity scale applies to the effect on the patient, and the distress scale applies to the effect on the caregiver.
Specific Instructions
The NPI-Q is proprietary and copyrighted by Jeffrey L. Cummings, MD. The NPI-Q may be used freely for academic purposes, but there is a fee for commercial use. See this website for details about use of and access to the NPI-Q: http://npitest.net/terms-of-service.html.
Per NPI-Q background and administration documentation, it is recommended that responses to the NPI-Q be reviewed for completeness by a clinician and for clarifying uncertainties after each administration. The first time a subject completes the NPI-Q, it may be useful to verbally review the instructions. In some instances, it may be necessary to conduct the NPI-Q in part or entirely as an interview.
Current age of the patient (not respondent) is essential to this measure
Availability
Protocol
The NPI-Q is proprietary. See the NPI Test website for access to the NPI-Q.
Personnel and Training Required
None
Equipment Needs
NoneRequirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults age 48 years and older with dementia
Selection Rationale
The NPI-Q has been validated with older adults with dementia and is a commonly used neuropsychiatric questionnaire.
Language
English
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Human Phenotype Ontology | Behavioral abnormality | HP:0000708 | HPO |
Derived Variables
None
Process and Review
Not applicable.
>Protocol Name from Source
Neuropsychiatric Inventory-Questionnaire (NPI-Q)
Source
Neuropsychiatric Inventory-Questionnaire (NPI-Q)
General References
Geda, Y. E., Roberts, R. O., Knopman, D. S., Petersen, R. C., Christianson, T. J., Pankratz, V. S., .. Rocca, W. A. (2008). Prevalence of neuropsychiatric symptoms in mild cognitive impairment and normal cognitive aging: Population-based study. Archives of General Psychiatry, 65(10),1193-1198.
Kaufer, D. I., Cummings, J. L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., ... DeKosky, S. T. (2000). Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. Journal of Neuropsychiatry and Clinical Neuroscience, 12(2), 233-239.
Protocol ID
250301
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX250301000000 | Protocol 250301 is a proprietary instrument. | N/A | ||
Measure Name
Behavioral Disturbances
Release Date
July 2, 2018
Definition
This measure is a questionnaire about behaviors associated with agitation that have occurred since an individual began experiencing memory problems.
Purpose
To provide a brief assessment of neuropsychiatric symptomatology in routine clinical practice settings. The questionnaire assesses the effect on the patient and the distress caused for the respondent (e.g., the caregiver).
Keywords
Agitation, behavior, distress, memory, Neuropsychiatric Inventory-Questionnaire, NPI-Q, proprietary, gerontology, aging
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 250301 | Behavioral Disturbances |
Publications
There are no publications listed for this protocol.