Protocol - Disparate Health Care Quality
A protocol to examine the perception of prejudice, stereotyping, and discrimination in clinical encounters and experience
Was there ever a time when you would have gotten better medical care if you had belonged to a different race or ethnic group?
-8[ ]DON'T KNOW
Personnel and Training Required
The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews. The interviewer should be trained to prompt respondents further if a “don’t know” response is provided.
The PhenX Working Group acknowledges that these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer or handheld computer to administer a computer-assisted questionnaire.
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Adults aged 18 or older
The California Health Interview Survey (CHIS) question allows a binary measurement of perceived discrimination that can be aggregated at a community level to determine whether there are different levels of perceived health care discrimination across racial groups.
Chinese, English, Korean, Spanish, Tagalog, Vietnamese
|caDSR Common Data Elements (CDE)||Social Determinants of Health Perceived Healthcare Discrimination Yes No Refused Unknown Indicator||7263170||CDE Browser|
Process and Review
Protocol Name from Source
California Health Interview Survey (CHIS), 2017
UCLA Center for Health Policy Research. (2019, October 2). California Health Interview Survey: CHIS 2017 Adult Questionnaire, question QA17_DM1 [DMC8] (version 2.20). Los Angeles, CA.
Abramson, C. M., Hashemi, M., & Sánchez-Jankowski, M. (2015). Perceived discrimination in U.S. healthcare: Charting the effects of key social characteristics within and across racial groups. Preventive Medicine Reports, 2, 615–621.
Institute of Medicine (IOM). (2011). The future of nursing: Leading change, advancing health. Washington, DC: National Academies Press.
Schulson, L. B., Paasche-Orlow, M. K., Xuan, Z., & Fernandez, A. (2019). Changes in perceptions of discrimination in health care in California, 2003 to 2017. JAMA Network Open, 2(7), e196665.
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
Disparate Health Care Quality
May 11, 2020
Disparate health care quality is defined as differences in the process and quality of health care between two groups with equal access to care yet different social standing that cannot be explained by patient preferences, appropriateness, or clinical need.
By recognizing the underlying causes of socially based disparities in health care process and health care outcomes, actions can be taken to reduce the disparities.
California Health Interview Survey, CHIS, Health Care, Health Disparities, Perceived Discrimination