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Protocol - Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia

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Description:

The Family Questionnaire (FQ) is a 20-item, self-administered questionnaire that measures expressed emotion status (criticism and emotional over involvement [EOI]) of family members toward patients with mental illness. The FQ has two subscales: critical comments, and EOI. Each item is rated on a 4-point scale (1 = never/very rarely; 4 = very often). The FQ is scored by adding together the ratings from the individual items, with higher scores indicating greater levels of expressed emotion.

Specific Instructions:

None

Protocol:

Never/ very rarely

Rarely

Often

Very Often

1. I tend to neglect myself because of him/her

O

O

O

O

2. I have to keep asking him/her to do things

O

O

O

O

3. I often think about what is to become of him/her

O

O

O

O

4. He/she irritates me

O

O

O

O

5. I keep thinking about the reasons for his/her illness

O

O

O

O

6. I have to try not to criticize him/her

O

O

O

O

7. I can’t sleep because of him/her

O

O

O

O

8. It’s hard for us to agree on things

O

O

O

O

9. When something about him/her bothers me, I keep it to myself

O

O

O

O

10. He/she does not appreciate what I do for him/her

O

O

O

O

11. I regard my own needs as less important

O

O

O

O

12. He/she sometimes gets on my nerves

O

O

O

O

13. I’m very worried about him/her

O

O

O

O

14. He/she does some things out of spite

O

O

O

O

15. I thought I would become ill myself

O

O

O

O

16. When he/she constantly wants something from me, it annoys me

O

O

O

O

17. He/she is an important part of my life

O

O

O

O

18. I have to insist that he/she behave differently

O

O

O

O

19. I have given up important things in order to be able to help him/her

O

O

O

O

20. I’m often angry with him/her

O

O

O

O

Scoring: Each item is rated on a four-point scale (1 = never/very rarely; 4 = very often). Ratings from each item are added together to give a total score, with higher scores indicating greater levels of expressed emotion.

Protocol Name from Source:

Family Questionnaire (FQ)

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage:

Adult

Participants:

Adults, ages 18 years and older

Selection Rationale

The Family Questionnaire (FQ) is a short, reliable, and valid self-administered questionnaire that is easy to use, score, and interpret.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Mental Health Family towards Patient Emotion Assessment Scale 5628271 CDE Browser
Derived Variables

None

Process and Review

Not applicable.

Source

Wiedemann, G., Rayki, O., Feinstein, E., & Hahlweg, K. (2002). Family Questionnaire: Development and validation of a new self-report scale for assessing expressed emotion. Psychiatry Research, 109, 265-279.

General References

Fredman, S. J., Baucom, D. H., Boeding, S. E., & Miklowitz, D. J. (2015). Relatives’ emotional involvement moderates the effects of family therapy for bipolar disorder. Journal of Consulting and Clinical Psychology, 83(1), 81-91.

McCann, T. V., Lubman, D. I., Cotton, S. M., Murphy, B., Crisp, K., Catania, L., Marck, C., & Gleeson, J. F. (2013). A randomized controlled trial of bibliotherapy for careers of young people with first-episode psychosis. Schizophrenia Bulletin, 39(6), 1307-1317.

Protocol ID:

662001

Variables:
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX662001_Family_Questionnaire_Anger
PX662001200000 IÔøΩm often angry with him/her N/A
PX662001_Family_Questionnaire_Annoyed
PX662001120000 He/she sometimes gets on my nerves N/A
PX662001_Family_Questionnaire_Appreciative
PX662001100000 He/she does not appreciate what I do for him/her N/A
PX662001_Family_Questionnaire_Behavior
PX662001180000 I have to insist that he/she behave differently N/A
PX662001_Family_Questionnaire_Criticism
PX662001060000 I have to try not to criticize him/her N/A
PX662001_Family_Questionnaire_Difficulty_Agreeing
PX662001080000 It's hard for us to agree on things N/A
PX662001_Family_Questionnaire_Difficulty_Sleeping
PX662001070000 I cannot sleep because of him/her N/A
PX662001_Family_Questionnaire_Future
PX662001030000 I often think about what is to become of him/her N/A
PX662001_Family_Questionnaire_Illness
PX662001150000 I thought I would become ill myself N/A
PX662001_Family_Questionnaire_Important
PX662001170000 He/she is an important part of my life N/A
PX662001_Family_Questionnaire_Internalization
PX662001090000 When something about him/her bothers me, I more
keep it to myself show less
N/A
PX662001_Family_Questionnaire_Irritating
PX662001040000 He/she irritates me N/A
PX662001_Family_Questionnaire_Manage
PX662001020000 I have to keep asking him/her to do things N/A
PX662001_Family_Questionnaire_Needy
PX662001160000 When he/she constantly wants something from more
me, it annoys me show less
N/A
PX662001_Family_Questionnaire_Neglect
PX662001010000 I tend to neglect myself because of him/her N/A
PX662001_Family_Questionnaire_Reason_Illness
PX662001050000 I keep thinking about the reasons for more
his/her illness show less
N/A
PX662001_Family_Questionnaire_Sacrifice
PX662001190000 I have given up important things in order to more
be able to help him/her show less
N/A
PX662001_Family_Questionnaire_Sacrifice_Needs
PX662001110000 I regard my own needs as less important N/A
PX662001_Family_Questionnaire_Spite
PX662001140000 He/she does some things out of spite N/A
PX662001_Family_Questionnaire_Worried
PX662001130000 IÔøΩm very worried about him/her N/A
Mental Health Research
Measure Name:

Family Expressed Emotion Toward Relatives with Psychosis and Schizophrenia

Release Date:

January 17, 2017

Definition

A questionnaire to assess expressed emotion status of relatives of patients with mental illness.

Purpose

This measure can be used to assess expressed emotion, or attitudes and behavior patterns, of relatives toward mental health patients. Higher expressed emotion levels are predictive of relapse of some mental illnesses, including psychosis, schizophrenia, eating disorders, and mood disorders.

Keywords

Early psychosis, family expressed emotion, caregiver, Family Questionnaire, FQ, emotional over involvement, EOI