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Protocol - Family Burden of Mental Illness

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Description:

The Burden Assessment Scale (BAS) is a 19-item, self-administered scale to assess the burden on families with a seriously mentally ill family member. Items 1-10 assess objective consequences, including financial problems, limitations on personal activity, and household disruptions. Items 11-19 measure subjective consequences, including shame, stigma, guilt, and resentment. Each item is rated on a 4-point scale (1 = not at all; 4 = a lot). To score the BAS, ratings from each item are added together to give a total score, with higher scores indicating greater levels of caregiver burden.

Specific Instructions:

None

Protocol:

BURDEN ASSESSMENT SCALE

I am going to read a list of things which other people have found to happen to them because of their relative’s illness. Would you tell me to what extent you have had any of the following experiences in the past six months.

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

Because of (name’s) illness, to what extent have you:

    ________

1. Had financial problems

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

2. Missed days at work (or school)

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

3. Found it difficult to concentrate on your own activities

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

4. Had to change your personal plans like taking a new job, or going on vacation

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

5. Cut down on leisure time

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

6. Found the household routine was upset

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

7. Had less time to spend with friends

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

8. Neglected other family members’ needs

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

9. Experienced family frictions and arguments

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

10. Experienced frictions with neighbors, friends, or relatives outside the home

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

11. Became embarrassed because of (name’s) behavior

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

12. Felt guilty because you were not doing enough to help

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

13. Felt guilty because you felt responsible for causing (name’s) problem

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

14. Resented (name) because s/he made too many demands on you

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

15. Felt trapped by your caregiving role

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

16. Were upset about how much (name) had changed from his or her former self

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

17. Worried about how your behavior with (name) might make the illness worse

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

18. Worried about what the future holds for (name)

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA

    ________

19. Found the stigma of the illness upsetting

____1____

____2____

____3____

____4____

____9____

Not at all

A little

Some

A lot

NA


Scoring: Ratings from each item are added together to give a total score, with higher scores indicating greater levels of caregiver burden.

Protocol Name from Source:

Burden Assessment Scale (BAS)

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage:

Adult

Participants:

Adults, ages 18 years and older

Selection Rationale

The Burden Assessment Scale (BAS) is a short, reliable, and valid self-administered questionnaire that is easy to use, score, and interpret.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Mental Illness Family Burden Assessment Scale 5628286 CDE Browser
Derived Variables

None

Process and Review

The Expert Review Panel has not reviewed this measure yet.

Source

Reinhard, S.C., Gubman, G.D., Horwitz, A.V., & Minsky, S. (1994). Burden assessment scale for families of the seriously mentally ill. Evaluation and Program Planning, 17(3): 261-269.

General References

Guada, J., Land, H., & Han, J. (2011). An exploratory factor analysis of the Burden Assessment Scale with a sample of African- American families. Community Mental Health Journal, 47(2), 233-242.

Ivarsson, A.-B., Sidenvall, B., & Carlsson, M. (2004). The factor structure of the Burden Assessment Scale and the perceived burden of caregivers for individuals with severe mental disorders. Scandinavian Journal of Caring Sciences, 18(4), 396-401.

Murdoch, D.D., Rahman, A., Barsky, V., Maunula, S., Cawthorpe, D. (2014). The use of the Burden Assessment Scale with families of a pediatric population. Community Mental Health Journal, 50(6): 703-710.

Protocol ID:

662201

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX662201_Burden_Assessment_Behavior_Worsen_Illness PX662201170000 Because of name's illness, to what extent have you: worried about how your behavior with (name) might make the illness worse N/A
PX662201_Burden_Assessment_Change_Personal_Plans PX662201040000 Because of name's illness, to what extent have you: had to change your personal plans like taking a new job, or going on vacation N/A
PX662201_Burden_Assessment_Difficulty_Concentrating PX662201030000 Because of name's illness, to what extent have you: found it difficult to concentrate on your own activities N/A
PX662201_Burden_Assessment_Embarrassed_Behavior PX662201110000 Because of name's illness, to what extent have you: became embarrassed because of (name's) behavior N/A
PX662201_Burden_Assessment_Family_Tensions PX662201090000 Because of name's illness, to what extent have you: experienced family frictions and arguments N/A
PX662201_Burden_Assessment_Financial_Problems PX662201010000 Because of name's illness, to what extent have you: had financial problems N/A
PX662201_Burden_Assessment_Future PX662201180000 Because of name's illness, to what extent have you: worried about what the future holds for (name) N/A
PX662201_Burden_Assessment_Guilty_Help PX662201120000 Because of name's illness, to what extent have you: felt guilty because you were not doing enough to help N/A
PX662201_Burden_Assessment_Guilty_Problem PX662201130000 Because of name's illness, to what extent have you: felt guilty because you felt responsible for causing (name's) problem N/A
PX662201_Burden_Assessment_Less_Leisure PX662201050000 Because of name's illness, to what extent have you: cut down on leisure time N/A
PX662201_Burden_Assessment_Less_Social PX662201070000 Because of name's illness, to what extent have you: had less time to spend with friends N/A
PX662201_Burden_Assessment_Missed_Work PX662201020000 Because of name's illness, to what extent have you: missed days at work (or school) N/A
PX662201_Burden_Assessment_Neglected_Others PX662201080000 Because of name's illness, to what extent have you: neglected other family members' needs N/A
PX662201_Burden_Assessment_Resentment PX662201140000 Because of name's illness, to what extent have you: resented (name) because s/he made too many demands on you N/A
PX662201_Burden_Assessment_Routine_Upsetting PX662201060000 Because of name's illness, to what extent have you: found the household routine was upset N/A
PX662201_Burden_Assessment_Stigma_Illness PX662201190000 Because of name's illness, to what extent have you: found the stigma of the illness upsetting N/A
PX662201_Burden_Assessment_Tension_Others PX662201100000 Because of name's illness, to what extent have you: experienced frictions with neighbors, friends, or relatives outside the home N/A
PX662201_Burden_Assessment_Trapped PX662201150000 Because of name's illness, to what extent have you: felt trapped by your caregiving role N/A
PX662201_Burden_Assessment_Upset PX662201160000 Because of name's illness, to what extent have you: were upset about how much (name) had changed from his or her former self N/A
Mental Health Research
Measure Name:

Family Burden of Mental Illness

Release Date:

January 17, 2017

Definition

A questionnaire to assess the impact of the illness on family members

Purpose

This measure can be used to investigate the caregiver burden experienced by parents and siblings of person with a serious mental disorder.

Keywords

Early psychosis, family burden, family, Burden Assessment Scale, BAS, caregiver