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Protocol - Pain Catastrophizing - Parent Proxy

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Description

The Pain Catastrophizing Scale - Parent Version (PCS-P) includes 13 items that measure heightened negative cognitive and affective pain responses when the respondents child is in pain. Each item is rated on a 5-point Likert style scale from "not at all" (0) to "extremely" (4) with higher scores indicating more catastrophizing. A total score for the PCS-P scale can be calculated as the average of all responses. This protocol was validated in parents of children aged 9- to 16-years-old with acute and/or chronic pain.

Specific Instructions

None

Protocol

Pain Catastrophizing Scale - Parent Version


Thoughts and feelings when your child is in pain

We are interested in the thoughts and feelings you have when your child is in pain. Below are 13 sentences of different thoughts and feelings. Please put a circle around the word or phrase under each sentence that best reflects how strongly you have each thought when your child is in pain.


       

  1. When my child is in pain, I worry all the time about whether the pain will end.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I feel I can’t go on like this much longer.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, it’s terrible and I think it’s never going to get better.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, it’s awful and I feel that it overwhelms me.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I can’t stand it anymore.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I become afraid that the pain will get worse.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I keep thinking of other painful events.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I want the pain to go away.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I can’t keep it out of my mind.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I keep thinking about how much he/she is suffering.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I keep thinking about how much I want the pain to stop.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, there is nothing I can do to stop the pain.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

  1. When my child is in pain, I wonder whether something serious may happen.

NOT AT ALL

MILDLY

MODERATELY

SEVERLY

EXTREMELY

Crombez, Bijttebier, Eccleston, Mascagni, Mertens, Goubert and Verstraeten. (2012). Pain Catastrophizing Scale (child version and parent version). Measurement Instrument Database for the Social Science. Retrieved from www.midss.ie

Availability

Available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Parents of children with acute and/or chronic pain

Selection Rationale

The Pain Catastrophizing Scale is a brief, reliable, and valid self-administered questionnaire with child, adult, and parent versions that is broadly applicable to catastrophizing in both clinical and general populations. 

Language

English

Standards
StandardNameIDSource
caDSR Common Data Elements (CDE) Pain Catastrophizing Scale-Parent Proxy Assessment Score 7997180 CDE Browser
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Pain Catastrophizing Scale - Parent Version (PCS-P)

Source

Goubert, L., Eccleston, C., Vervoort, T., Jordan, A., & Crombez, G. (2006). Parental catastrophizing about their childs pain. The parent version of the Pain Catastrophizing Scale (PCS-P): A preliminary validation. Pain, 123(3), 254-263.

General References

Brandelli, Y. N., Chambers, C. T., Tutelman, P. R., Stinson, J. N., Huber, A. M., & Wilson, J. P. (2019). Parent pain cognitions and treatment adherence in juvenile idiopathic arthritis. Journal of Pediatric Psychology, 44(9), 1111-1119.  

Hechler, T., Vervoort, T., Hamann, M., Tietze, A. L., Vocks, S., Goubert, L., Hermann, C., Wager, J., Blankenburg, M., Schroeder, S., & Zernikow, B. (2011). Parental catastrophizing about their childs chronic pain: Are mothers and fathers different? European Journal of Pain (London, England), 15(5), 515.e1-9.

Sil, S., Dampier, C., & Cohen, L. L. (2016). Pediatric sickle cell disease and parent and child catastrophizing. Journal of Pain, 17(9), 963-971.

Sullivan, M.J., Bishop, S.R., & Pivik, J. (1995). The pain catastrophizing scale: Development and validation. Psychological Assessment 7, 524-532.

Vervoort, T., Goubert, L., Vandenbossche, H., Van Aken, S., Matthys, D., & Crombez, G. (2011). Childs and parents catastrophizing about pain is associated with procedural fear in children: A study in children with diabetes and their mothers. Psychological Reports, 109(3), 879-895.

Protocol ID

860203

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX860203_Pain_Catastrophizing_Parent_Proxy_Afraid_Worse
PX860203060000 When my child is in pain, I become afraid more
that the pain will get worse. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Cant_Go_On
PX860203020000 When my child is in pain, I feel I can†more
t go on like this much longer. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Cant_Keep_Out_Mind
PX860203090000 When my child is in pain, I can’t keep more
t out of my mind. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Cant_Stand
PX860203050000 When my child is in pain, I can’t stand more
t anymore. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Go_Away
PX860203080000 When my child is in pain, I want the pain to more
go away. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Never_Better
PX860203030000 When my child is in pain, it’s terrib more
e and I think it’s never going to get better. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Nothing_Stop
PX860203120000 When my child is in pain, there is nothing I more
can do to stop the pain. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Other_Painful_Events
PX860203070000 When my child is in pain, I keep thinking of more
other painful events. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Overwhelms
PX860203040000 When my child is in pain, it’s awful and more
I feel that it overwhelms me. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Suffering
PX860203100000 When my child is in pain, I keep thinking more
about how much he/she is suffering. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Want_Stop
PX860203110000 When my child is in pain, I keep thinking more
about how much I want the pain to stop. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Whether_End
PX860203010000 When my child is in pain, I worry all the more
time about whether the pain will end. show less
N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Wonder
PX860203130000 When my child is in pain, I wonder whether more
something serious may happen. show less
N/A
Pain
Measure Name

Pain Catastrophizing

Release Date

May 18, 2022

Definition

Pain catastrophizing is an amplified negative experience of pain including ruminating on the pain, magnifying the pain, and feelings of helplessness about the experience.

Purpose

Pain catastrophizing is associated with poor pain outcomes, including an increase in pain sensitivity, greater use of opioids, longer hospital stays, and increased health care utilization. Individuals with sickle cell disease report higher levels of pain catastrophizing when compared with other chronic conditions such as arthritis and back pain.  

Keywords

Pain, catastrophizing, sickle cell disease, SCD, quality of life, helplessness, rumination, magnification of pain, pain experience

Measure Protocols
Protocol ID Protocol Name
860201 Pain Catastrophizing - Adult
860202 Pain Catastrophizing - Child
860203 Pain Catastrophizing - Parent Proxy
Publications

There are no publications listed for this protocol.