Protocol - Pain Quality Descriptors (Affective) - Children
Description
The Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a is a self-administered questionnaire for 8- to 17-year-olds, assessing 8 descriptors of affective pain quality, with a recall period of the past 7 days. This protocol was validated in individuals aged 8- to 17-years-old.
Specific Instructions
The PhenX Working Group recommends this PROMIS® protocol. For additional information regarding PROMIS® instruments (including scoring, validity, and interpretation) please visit: www.healthmeasures.net. For specific information about this instrument, please visit: www.healthmeasures.net/index.php?option=com_instruments&view=measure&id=869&Itemid=992
Availability
Protocol
PROMIS® Pediatric Short Form v2.0 - Pain Quality - Affective 8a
Please respond to each item by marking one box per row.
In the past 7 days, did your pain feel…
| No | Yes | |
miserable? | [ ] 0 | [ ] 1 |
awful? | [ ] 0 | [ ] 1 |
horrible? | [ ] 0 | [ ] 1 |
unbearable? | [ ] 0 | [ ] 1 |
worrying? | [ ] 0 | [ ] 1 |
unending? | [ ] 0 | [ ] 1 |
annoying? | [ ] 0 | [ ] 1 |
unpleasant? | [ ] 0 | [ ] 1 |
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Child, Adolescent
Participants
Children and Adolescents aged 8- to 17-years-old
Selection Rationale
The Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Pain Quality - Affective 8a item bank is psychometrically sound, validated, well established, has standardized scoring, and is easy to implement and interpret.
Language
English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Patient-Reported Outcomes Measurement Information System (PROMIS®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a
Source
Jacobson, C. J., Jr., Kashikar-Zuck, S., Farrell, J., Barnett, K., Goldschneider, K., Dampier, C., Cunningham, N., Crosby, L., & DeWitt, E. M. (2015). Qualitative evaluation of pediatric pain behavior, quality, and intensity item candidates and the PROMIS pain domain framework in children with chronic pain. Journal of Pain, 16(12), 1243-1255.
General References
Revicki, D. A., Cook, K. F., Amtmann, D., Harnam, N., Chen, W. H., & Keefe, F. J. (2014). Exploratory and confirmatory factor analysis of the PROMIS pain quality item bank. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 23(1), 245-255.
Singh, A., DasGupta, M., Simpson, P. M., & Panepinto, J. A. (2019). Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease. Pediatric Blood & Cancer, 66(5), e27633.
Protocol ID
860701
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX860701_Pain_Quality_Affective_Children_Annoying | ||||
| PX860701070000 | In the past 7 days, did your pain feel annoying? | N/A | ||
| PX860701_Pain_Quality_Affective_Children_Awful | ||||
| PX860701020000 | In the past 7 days, did your pain feel awful? | N/A | ||
| PX860701_Pain_Quality_Affective_Children_Horrible | ||||
| PX860701030000 | In the past 7 days, did your pain feel horrible? | N/A | ||
| PX860701_Pain_Quality_Affective_Children_Miserable | ||||
| PX860701010000 | In the past 7 days, did your pain feel miserable? | N/A | ||
| PX860701_Pain_Quality_Affective_Children_Unbearable | ||||
| PX860701040000 | In the past 7 days, did your pain feel unbearable? | N/A | ||
| PX860701_Pain_Quality_Affective_Children_Unending | ||||
| PX860701060000 | In the past 7 days, did your pain feel unending? | N/A | ||
| PX860701_Pain_Quality_Affective_Children_Unpleasant | ||||
| PX860701080000 | In the past 7 days, did your pain feel unpleasant? | N/A | ||
| PX860701_Pain_Quality_Affective_Children_Worrying | ||||
| PX860701050000 | In the past 7 days, did your pain feel worrying? | N/A | ||
Measure Name
Pain Quality Descriptors
Release Date
May 18, 2022
Definition
A measure used to assess the specific subjective sensations associated with pain.
Purpose
Assessing the nature of pain an individual experiences may assist in indicating whether the pain is primarily nociceptive or neuropathic. This can aid in the selection of appropriate treatment and in evaluating a patient's response to treatment.
Keywords
pain, affective, sickle cell disease, SCD, pain quality, Pain measurement, Pain assessment, Patient-Reported Outcomes Measurement Information System, PROMIS®, National Institutes of Health, NIH, type I diabetes, asthma
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 860701 | Pain Quality Descriptors (Affective) - Children |
| 860702 | Pain Quality Descriptors (Sensory) - Children |
| 860703 | Pain Quality Descriptors (Nociceptive) - Adult |
| 860704 | Pain Quality Descriptors (Neuropathic) - Adult |
Publications
There are no publications listed for this protocol.