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Protocol - Pain Interference - Adult

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Description

The Patient-Reported Outcomes Measurement Information System (PROMIS®) Item Bank v1.1 - Pain Interference - Short Form 8a is an 8-item self-report questionnaire completed by adults that assesses how pain impacted daily activities of living and the enjoyment of those activities in the last seven days. This protocol was validated in individuals aged 18 years and older.

Specific Instructions

The PhenX Working Group recommends this PROMIS® protocol. For additional information regarding PROMIS® instruments (including scoring, validity, and interpretation) please visit: www.healthmeasures.net. For specific information about this instrument, please visit: www.healthmeasures.net/index.php?option=com_instruments&view=measure&id=167&Itemid=992

Protocol

PROMIS® Item Bank v1.1 - Pain Interference - Short Form 8a


In the past 7 days…


1. How much did pain interfere with your day to day activities?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much


2. How much did pain interfere with work around the home?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much


3. How much did pain interfere with your ability to participate in social activities?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much


4. How much did pain interfere with your household chores?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much


5. How much did pain interfere with the things you usually do for fun?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much


6. How much did pain interfere with your enjoyment of social activities?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much


7. How much did pain interfere with your enjoyment of life?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much


8. How much did pain interfere with your family life?

1 [ ] Not at all

2 [ ] A little bit

3 [ ] Somewhat

4 [ ] Quite a bit

5 [ ] Very much

Availability

Available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults aged 18 years and older

Selection Rationale

Patient-Reported Outcomes Measurement Information System (PROMIS®) measures are psychometrically robust. The availability of both pediatric and adult measures allows for comparison across the lifespan.

Language

Dutch, English, French, German, Hebrew, Hungarian, Italian, Mandarin Chinese, Norwegian, Portuguese, Spanish

Standards
StandardNameIDSource
caDSR Common Data Elements (CDE) Pain Interference-Adult Assessment Score 7997200 CDE Browser
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Patient-Reported Outcomes Measurement Information System (PROMIS®) Item Bank v1.1 - Pain Interference - Short Form 8a

Source

Amtmann, D. A., Cook, K. F., Jensen, M. P., Chen, W-H., Choi, S. W., Revicki, D., Cella, D., Rothrock, N., Keefe, F., Callahan, L., & Lai, J-S. (2010). Development of a PROMIS item bank to measure pain interference. Pain, 150(1), 173-182.

General References

Ballas, S. K., Kesen, M. R., Goldberg, M. F., Lutty, G. A., Dampier, C., Osunkwo, I., Wang, W. C., Hoppe, C., Hagar, W., Darbari, D. S., & Malik, P. (2012). Beyond the definitions of the phenotypic complications of sickle cell disease: An update on management.  Scientific World Journal, 2012, 949535.

Broderick, J. E., Schneider, S., Junghaenel, D. U., Schwartz, J. E., & Stone, A. A. (2013). Validity and reliability of patient?reported outcomes measurement information system instruments in osteoarthritis. Arthritis Care & Research, 65(10), 1625-1633.

Hung, M., Baumhauer, J. F., Latt, L. D., Saltzman, C. L., SooHoo, N. F., & Hunt, K. J. (2013). Validation of PROMIS® Physical Function computerized adaptive tests for orthopaedic foot and ankle outcome research. Clinical Orthopaedics and Related Research®, 471(11), 3466-3474.

Karayannis, N. V., Sturgeon, J. A., Chih-Kao, M., Cooley, C., & Mackey, S. C. (2017). Pain interference and physical function demonstrate poor longitudinal association in people living with pain: A PROMIS investigation. Pain, 158(6), 1063-1068.

Turk, D. C., Fillingim, R. B., Ohrbach, R., & Patel, K. V. (2016). Assessment of psychosocial and functional impact of chronic pain.  Journal of Pain, 17(9), T21-T49.

Protocol ID

860501

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX860501_Pain_Interference_Adult_Day_To_Day
PX860501010000 In the past 7 days, how much did pain more
interfere with your day to day activities? show less
N/A
PX860501_Pain_Interference_Adult_Enjoyment_Life
PX860501070000 In the past 7 days, how much did pain more
interfere with your enjoyment of life? show less
N/A
PX860501_Pain_Interference_Adult_Enjoyment_Social
PX860501060000 In the past 7 days, how much did pain more
interfere with your enjoyment of social activities? show less
N/A
PX860501_Pain_Interference_Adult_Family_Life
PX860501080000 In the past 7 days, how much did pain more
interfere with your family life? show less
N/A
PX860501_Pain_Interference_Adult_Fun
PX860501050000 In the past 7 days, how much did pain more
interfere with the things you usually do for fun? show less
N/A
PX860501_Pain_Interference_Adult_Household_Chores
PX860501040000 In the past 7 days, how much did pain more
interfere with your household chores? show less
N/A
PX860501_Pain_Interference_Adult_Participate_Social
PX860501030000 In the past 7 days, how much did pain more
interfere with your ability to participate in social activities? show less
N/A
PX860501_Pain_Interference_Adult_Work_Around_Home
PX860501020000 In the past 7 days, how much did pain more
interfere with work around the home? show less
N/A
Pain
Measure Name

Pain Interference

Release Date

May 18, 2022

Definition

The extent to which the experience of pain interferes with a person's daily life. 

Purpose

Pain is a complex multidimensional experience that extends beyond its presence and severity. The presence of pain can have an impact on an individual's quality of life including interfering with activities at home, socially, and in the general enjoyment of life. This measure provides a comprehensive assessment of how a person's pain is interfering across different factors.

Keywords

Pain, sickle cell disease, Patient-Reported Outcomes Measurement Information System, PROMIS®, National Institutes of Health, NIH

Measure Protocols
Protocol ID Protocol Name
860501 Pain Interference - Adult
860502 Pain Interference - Child
860503 Pain Interference - Parent Proxy
Publications

There are no publications listed for this protocol.