Protocol - Sickle Cell Disease Pain Location Body Map - Adult
The Sickle Cell Disease Pain Location Body Map - Adult protocol is one question from a wider self-administered pain diary that is completed daily. This protocol is used to record the previous days level of sickle cell disease (SCD)-related pain. Additionally, the wider Sickle Cell Pain Diary captures data about an individuals medication use, responses to pain, and SCD-related disability and distress. This protocol was validated in individuals aged 16 years and older.
The PISCES Body Map is useful for capturing acute sickle cell disease pain during the past 24 hours. The Michigan Body Map is more relevant for general populations to assess persistent or recurrent pain over the last 3 months.
On the body diagrams, place an X in each box where, due to sickle cell pain, you hurt yesterday
Personnel and Training Required
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Adolescents and Adults aged 16 years and older
The self-administered pain diary from Smith et al. is a valid and reliable instrument for capturing the location of pain.
|caDSR Common Data Elements (CDE)||Pain Sickle Cell Disease Pain Location Body Map-Adult Assessment Text||7997212||CDE Browser|
Process and Review
Protocol Name from Source
Sickle Cell Pain Diary
McClish, D. K., Smith, W. R., Dahman, B. A., Levenson, J. L., Roberts, J. D., Penberthy, L. T., Aisiku, I. P., Roseff, S. D., & Bovbjerg, V. E. (2009). Pain site frequency and location in sickle cell disease: The PiSCES project. Pain, 145(1-2), 246-251.
Smith, W. R., Bovbjerg, V. E., Penberthy, L. T., McClish, D. K., Levenson, J. L., Roberts, J. D., Gil, K., Roseff, S. D., & Aisiku, I. P. (2005). Understanding pain and improving management of sickle cell disease: The PiSCES study. Journal of the National Medical Association, 97(2), 183-193.
McClish, D. K., Smith, W. R., Levenson, J. L., Aisiku, I. P., Roberts, J. D., Roseff, S. D., & Bovbjerg, V. E. (2017). Comorbidity, pain, utilization, and psychosocial outcomes in older versus younger sickle cell adults: The PiSCES project. BioMed Research International, 2017, 4070547.
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
|PX860601010000||Due to sickle cell pain, where on your body more||N/A|
May 18, 2022
This measure assesses the number and location of sites on the body where pain symptoms are felt.
The number and location of pain sites vary significantly by age, frequency of pain, crisis, and utilization. Pain location can predict important behavioral outcomes, number of days where an individual experiences subjective vaso-occlusive crises, and unplanned utilization of hospitals.
Pain, response to pain, sickle cell disease, SCD, location, site of pain, Sickle Cell Disease Pain Diary, PiSCES project
|Protocol ID||Protocol Name|
|860601||Sickle Cell Disease Pain Location Body Map - Adult|
|860602||Pain Location Body Map - Child|
There are no publications listed for this protocol.