Protocol - Pain Location Body Map - Child
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart is a self-administered body map with 21 scored areas that can be completed either in paper or electronic format. Participants color or click on the location(s) that they have felt pain during the preceding 2 weeks. This protocol was validated in individuals up to 18 years of age.
Within von Baeyer et al. (2011), it is recommended that the pain chart be used without an adults assistance for children aged 7 years and older. The pain chart may be able to be completed by children younger than 7 years with adult assistance, but the adults influence must be recognized.
CARRA Pain Chart
Personnel and Training Required
|Specialized requirements for biospecimen collection||No|
|Average time of greater than 15 minutes in an unaffected individual||No|
Mode of Administration
Children and Adolescents up to 18 years of age
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart is a single dimensional instrument that can be used across a wide age range (4-18 years) and within a short completion time
|caDSR Common Data Elements (CDE)||Pain Location Body Map-Child Assessment Text||7997216||CDE Browser|
Process and Review
Protocol Name from Source
Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart
von Baeyer, C. L., Lin, V., Seidman, L. C., Tsao, J. C., & Zeltzer, L. K. (2011). Pain charts (body maps or manikins) in assessment of the location of pediatric pain. Pain Management, 1(1), 61-68.
Evans, S., Djilas, V., Seidman, L. C., Zeltzer, L. K., & Tsao, J. (2017). Sleep quality, affect, pain, and disability in children with chronic pain: Is affect a mediator or moderator? Journal of Pain, 18(9), 1087-1095.
Luca, N. J., Stinson, J. N., Feldman, B. M., Benseler, S. M., Beaton, D., Campillo, S., LeBlanc, C., van Wyk, M., & Bayoumi, A. M. (2017). Validation of the Standardized Universal Pain Evaluations for Rheumatology Providers for Children and Youth (SUPER-KIDZ). Journal of Orthopaedic & Sports Physical Therapy, 47(10), 731-740.
Stinson, J. N., Connelly, M., Jibb, L. A., Schanberg, L. E., Walco, G., Spiegel, L. R., Tse, S. M., Chalom, E. C., Chira, P., & Rapoff, M. (2012). Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: A Delphi survey and consensus conference process followed by feasibility testing. Pediatric Rheumatology Online Journal, 10(1), 7.
|Variable Name||Variable ID||Variable Description||dbGaP Mapping|
May 18, 2022
This measure assesses the number and location of sites on the body where pain symptoms are felt.
The number and location of pain sites vary significantly by age, frequency of pain, crisis, and utilization. Pain location can predict important behavioral outcomes, number of days where an individual experiences subjective vaso-occlusive crises, and unplanned utilization of hospitals.
Pain, response to pain, sickle cell disease, SCD, location, site of pain, Sickle Cell Disease Pain Diary, PiSCES project
|Protocol ID||Protocol Name|
|860601||Sickle Cell Disease Pain Location Body Map - Adult|
|860602||Pain Location Body Map - Child|
There are no publications listed for this protocol.