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Protocol - Physical Mobility - Child

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Description

Patient-Reported Outcomes Measurement Information System® (PROMIS) Pediatric Item Bank v2.0 - Mobility Short Form 8a is an 8-item self-administered questionnaire (with a proxy version available), with items prompting on a five-point rating scale indicating how well an individual can perform a specified task. This protocol was validated in individuals aged 8- to 17-years-old.

Specific Instructions
The PhenX Working Group recommends this PROMIS® protocol. For additional information regarding PROMIS® instruments (including scoring, validity, and interpretation) please visit: www.healthmeasures.net. For specific information about this instrument, please visit: www.healthmeasures.net/index.php?option=com_instruments&view=measure&id=705&Itemid=992
Protocol

Patient-Reported Outcomes Measurement Information System® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a

Pediatric Mobility

Please respond to each item by marking one box per row.

In the past 7 days...

With no trouble

With a little trouble

With some trouble

With a lot of trouble

Not able to do

I could do sports and exercise that other kids my age could do.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

I could get up from the floor.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

I could keep up when I played with other kids.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

I could move my legs.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

I could stand up by myself.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

I could stand up on my tiptoes.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

I could walk up stairs without holding on to anything.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

I have been physically able to do the activities I enjoy most.

[ ] 5

[ ] 4

[ ] 3

[ ] 2

[ ] 1

Availability

Available

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Child, Adolescent

Participants

Children and Adolescents aged 8- to 17-years-old

Selection Rationale

The Patient-Reported Outcomes Measurement Information System® (PROMIS®) protocols have been tested and have been found to be reliable and comparable to established measures of these same content areas. Additionally, they are quick and easy to administer, either via paper and pencil or as a computer-based instrument.

Language

English, Spanish

Standards
StandardNameIDSource
caDSR Common Data Elements (CDE) Pain Physical Mobility-Child Assessment Score 7997232 CDE Browser
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Patient-Reported Outcomes Measurement Information System® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a

Source

Quinn, H., Thissen, D., Liu, Y., Magnus, B., Lai, J-S., Amtmann, D., Varni, J. W., Gross, H. E., & DeWalt, D. A. (2014). Using item response theory to enrich and expand the PROMIS® pediatric self report banks. Health and Quality of Life Outcomes, 12, 160.

General References

Adjei, J., Schachne, J. M., Green, D. W., & Fabricant, P. D. (2020). Correlation between the PROMIS Pediatric Mobility Instrument and the Hospital for Special Surgery Pediatric Functional Activity Brief Scale (HSS Pedi-FABS). HSS Journal: The Musculoskeletal Journal of Hospital for Special Surgery, 16(Suppl 2), 311-315.

DeWalt, D. A., Gross, H. E., Gipson, D. S., Selewski, D. T., DeWitt, E. M., Dampier, C. D., Hinds, P. S., Huang, I. C., Thissen, D., & Varni, J. W. (2015). PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 24(9), 2195-2208.

Reeve, B. B., Edwards, L. J., Jaeger, B. C., Hinds, P. S., Dampier, C., Gipson, D. S., Selewski, D. T., Troost, J. P., Thissen, D., Barry, V., Gross, H. E., & DeWalt, D. A. (2018). Assessing responsiveness over time of the PROMIS® pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 27(1), 249-257.

Protocol ID

860902

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX860902_Physical_Mobility_Child_Activities_Enjoy
PX860902080000 In the past 7 days, I have been physically more
able to do the activities I enjoy most. show less
N/A
PX860902_Physical_Mobility_Child_Keep_Up
PX860902030000 In the past 7 days, I could keep up when I more
played with other kids. show less
N/A
PX860902_Physical_Mobility_Child_Move_Legs
PX860902040000 In the past 7 days, I could move my legs. N/A
PX860902_Physical_Mobility_Child_Sports_Exercise
PX860902010000 In the past 7 days, I could do sports and more
exercise that other kids my age could do. show less
N/A
PX860902_Physical_Mobility_Child_Stairs
PX860902070000 In the past 7 days, I could walk up stairs more
without holding on to anything. show less
N/A
PX860902_Physical_Mobility_Child_Stand_Myself
PX860902050000 In the past 7 days, I could stand up by myself. N/A
PX860902_Physical_Mobility_Child_Stand_Tiptoes
PX860902060000 In the past 7 days, I could stand up on my more
tiptoes. show less
N/A
PX860902_Physical_Mobility_Child_Stand_Up_From_Floor
PX860902020000 In the past 7 days, I could get up from the floor. N/A
Pain
Measure Name

Physical Mobility

Release Date

May 18, 2022

Definition

Measure that rates an individual's overall physical mobility.

Purpose

Ratings from this measure can be used to determine if an individual's physical ability or mobility is limited.

Keywords

Physical function, mobility, adult, PROMIS, Patient-Reported Outcomes Measurement Information System, sickle cell disease, pain, functional assessment

Measure Protocols
Protocol ID Protocol Name
860901 Physical Mobility - Adult
860902 Physical Mobility - Child
860903 Physical Mobility - Hospitalized Individuals
Publications

There are no publications listed for this protocol.