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Protocol - Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors

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Description

A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with tiredness and appetite.

Specific Instructions

None

Availability

Available

Protocol

1a. Do you still have the lack of energy or general tired feeling?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

1b. Does/did the lack of energy or general tired feeling affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

1c. When did the lack of energy or general tired feeling clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

2a. Do you still have the loss of appetite?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

2b. Does/did the loss of appetite affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

2c. When did the loss of appetite clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults aged 18 years or older

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Johns Hopkins COVID Long Study

Source

Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on lack of energy or general tired feeling; loss of appetite.

General References
None
Protocol ID

992004

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992004_Long_Covid_Symptoms_Psychological_Lack_Energy
PX992004010100 Do you still have the lack of energy or more
general tired feeling? show less
N/A
PX992004_Long_Covid_Symptoms_Psychological_Lack_Energy_Clear
PX992004010300 When did the lack of energy or general tired more
feeling clear? show less
N/A
PX992004_Long_Covid_Symptoms_Psychological_Lack_Energy_Normal_Activities
PX992004010200 Does/did the lack of energy or general tired more
feeling affect your ability to do your normal activities? show less
N/A
PX992004_Long_Covid_Symptoms_Psychological_Loss_Appetite
PX992004020100 Do you still have the loss of appetite? N/A
PX992004_Long_Covid_Symptoms_Psychological_Loss_Appetite_Clear
PX992004020300 When did the loss of appetite clear? N/A
PX992004_Long_Covid_Symptoms_Psychological_Loss_Appetite_Normal_Activities
PX992004020200 Does/did the loss of appetite affect your more
ability to do your normal activities? show less
N/A
Long COVID
Measure Name

Long COVID - Symptoms Due to COVID-19

Release Date

March 17, 2023

Definition

This is a measure of an individual’s new or continuing COVID-19 symptoms.

Purpose

Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

coronavirus, COVID, COVID-related symptoms, COVID-19, lack of energy, tired feeling, loss of appetite, Johns Hopkins

Measure Protocols
Protocol ID Protocol Name
992001 Long COVID - Symptoms Due to COVID-19 - Screener
992002 Long COVID - Symptoms Due to COVID-19 - Memory
992003 Long COVID - Symptoms Due to COVID-19 - Neurology
992004 Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
992005 Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
992006 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)
992007 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form)
992008 Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
992009 Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
992010 Long COVID - Symptoms Due to COVID-19 - Respiratory
992011 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form)
992012 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
992013 Long COVID - Symptoms Due to COVID-19 - Allergies
992014 Long COVID - Symptoms Due to COVID-19 - Skin and Hair
992015 Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
992016 Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form)
992017 Long COVID - Symptoms Due to COVID-19 - Genitourinary
992018 Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
992019 Long COVID - Symptoms Due to COVID-19 - Tooth Pain
992020 Long COVID - Symptoms Due to COVID-19 - Pediatric
Publications

There are no publications listed for this protocol.