Protocol - Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
Description
This protocol helps better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with temperature regulation and cardiovascular.
Specific Instructions
None
Availability
Protocol
Temperature Issues
1. Have you experienced any TEMPERATURE ISSUES (including heatintolerance, chills, high/low temperature) since the start of your COVID-19 illness?
[ ] Yes
[ ] No
1a. Did you experience any of the following TEMPERATURE ISSUES since the start of your COVID-19 illness?
[ ] Temperature lability (quick swings in and out of fever or elevated temperature)
[ ] Heat intolerance
[ ] Other temperature issues (not listed above or below) ________
1b. If you experienced any of the following temperature issues, when did you experience the following symptoms?
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.
| N/A | Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 | Month 7 | |
| Elevated temperature (98.8-100.4 degrees Fahrenheit, 37.1-37.9 Celsius) | |||||||||||
| Fever (100.4 degrees Fahrenheit /38 degrees Celsius or above) | |||||||||||
| Low temperature | |||||||||||
| Chills/flushing/sweats | |||||||||||
| All other temperature issues |
1c. If you had a low temperature, what was your lowest temperature? Please input number only.
_________
1d. If you had a high temperature, what was your highest temperature? Please input number only.
_________
Cardiovascular Symptoms
2. When did you experience these symptoms?
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.
| N/A | Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 | Month 7 | |
| Tachycardia (high heart rate, >90 beats per minute) | |||||||||||
| Bradycardia (low heart rate,<60 beats per minute) | |||||||||||
| Heart palpitations (sensation or awareness of your heart beating. Feeling like your heart is racing, thumping or skipping beats) | |||||||||||
| Abnormally high blood pressure | |||||||||||
| Abnormally low blood pressure | |||||||||||
| Visibly inflamed/bulging veins | |||||||||||
| Fainting | |||||||||||
| Blood clots (Thrombosis) |
2a. If you had tachycardia and were able to measure it, what was the maximum heart rate (in bpm) that you measured, at rest?
_________
2b. If you had tachycardia and were able to measure it, what was the maximum heart rate (in bpm) that you measured, at exertion (during physical activity)?
_________
2c. If you had tachycardia and were able to measure it, was your heartrate higher when standing compared to sitting?
[ ] Yes, it was higher when I was standing
[ ] No, it was higher when I was sitting
[ ] It was about the same while standing or sitting
2d. If you had tachycardia and were able to measure it, how much did your heart rate generally change from lying position to standing, last time you measured? (In BPM, beats per minute)
_________
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Online Survey on Recovery from COVID-19
Source
University College London (2022). Online Survey on Recovery from COVID-19, Section “Temperature regulation and Cardiovascular Sections”
General References
None
Protocol ID
992008
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Highest_Temperature | ||||
| PX992008010500 | If you had a high temperature, what was your more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Lowest_Temperature | ||||
| PX992008010400 | If you had a low temperature, what was your more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Maximum_Tachycardia_Exertion | ||||
| PX992008020300 | If you had tachycardia and were able to more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Blood_Clots | ||||
| PX992008020108 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Bradycardia | ||||
| PX992008020102 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Chills_Flushing_Sweats | ||||
| PX992008010304 | If you experienced any of the following more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Elevated_Temperature | ||||
| PX992008010301 | If you experienced any of the following more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Fainting | ||||
| PX992008020107 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Fever | ||||
| PX992008010302 | If you experienced any of the following more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Heart_Palpitations | ||||
| PX992008020103 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_High_Blood_Pressure | ||||
| PX992008020104 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Low_Blood_Pressure | ||||
| PX992008020105 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Low_Temperature | ||||
| PX992008010303 | If you experienced any of the following more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Maximum_Tachycardia_Rest | ||||
| PX992008020200 | If you had tachycardia and were able to more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Other_Temperature | ||||
| PX992008010305 | If you experienced any of the following more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Tachycardia | ||||
| PX992008020101 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Symptoms_Visibly_Inflamed_Veins | ||||
| PX992008020106 | When did you experience these symptoms? more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Tachycardia_Lying_Standing_Change | ||||
| PX992008020500 | If you had tachycardia and were able to more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Tachycardia_Sitting_Standing_Higher | ||||
| PX992008020400 | If you had tachycardia and were able to more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Temperature_Issues_Start | ||||
| PX992008010100 | Have you experienced any TEMPERATURE ISSUES more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Temperature_Issues_Symptoms | ||||
| PX992008010201 | Did you experience any of the following more | N/A | ||
| PX992008_Long_Covid_Symptoms_Temperature_Cardiovascular_Temperature_Issues_Symptoms_Other | ||||
| PX992008010202 | Did you experience any of the following more | N/A | ||
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID-19, Temperature Regulation, Cardiovascular, University College London, UCL, fever, tachycardia, bradycardia, Heart Palpitations, Blood clots, Thrombosis
Measure Protocols
Publications
There are no publications listed for this protocol.