Protocol - Long COVID - Symptoms Due to COVID-19 - Respiratory
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with cough, shortness of breath and tightness in chest.
Specific Instructions
None
Availability
Protocol
1a. Do you still have the new or worsening cough?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
1b. Does/did the new or worsening cough affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
1c. When did the new or worsening cough clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
2a. Do you still have the shortness of breath?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
2b. Does/did the shortness of breath affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
2c. When did the shortness of breath clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
3a. Do you still have the discomfort, tightness, or pressure in chest?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
3b. Does/did the discomfort, tightness, or pressure in chest affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
3c. When did the discomfort, tightness, or pressure in chest rate clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on worsening cough; shortness of breath; discomfort, tightness, or pressure in chest.
General References
NoneProtocol ID
992010
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX992010_Long_COVID_Symptoms_Respiratory_Discomfort_Chest | ||||
| PX992010030100 | Do you still have the discomfort, tightness, more | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_Discomfort_Chest_Clear | ||||
| PX992010030300 | When did the discomfort, tightness, or more | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_Discomfort_Chest_Normal_Activities | ||||
| PX992010030200 | Does/did the discomfort, tightness, or more | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_New_Worsening_Cough | ||||
| PX992010010100 | Do you still have the new or worsening cough? | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_New_Worsening_Cough_Clear | ||||
| PX992010010300 | When did the new or worsening cough clear? | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_New_Worsening_Cough_Normal_Activities | ||||
| PX992010010200 | Does/did the new or worsening cough affect more | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_Shortness_Breath | ||||
| PX992010020100 | Do you still have the shortness of breath? | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_Shortness_Breath_Clear | ||||
| PX992010020300 | When did the shortness of breath clear? | N/A | ||
| PX992010_Long_COVID_Symptoms_Respiratory_Shortness_Breath_Normal_Activities | ||||
| PX992010020200 | Does/did the shortness of breath affect your more | N/A | ||
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID, COVID-related symptoms, COVID-19, cough, shortness of breath, tightening chest, John Hopkins
Measure Protocols
Publications
There are no publications listed for this protocol.