Protocol - Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with vomiting and diarrhea.
Specific Instructions
None
Availability
Protocol
1a. Do you still have the feeling sick to your stomach or vomiting?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
1b. Does/did the feeling sick to your stomach or vomiting affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
1c. When did the feeling sick to your stomach or vomiting clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Dont know
[ ] Refuse to answer
2a. Do you still have the diarrhea?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
2b. Does/did the diarrhea affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
2c. When did the diarrhea clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Dont know
[ ] Refuse to answer
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on feeling sick to your stomach or vomiting; diarrhea.
General References
NoneProtocol ID
992012
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX992012_Long_COVID_Symptoms_Gastrointestinal_Short_Diarrhea | ||||
| PX992012020100 | Do you still have the diarrhea? | N/A | ||
| PX992012_Long_COVID_Symptoms_Gastrointestinal_Short_Diarrhea_Clear | ||||
| PX992012020300 | When did the diarrhea clear? | N/A | ||
| PX992012_Long_COVID_Symptoms_Gastrointestinal_Short_Diarrhea_Normal_Activites | ||||
| PX992012020200 | Does/did the diarrhea affect your ability to more | N/A | ||
| PX992012_Long_COVID_Symptoms_Gastrointestinal_Short_Sick_Stomach_Vomiting | ||||
| PX992012010100 | Do you still have the feeling sick to your more | N/A | ||
| PX992012_Long_COVID_Symptoms_Gastrointestinal_Short_Sick_Stomach_Vomiting_Clear | ||||
| PX992012010300 | When did the feeling sick to your stomach or more | N/A | ||
| PX992012_Long_COVID_Symptoms_Gastrointestinal_Short_Sick_Stomach_Vomiting_Normal_Activites | ||||
| PX992012010200 | Does/did the feeling sick to your stomach or more | N/A | ||
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
Johns Hopkins, COVID, long COVID, symptoms, Gastrointestinal, stomach, vomiting, diarrhea
Measure Protocols
Publications
There are no publications listed for this protocol.